I had picolax I felt like I'd had a full dep clean by the end of it, and a phuzz said start slapping the nappy ream on nice and early, I felt like I was on fire after the 10th visit to the loo!...
Totally with you tazbum, panic about panicing, because when the urgency comes then I panic if I'm not near the loo and it makes it 100x worse. I'm not sure sometimes if the urgency isn't partly...
I'm on the pill, (I'm not on 6mp though), the docs know I'm on the pill and they have never said there was a problem. Just need to be careful if when you're flaring you're not absorbing them. Also...
They have finally decided that it's definately not Crohns, small bowel follow through was clear and had a colonoscopy last friday and the inflammation was confined to the rectum. The surgeon also...
There is a symptom that causes you to feel that you constantly need to go to the loo, it is usually associated with rectal inflammation, if you were previously diagnosed a UC did they mention rectal...
Sorry you're feeling rough, If you feel that by going back to work it will delay your recovery or make you feel worse then stay at home. See how you feel tomorrow, be honest with them. How much...
Kazygirl, I had exactly the same problem, I was sounding like a squeeky dog toy trying to hold on to it until I got to the toilet. I had to take an antispasmodic in te end to get the cramping under...
Eva Lou, I've had to abandon the benefibre too, the gas and bloating was intolerable, and the dietician recommended it! I stoppped it a week ago and the difference is unbelieveable. I have issues...
A very valid vent. Hope the results (when you finally get them) are what you hope for. Debbie. x...
Proctiitis? Are you on any other rectal meds? My understanding was that anusol was for hemmies. I have proctitis and had tons of mucus, I was initially started on a steroid enema and that cleared up...
Which doctor told you this was normal? Are you seeing a GI, as mucus and blood are signs of a flare. Where is your UC? How long have you had these symptoms?...
starting 30mg, and reduces by 5mg every 5 days. I have my GI appointment next week, so this time (started again yeaterday) it's only a bridging measure. If I respond appropriately they know it's my...
I'm with thatfield and healing up, I've been on max dose of pentasa supps for 7 months and the urgency and frequency is still ruling my life. As with thatfield only pred seems to get it under...
Feeling your pain hun, the last 2 times it has happened has been on special occasions (my anniversary and birthday), it's like it knows and it waits. Last weekend I had to pull over on the side of...
Had it yesterday!...
So my last hideous day was on my anniversary in September, I had a very unfortunate accident (unable to find a loo) whilst out and about in Paris and had to cut our holiday short and come home early....
My symptoms were just about manageable prior to the scope, but afterwards WOW! I asked the GI about it and he said that the scopes can really exacerbate your condition (would have been nice to have...
NostraHistoria: I have to say going through all of these tests and ops has given me whole different insight, I hope it has made me more empathetic it certainly has changed the way I deal wth people...
I'm a registered nurse, working in a post op recovery unit, but worked predominately in a critical care setting before this (ITU), so I get to see the lovely folks that are just coming around from...
Glad you're feeling better, I had visions of you putting athlete's foot cream on your tongue! All I could think was surely it doesn't taste very nice! What a plonk I am!! :smilewinkgrin:...
I'm sorry to say I have, you'll get far more information relating to this aspect of the disease on te Crohns forum, when the resources are reinstated have a good look through them. There is...
It usaully sets alarm bells ringing for them to look for kidney damage. (it's not considered to be a good thing)....
He did mention Remicade, but I'm in the UK and they are just in the process of looking into using it for Crohns, I'm not sure the regulatory bodies over here have come up with a recognised regime...
It's tastes yummy (especially the pear and white grape). I can only have a little bit or it does upset my tummy. Anything that has vit c in it can claim to be good for your immune system I guess??...
Just taken the last of the anti-biotics and they seems to have settled it (the inflammation and soreness has cleared up), it hasn't drained this time. Mine seems to become most inflammed and drain in...
Saw the surgeon today, he says there is nothing palpable! I've just finished a course of metronidazole and it was definately palpable on Monday! So, he has scheduled me for an MRI and said that the...
Do you mean cholesterol meds? Laura nystatin is an antifungal used for thrush (normally oral) so it's a different thing....
I don't think the cream is meant to be ingested, you'll give yourself a squiffy tummy if you're not careful!...
Oh no, you poor thing! You need nystatin mouth wash, your GP will be able to prescribe it. Isn't daktarin for athletes foot?...
I guess I'm lucky that the exit holes are obvious! It may just be a matter of them catching it at the right time, maybe you should let them schedule an examination under anaesthetic and cross your...
CRP is used as a general screen, it will not give any indication of where the inflammation is just that there is some tissue damage/inflammation somewhere in your body at some point recently. It will...
If that's directed at me FallColors, yep that is exactly what I get. Enough to soak through my pants!...
My abscess sits quite snugly around the right side of my sphincter muscle, it drains every 4-6 weeks, I have 3 fistula exit scars on that side, and at the moment it's attempting to make a 4th. so the...
Phone your doc hun, I can only reiterate what the others have said, they need to be treating you with more than just steroids. The azathioprine can take a while to get into your system properly, so...
I have another appointment with the consultant at the end of October, they should have all of the test results back by then. I had a good chat with her junior this week and he said that the way I...
I'm in the same boat, he found the first one and dealt with it. The second one seems to suffer with shyness when he's around, but it's quite happy to cause all manner of mischief when it knows he...
Thank you....
I live in the UK, as far as I'm aware azathioprine is as far as we go, meds wise. I don't want to have exhausted all of my treatment options this quickly, especially as they are still not sure what...
Had my GI appointment yesterday. I am at exactly the point I was 3 months ago. Back on anti biotics as I have another abcess making it's bid for freedom (seeing the surgeon next week) and another...
Check with the Doc before you start it, it interacts with alot of meds....
Mexican Chilli Heatwave Doritos dipped in sour cream, chip butties, Cadburys chocolate eclairs, chocolate raisins...........all things I'm not allowed and want soooo badly right now, and it's only...
The palpitations will be the Pred (but I'm assuming you're not anaemic?), and I'd check with your general doc about the Flu shot....
Hello, I think the answer to this wil be different for everybody, but I'm takng probiotics for my tum, vit C and zinc for my immune system. I've been advised by the dietician to start taking...
I've been diagnosed with severe ulcerative proctitis, I'm on pred, and asacol orally. Pentasa supps twice a day at the moment....
Sorry, I forgot. You need to keep your bowels moving, the last thing you want is to be constipated. So lots of water and fibre (if you can tolerate it) to keep things soft....
Hi, first off I'm sorry that you are having to go through all of this, at 18 these aren't the kind of things you should have to be worrying about. I had a seton fistulotomy in June, so my experience...
To be honest I'm not sure they wil find anything, especially as I will be well into the steroids by the time it's done, so I imagine any inflammation should be lessened and therefore more tricky to...
Lemon squeezy, you must not just stop your steroids without tapering properly, it's very dangerous. Please call your doc and get that script sorted....
As mentioned in previous posts I've been in a bit of a pickle with the whole urgency issue, and I finally stopped being stubborn and contacted the hospital. In the initial phonecall I was told to...
Rio, you are absolutely right, I've been horrified by some of things I've read on here relating to your insurance system. Sometimes those that live in the UK are a little too quick to criticise our...