I used to stop taking my meds once I got better. Always a mistake. I stopped a year of Imuran and 9 months later I'm in the hospital with a big flare. The longest remission I've had was 3 years. But...
Before I was diagnosed I was 18 and complained about blood in my stool. My mom said "just don't push too hard." I used to have accidents on my drive home from school and it was mortifying. I didn't...
I was on Imuran 125-150 during remission. After a year I was stupid and went off all meds and stayed in remission for another year. So now I'm back on everything plus prednisone. I guess we'll see if...
I was diagnosed in 2000. I got a scope about every 2-3 years or when I had a flare. Now my GI recommends once a year since it's over the 10 year mark. I'm overdue for one and probably have one soon...
Hi, I really love this forum because whether I'm feeling great or poor, there's always such a great support group. I lurked but haven't posted in a few years. I've been in remission since my first...
Congrats! Such great news all around!...
Good luck to your daughter! I have found that light exercise does help with the aches and pains, and a nice bath....
Yes, I was on prednisone since Feb and finally off as of last week. That would make sense. Thanks!...
Hi, I'm finally on my max dose of 125 mg of azathioprine, and I've noticed that I have soreness. It feels just like after I work out really hard or do a lot of strength training - my legs feel stiff...
Someone else once suggested on here to prop your but up with a pillow. I noticed this really helped. Gravity helped move the enema further along....
My husband and I were already considering not having any children, and this was a decision we were making regardless if I had UC or not. However, since my recent hospitalization and bad flare, and...
For those who tried imuran did you also get the enzyme panel done plus bloodwork prior to starting the drug?...
Thank you! Just downloaded the Gi monitor app! Just what I was looking for!...
I agree - since you've already put in your one month, I'd take the time to go to the hospital while you still have your health insurance (unless you don't have it...). But I bet working less hours...
I will try the benedryl thanks! I've been on 60mg of pred since 3/24. I guess we'll see what my Gi says. I'm a big fan of of the enema- I'm only going to the bathroom 3-4 times a day now, sometimes...
For the last ten years I was on asacol then Lialda the last 3 years. I do have to admit that asacol kept me in remission for a while then I stopped my meds. My Gi at the time didn't discourage me...
I've been using cort enemas for almost 2 weeks now, and my retention varies every day. Some nights I can keep it in for 6-8 hours. Other nights, only 2. On the nights I can't hold it in as long, I do...
I am also starting azathioprine very soon. I see my Gi tomorrow for my f/u since my hospitalization and going to do the blood work. She mentioned something about an assay test. Is this for after you...
I can totally understand how you must be feeling! I was just in the hospital for 10 days asking myself if I should get surgery. After a week of bowel rest and prednisone I was better to go home and...
When I am flaring I always stick with low residue food. I don't even worry about fiber because too much fiber may get you to go to the bathroom more often. What works for me is rice, potatoes, and...
Today was a good day! I went to yoga and ran some errands and never had to stop for a bathroom break. I made a great pasta dinner too! Tomorrow I plan on taking a midday nap. :)...
I've never had Ensure specifically, but during my hospital stay, they put me on a bowel rest diet - 2-3 days of NPO (but I also have IV fluids) and 1 day of heavy liquids - like vanilla shakes like...
Hi CD78, I remember what it was like to be diagnosed. I hope you're feeling better and your moving towards remission. One thing I learned about this disease is keeping your stress and nerves at bay,...
Hi, it's been a few days since my last post and I'm happy to report that I have turned the corner. I started clear liquids yesterday and been digesting it well, and will start solids tomorrow (low...
I've been meaning to respond to this post for days now- it's so interesting to read what everyone is writing! I don't see UC as a handicap and I don't believe it's limited me in any way. Rather, I...
If in doubt, just go! Take it from me! I've been in the hospital since Thursday and I contemplated it for a while. I should've come in much sooner....
Hi everyone, here's another update: Colonoscopy was at 7 am today. The doc went in 15cm and terminated the procedure due to "friable ulcerated mucosa." So back on NPO (I have had only 1 meal since...
Petty- I'm not sure why I had the ct scan. I think they were confirming for ulcerative colitis and possibly any obstruction. My GI recommended it prior to even hospital admittance since my...
Thanks for the tips! I'll be drinking this at 4pm today. But looking forward to food tomorrow after 2 days of clear liquids! I hope I can get some popsicles to have with me....
I usually do the miralax ducolax prep with lots of Gatorade. Now that I'm in the the hospital, I'm on clear liquid diet. It's saturday and I started the clears for lunch. Cscope isn't until Monday!...
So in here, day three, and 3 steroid injections and 3 units of blood later, my symptoms are the same. My hemoglobin level is back up and I don't need blood anymore, but I am still bleeding with each...
Had another unit of blood today. They are going to test my levels tonight twice and see if I can maintain it. Less urgency, but I still have blood. Started low residue diet today at 2! I was so...
Thanks myuc! When pain was bad I thought surgery would be best and just get it done since I'm young. But I've decided to try imuran first and see how that does. If it doesn't work then I'll seriously...
I was finally admitted last night at 5pm. My cat scan just confirmed I had UC. My hemoglobin was 5.7 so had two units of blood over night. Feeling the same today, but last night wasn't too bad. No...
Thank you for your replies! I spoke to my doctor and she wants me admitted tomorrow immediately after my ct scan. So one night tonight at home to pack and eat a proper meal and spend time with my...
In the 11 years I've had UC, I've never been admitted. Three years ago, one GI asked if I wanted to be admitted, and I said no, and instead took some antispasmodic pills along with everything else,...
Thanks!...
My butt is so sore from going to the bathroom a lot and the wiping. Can anyone recommend a cream or wet wipes to relieve this? My poor bum is so sore!...
I am currently flaring. My UC was under control most of the time - a flare maybe once every two yearsa, and the flares would be minor. The last three years have been horrible. Less than 6 months of...
I'm thankful for this post! Thank you everyone. I finally switched GIs and my new doc is going to start Imuran with me after my colonscopy (3/24). Currently on prednisone (40mg) and it's been slow...
I take 4 Lialda pills 1x a day - and yes, they do smell. IT's also hard to swallow since they're big. But no other side affects worth mentioning except I think it has made my gas smell really bad!...
I have to agree... mexican food! Or just being able to eat anything and not have to worry about being in pain later....
Just to follow-up : I've never had children either, and the IUD placement wasn't very painful. Even if it is painful at first, I think it's totally worth it for 5 years of BC you never need to think...
I got my IUD in about 6 months ago and I love it. I think the pain, bleeding, and cramping varies from person to person. I had virtually no bleeding, mild cramping, and the pain was only during...
I have a 1 year old American Bulldog that weighs about 120 lbs. He's very sweet and cuddly and loves to follow me into the bathroom. Sometimes he likes to cuddle too much and insists on sitting on...
Hi everyone, I'm new, but I've been lurking for almost a year. Just wanted to share that I also get back acid reflux when I am flaring. This time, it was so bad, I had lots of pain in my shoulder...