Hi all- I've been a fairly active member at the UC forum. I was diagnosed at 18 so it has been nearly 5 years since my diagnosis. Sadly it has been a really rough go. I've been in and out of the...
I have the same question. Just had two setons placed about 2 weeks ago, one is behind the anus and I expect no problems but the other comes out right next to the bottom of the entrance of the vaginal...
Thanks everybody! I got some cream for tearing and stuff, which seems to help on and off. Right now I am bleeding PROFUSELY from the rectum and I have contacted my doctor about it but she hasn't...
Hey all, I just had my takedown surgery on June 13th, and while I felt great for a few days after, things have been steadily declining since then. Some of you might have seen my post about my...
Hullo! I am also a college student (22 year old female) who has UC. I became septic because I was so sick in January and they had to do an emergency colectomy on me. I've had an ileostomy and...
Hey all, I recently posted about my emergency surgery, but for those who didn't see it, I had my colon removed but my rectum preserved because it looked good. (I was septic, that is why it was...
Slight: Yeah, they didn't construct the j-pouch because it was an emergency and especially because I didn't have a lot of blood in me. I think the surgeon is going to try to construct it and hook it...
Suebear: Wow, awesome! But how do they reattach the pouch to the rectum with no new incision? Just go through the hole where the stoma was? Crud I had another question but I forgot it! Arrgh!...
Thank you for the well wishes everybody! I'll try to answer you all. Chris- I was thinking about surgery happening soon for similar reasons to yours. Humira was failing, I felt like if I waited my...
Hey guys! I want to give you an update, sorry it took so long! SHORT VERSION: I had emergency surgery because I was septic and had a total colectomy with ileostomy. Planning on getting the j-pouch in...
Wow! Thanks for all the advice, everybody! I checked out the jpouch website along with a few other sites. I live in Massachusetts and my GI is at Mass General Hospital, which is really good from what...
Oh, yes I have tried enemas, all the 5ASA's, 6MP, Prednisone, Colazol, Asacol, Lialda, Remicade, low residue diet, etc. It just seems like when it wants to flare, it FLARES and even if I eat nothing,...
Sorry if this has been posted before, I've looked for information everywhere but it seems to be lacking. I'm going on 22 and severe ulcerative pancolitis has all but ruined my college career. I'm...
afo: From what I understand, and from what my doctor told me, they try Remicade first because it has been out on the market longer and therefore has had more time for any negative side effects to...
UCbrian, I definitely noticed results after my first month on it. Probably sooner, but I am not sure. I am only on my 10th week now, so (at least for me) it does its job very quickly! I'm also...
I'm just writing about how awesome I feel now that I am on Humira. I tried everything since I was diagnosed, and nothing ever worked very long. What I tried: 6MP Prednisone Lialda Asacol Colazol...
I've just taken my 10th week injection and up until now I had no issues but now I am having the exact same problems as you: a big red raised injection site that is itchy as all getout and painful to...
I know I got some antifungal through IV along with the other anti-everythings they were giving me (it made me really itchy though, I think I was kind of allergic) and just some triamcinolone cream to...
Oh, no neupogen just ups the production of white blood cells in the bone marrow so all that activity in the bones causes like crazy bone pain for some people. It's just short-term while you are...
Hey thanks everybody Well my WBC improved with the Neupogen shots (although they KILLED my bones, oh the agonizing pain) but they can't put me back on 6MP so of course now I am back on PREDNISONE :'(...
Yeah, they put me back on Colazal thankfully :) I am also on solu-medrol but sadly it is not quite enough to stop the cramping from the UC. :( They haven't put me on IV nutrition yet, but I have not...
Oh, and apparently my rash was a fungal infection on my face due to my lack of an immune system. GROSS!...
Welp, I went to the health clinic on Wednesday to check out my cough/flu symptoms and when they checked my blood, they found my WBC to be down to 1.2. So I've been in the hospital on isolation since...
Thanks everybody, My doctor from home called back and told me to stop taking Colazal to see if my rash goes away, but of course now I am afraid that my UC symptoms are going to resurface. I'm going...
I've been lucky to have very understanding friends, family and boyfriend. My mom is always actively researching UC, and letting me know about what she finds. It is nice to depends on somebody to be...
I've been taking mucinex recently for a cold and have seen no changes in my UC, so I'd imagine it is safe....
Hi- I have just changed my medication: 75 mg 6MP --> 150 mg 6 MP 4 1.2g tablets Lialda --> 9 750mg tablets Balsalazide Disodium (Colazal) weaned off Prednisone and I was wondering if these changes...
I was in the hospital for about a week due to a severe flare-up of ulcerative colitis, and now I feel so run down! I can barely get up the stairs and I keep shaking and my head feels in a spin all...
I have been on 60mg per day (tapered down to 40mg the other day!) and I would generally just take it before breakfast, didn't bother to eat specifically at the same time. It tastes REALLY NASTY...
I know your pain! I am on Prednisone and I feel like I am starving all the time! I try to keep to regular meals, but it is so hard. I end up eating like 5 or 6 meals a day... I know I need to stop...
Does anybody else have this problem? I was put on 60 mg daily of Prednisone last week, and I am getting the WORST acid reflux! What do you all do? Take some over the counter medication? I have not...
Thanks everybody! Well, I got out of the hospital after 3 nights... now I am on 60mg of prednisone, tapering down over 3 months. It seems to be doing the trick, I am not having cramping or bleeding,...
Well, update: I was admitted to the ER yesterday evening and I am staying for at least tonight if not longer. They put me on IV prednisone as well as antibiotics (apparently I have a UTI as well). I...
@fruitgirl- thanks, i'll have to look it up! I have been drinking water, but I didn't want to lose electrolytes and gatorade was the only drink I could think of. Do you know of any unsweetened drinks...
Thanks for all the advice, everybody! I am considering switching back to Asacol as I have a sneaking suspicion that the Lialda is making me sick. I have a second doctor in Maryland since that is...
Been on 4 tablets a day (2 twice a day) for 6 months now. It hasn't changed my symptoms at all really. I used to take 10 tablets of Asacol (5 twice a day) and I was just glad to not have to take so...
So I am 20 years old and have been diagnosed with UC for 2 years so far. I have been going to a new doctor for the past year or so. At first everything was okay... I would have a few mild flare-ups...
I know how you feel. I was on Prednisone as well when I started college and it made me gain weight and also affected my personality. I would get paranoid and upset for no reason and would wake up in...