Just got the NovoPen Echo and dosing does not seem to be working. The pharmacy gave us BD ultrafine needles (4mm). The only documentation I can find on the NovoPen lists the compatibility as Novo...
Adding a new post to move this to the top...my original post is updated....
I did a 10-day protocol provided by a physician at UT Southwestern in Dallas. I applied the FMT sample supplied by my brother each morning. He was screened for communicable diseases, etc. before we...
Just FYI, I was not always unresponsive to prednisone. Took it for 4+ years off and on before it started failing. C-diff came two years after diagnosis of UC and immediately after a colonoscopy, so...
Diagnosed with UC in 2008 Cdiff positive in 2010 after a colonoscopy. Cdiff negative after antibiotic treatment. Continued UC positive....
Just updating my 3-year post below. I can't remember if I came on here at 3.5 years and couldn't find an old post so here's an update. I'm still UC symptom free and off all meds. Normal BMs, no...
I get friends and family forwarding me articles on FMT from time to time. Invariably they deal with treatment of C-Diff. Interestingly enough, I contracted C-Diff around 2010 following a...
Here's a link to my first post about it: http://www.healingwell.com/community/default.aspx?f=38&m=2799459 Rather simply it was: -Identify donor, have donor screened for communicable diseases (helps...
Hello all. I try to come on here every 6 months or so to give an update on my health status post FMT. After being diagnosed in 2008 and living with UC for 5 years, I did an "in-home", 10-day, FMT...
Sharon, I will post on that string as soon as I can. Thanks for doing that....
huckleberryrapscallion, The protocol I used came from the UT Southwestern Center for Digestive and Liver Diseases. I met with a doctor name Swaroop there but he is no longer with the hospital. The...
Greetings, I'm here once again to update the board and fellow sufferers on my experience with fecal microbacteriotherapy (FMT), or the fecal transplant. Once again, I completed a 10-day transplant...
Here is a link to a fairly recent article on a FMT clinical trial. Results were overall negative but there were individual cases of patients who did improve and they think the trial may not have been...
happychick, I completed one 10-day procedure. My gastro and the specialist at UT Southwestern suggested I perform a follow up 10-day procedure within a few months but with a larger sample size (more...
garylouisville, The stool samples varied in consistency over the 10-day procedure but its hard to comment on actual content. My brother was on a high-fiber diet for 2-3 weeks prior to the procedure...
Guardian7, I believe you are on to something. It has to be the bacterial content in the donor stool. Personally, I have no reason to believe this procedure is not the solution and that its just a...
happychick, It's pretty straight forward. Stool sample collector, rubber gloves, saline solution, blender, strainer and delivery device - i.e. enema bag or bottle. There are youtube videos and...
deltaforce, My 40-year-old brother was my donor. He was relatively healthy and regular but unfortunately for those of us attempting this maneuver it mostly comes down to availability. He was...
Greetings to all my UC brothers and sisters out there. I hope you all are well or as well as can be expected with UC in your life. This is my bi-annual post to the board RE my FMT procedure/results....
StealthGuardian, My donor ate a high fiber diet for 2 weeks prior to the 10-day procedure. It may have been a little more specified than that but I don't recall the specifics. We were given a...
A few weeks from now will mark the 1-year point from my first stab at a 10-day Fecal Microbacteriotherapy Transplant (FMT) procedure (self-applied using my brother's samples). Technically mid-May...
I should have qualified my statement with: "If you are on the verge of surgery" then you have nothing to lose in trying FMT...literally nothing to lose at that point....
Everyone seems to be different but I think you owe it to yourself to at least try the fecal transplant procedure. I've been posting about it like crazy the last couple days since my follow up...
@MossPiglet My brother was my donor (they recommend using a dude - something about men having more potent poo...I'm not kidding). He was given a list of lab tests to complete - blood work and stool...
@imagardener2, Yes, this was DIY procedure. Donor, blender, saline solution, strainer, fleet bottles and lots of cleaning supplies....
@LoLi, The 6 month wait period is news to me. Probably should have had more communication between doctors. Hopefully that doesn't screw things up for me. Honestly though, my last meeting with Dr...
Had a follow-up colonoscopy 7/19, a month after a 10-day Fecal Microbacteriotherapy Transplant (FMT) procedure. A little background...diagnosed 10/2008 with ulcerative colitis and have fought...
We didn't really talk about Lialda as I have never taken it. He was spouting off pharma stats like crazy though and he was a little difficult to understand in the first place so hell, maybe he did...
I don't have any real meaningful info to pass along but thought I'd share my experience with a new doctor this week. I recently visited Dr Swaroop at the UT Southwestern Comprehensive Crohns and...
I'm on full dose prednisone and in the process of getting a flare under control. Pretty sure I've developed a urinary tract infection. Its Saturday so I've got a call in to the on-call physician. I...
Thanks for the replies. I am really shocked at the change in my symptoms over the first half of the day. I can only assume its because I took the entire does in the AM but can't be sure. Hopefully...
If you're prescribed, say, 40 mg/day, do you take the entire 40mg at once or do you split it up in the day? I've been on 40 mg for the last 2.5 weeks, taking 20mg in the morning and 20mg in the...
I just picked up a 60 day supply of Asacal HD for $669 out of pocket. I always love to see the look on the pharmacists face..."uh, do you have a coupon or something?"...
What a fascinating and utterly exciting moment! I am thrilled at your early success and anxiously await your updates. And how refreshing to see an MD out there getting his hands dirty, so to speak! I...
Diagnosed UC 2008 Multiple flares C-Diff infection 2010 Currently in flare - on 40mg Pred, 3200mg Asacal, 2xprobiotic daily Been flaring for a couple of months now. Prednisone has decreased my...
I've been on 125mg Vancocin 4xday for the last 7 days. That followed 7 days on Flagyl with limited response. My overall energy level has been better but my frequency has fluctuated and the last two...
OK, I'm back. I did about 10 days on Flagyl with some relief but symptoms persisted - going ~10 times a day, blood, cramping, etc. Blood test came back negative for inflammation so they moved me to...
Diagnosed with UC back in 2008...after a little over a year of meds I had the UC in remission for the last 4-5 months. about 9 days ago the diarrhea started and I was diagnosed with a Clostridium...
OK, just talked to my GI. She is not worried about it as I have two enemas between now and then. /community/emoticons/sad.gif ...
Bring it on!...
Having a Sigmoidoscopy tomorrow. Prep instructions from my doctor say to drink 10 oz of magnesium citrate at 4PM and then one enema before bed and one in the morning. I drank the magnesium citrate 4...
Up to this point its proctosigmoiditis and it appears I've kind of stalled out on progress. My doctor recommended the enema but I just could not keep it if you know what I mean....
Hello. 30 YO male with UC. Forgive me if I mis-speak...I'm still trying to get all this figured out. Diagnosed by a colorectal surgeon back in October 2008...started on Asacol 2x3 and Canasa sup....