Well, doctor called me himself. His thoughts were that we needed to get me in to see the surgeon again so that we can pave the way for surgery. I don't fault him completely - I realize that surgery...
Yeah I hope so. I was in remission for nearly two months...still waiting on doctor's office to call back......
Yeah my mom (who has researched this like crazy, even more so after my time in the hospital this summer) mentioned I could be dependent on the steroids. This was the longest period I was on them (4.5...
After my stay in the hospital, things were finally starting to go well for me with the Remicade and Imuran. I was tapering off of the prednisone by 5 mg a week. Then doctor said the Imuran was...
I am on Florastor. I bought mine for way less at Drugstore.com vs the local pharmacy (plus the pharmacy doesn't stock it regularly anyway). It seems to be helping but it could also be that I have...
What is your total caloric intake in a single day? Eating the right things but not enough of them could be your problem. You can find plenty of sites searching for "how many calories per day" to find...
Swollen, I track it to every fine detail with an app on my iPhone. Just ask my doctor how particular I am. You need to consume 1 g of protein per lb of desired weight if your goal is to gain and are...
I personally had no problem gaining muscle and size (and being asked what I was doing to get "jacked" or "ripped") while simultaneously training for and racing both 5K and 10K's (so high miles and...
I feel it gets better with exercise - my (unsupported, non-medically researched) theory is that my body is focusing on rebuilding muscles instead of attacking my colon. Granted, when I got REALLY run...
Yeah I found that a bit odd too. The surgeon I saw this week said all nutrients and pills would be absorbed just fine. Yet they talk so much about our diets and how during a flareup of the colon we...
Yep, mornings always tend to be my worst during a flare-up. Waking up with a happy gut the past week has me thinking maybe it is indeed heading into remission woohoo! Little tip: throw in some...
Call your doctor if you are concerned. It has happened to me before but you should definitely advise your doctor and not less us diagnose it....
I agree with Doz about including cardio. If you want to gain some visible mass yet be defined (lean muscle), keeping cardio in the mix will help. My trainer said keeping it under 30 min will not...
Yeah. I was slim in high school but bulked up (in a bad way) in college thanks to poor diet. I then lost 50 lbs over past 2 years by working out and running. Lost another 20 (the bad way) in the...
CCFA: The Specific Carbohydrate Diet: Does It Work? http://www.ccfa.org/about/news/scd...
Wow I guess I need to research more and find a cheaper one!...
Adam, If you are looking to bulk up, whey is not necessarily your best option. But that is not to say it won't help. Creatine would likely be your best bet to bulk up, especially since you can get it...
Thanks for the feedback. I just did a lot of reading and ON's 100% Whey seemed to be the way to go so I am glad you speak highly of it. It lacks the garbage some other blends contain and has lactase...
This happens to me during flares (happened this morning in fact). I think it has to do with the inflamed tissue, such a small path for waste to travel, that you getting up, moving, allows things to...
Florastor seems to be helping me (who knows, maybe other meds are?) but it is pricey ($34+ shipping for 25 days via Drugstore.com and that is $15 less than local pharmacy was pre-tax)....
I JUST got doctor permission to resume running and weight training (which I am VERY excited about - I was going nuts). Of course I know to ease back into it slowly since it has been 2 months, very...
My worst flare that recently landed me in hospital for two weeks began right after scoping. Not sure if it was the procedure itself or the fact that they took biopsies, but it definitely did a number...
The first issue happened before the prednisone taper (so not correlated). This one did happen a few days after the taper, so there is a chance. As an update, I am doing better today than I was...
I was not on accutane, however I do strongly believe that the awful antibiotics I was on in high school for my acne came into play with my UC. My first flare-up (and later diagnosis with UC) came...
Just wanted to see if anyone has had this issue. I had never had HC suppositories before. Always either mesalamine suppositories or enemas. When the first week out of the hospital I had a few...
Well I am at 30 mg beginning today with the prednisone. Next Remicade is on Friday. Hopeful that this surgeon apointment will just end up being info I have for a decision I have to maybe never make...
On it now. Been a little over a month. Not sure if fatigue is from it or what but I am still down on energy but I was in the hospital for 2 weeks and doctor chalks it up to recovering from that...
Yeah it does concern me. First I want to hear what the surgeon says and get the info from the CCFA event. Then I will definitely be wanting to talk to people who have had the surgery....
I just picked up the best locally available option I could find for Omega 3 fish oil supplement at Walgreens. I'll consider ordering something "better" online at some point down the line possibly. As...
Well, GI doctor's office just called. I have appointment with surgeon in Atlanta for next Wednesday morning to discuss everything, my options, answer questions, etc. So if anyone has any good...
Could be like a couple of mine - they had me do full prep for colonoscopy even though it was intended to be a sigmoidoscopy. The doctor said that allowed him to go for the full colonoscopy should he...
Yeah, the thought of being able to live a "normal" life without medications is tempting for the surgery. But since they cannot guarantee a successful j-pouch surgery, the thought of being in my...
Thanks, quincy. I have always been on Rowasa (or similar) suppositories during flareups. Surprisingly I am not on any at this time - I think I may ask the doctor about that today as it is a good...
That is awesome! News like this makes me want to avoid surgery right now if I can - I have a feeling something new has to be coming that is successful for long term remission. Thanks for the link....
Most recent scoping used that method and yes it produced results fairly quickly, I would say within 2 hours. I believe they said it could be up to 6 hours though? I am sure they would prefer if you...
A current flareup has me spending a lot of time on the Internet researching my options. Here is a quick recap of my story, treatment history, and current situation. I was diagnosed with UC in the...