I started remicade when I was barely 19 and I remember it seeming like such a big step in my treatment plan. I dont think it caused me anxiety but it kinda hits you hard when you're in a big room...
Luckily I don't notice a difference based on when my last infusion was. I don't want to tempt fate so to speak, but I really have been doing so well for almost 4 years that I'm wondering if 7 days...
I haven't posted in a while (like years) but luckily that's because I've been doing well for a long time now. I finally got off pred (May 2010) and I've been in remission since June 2011 with...
I was on 40mg for about 5 months then did a slow taper (like 5mg every 2 weeks!). Things got better with the side effects at around 10mg, but that's also when my UC would start acting up again. I...
I'm currently on colazal, but Asacol was the drug of choice for a while. I switched to Lialda at one point to see if it was any better and honestly it just made me gassy lol. Asacol did too, but I...
Yeah, before I was in remission I would have problems before my next remidcade was due then within 24 hours on my next infusion I was great! It's crazy how fast it can work. I have to get it every 6...
So I've been in remission for about a year and a half! Yay! My question now is I'm on colazal as a maintenance med and Remidcade every 6 weeks (not sure of the dose right now, but I think it's above...
I'm finally down to 15 after being on 40mg for 5 months straight and people say my face is a little better....I'm starting to taper again, 2.5 mg every 2 weeks which feels like forever, but I wonder...
I switched but I didn't really notice anything but it was probably because I was also on 40mg of pred. But, it didn't make me worse, so maybe that's something....
So, they say you're not supposed to go swimming if you have diarrhea. Well, if you have UC and nothing infectious, is it still a bad idea to go swimming?...
Mom says the same thing! It's great if you were up crying the night before and your eyes are swollen or something....
Has anyone else had a problem with this?...
Doctor still hasn't changed my meds. Grr! But, I go back in 3 weeks and after this last appointment he did a bone scan since I've been on the pred so long and the next day I had a small bowel follow...
The canasa makes it growl more in the mornings for me. My stomach noise used to happen all the time even when I wasn't on the canasa though. Sometimes it would be like a squeak, it sounded just like...
I've noticed for a few weeks now that my chest is always flushed. It looks like I got sunburn 3 days ago every day. And now the tops of my arms look flushed/purplish. I haven't gained weight, but I'm...
I had been on the pred for 6 or 7 months, but it wasn't until I went to 40mg that I got side effects. so yes, your pharmacist is wrong. VERY WRONG....
Yeah, you could have prednisone induced diabetes. I've been tested twice but came back negative. Don't freak out though, because normally they want to test you after a fast (just first thing in the...
I've been on the yaz either 3 or 4 years but I've only had the colitis a year. I'll ask my doc about it though. I just need it for my degree and I'm trying to get it in 3 years so it'd be good to get...
Would it be worth it if my last colonoscopy only showed problems in the last 6cm though? And, um, how exactly does one go about using enemas like that? Is it a get in the downward dog and squeeze...
Sorry, I realized that sounded not so encouraging. I was fine for about 3 months on the Asacol, then I started having a flare. But I never had any side effects from it :-)...
I was diagnosed just a year ago and the asacol worked pretty well. I started off 6 pills a day then had to go up to 9. I didn't start 12 until I started bleeding again. But I did notice an...
Enemas sound scary to be honest. I've only done them once and that was a couple of fleet enemas for the prep for my first colonoscopy and it was NO FUN. lol..but I know they're not supposed to be...
You can put in whole oragnes and grapefruits if you want, but it is better to peel them. The juicer we just bought can't take bananas, so you have to blend them. We peel the outer layer of our...
I signed up for a 1hr tennis/raquetball class toward the beginning of the summer. It puts me up to 18 hours which is kind of a safety net so I can drop a 3 hour class if things get too rough and keep...
Yeah, my roomie knows about it, we roomed together last year. She's understanding. I just don't know our suitemates so they're gonna get the lovely run-down of why they're gonna see me throw back 20+...
Sunflower seeds? Hell, if that'll help I'll do it! What kind? I've been on pred TOO long. I'm 18 and was 17 when I was diagnosed so I feel your pain..starting my second year of college in a week &...
Old man disease! Ha! I was 17, my friend was 13, and a daughter of one of my dad's coworkers was 11 or 12 when the UC was diagnosed...don't feel old.. I haven't been bleeding since right before a...
That's exactly what's happening to me! Around noon or so, and it's worse right before I eat. Ok, that's actually a relief to know someone had the exact same thing going on. I just hate feeling yucky....
I'm so sorry you're stuck feeling like you are. I'm on 40mg of prednisone and lately I get really shaky. My hands tremble. Its starting to affect my quality of sleep too I think. Good luck!...
I'm jealous lol...I've been on 40mg for 6 weeks now..and I've been on them since December just not that high a dose, before I got upped to 40mg I was tapering at a rate of like 4-6 weeks depending on...
Thanks guys, I really appreciate the advice. I'm not doing anything this summer except taking organic chemistry (fun fun) but I've been trying to get more sleep (just not the nights before tests :-)....
My mom just had a colonoscopy with the moviprep and she loved it compared to the other stuff! Supposedly the way they used to do it was actually really bad for you. I just had my first one a year ago...
The past couple of days I have just felt like crap. I don't know how to describe it other than I feel yucky, I'm not as hungry, and I've been shaky. Like, I was eating soup for lunch at Chili's and...
**20mg pred @ 9:00...
Thank you so much for all your responses! It's really encouraging and helpful to hear from others living with this. I went to the doctor yesterday and he wants to remain at the 40mg until I'm only...
I've been on 40mg of prednisone for almost 4 weeks now (I already take 12 asacol a day so that can't increase) and I'm a little better, but is going an average of 4.5X a day to 3.25X a day really...