The foods I am eating are basically the same as before except I am trying to eat healthier. Cut way down on the chocolate. Eating things like egg on toast, oatmeal, chicken, yogurt, smoothies shakes...
Wondering if anyone out there has had a problem with increased acidic Bms while trying to cut down food to diet? I need to lose a lot of weight because I now have arthritis in my feet. The minute I...
I just started Humera because I have tried just about everything else. Was wondering if anyone else has used it and gotten good results. Wondering how long it takes?...
Do you have to be on Remicade the rest of your life once you start it?...
I was told that Remicade was the treatment of choice for Chrons and that it worked better for those type patients....
Well, today, they got the biopsies back and stated that my disease though lower end is very active and I need to start Humira to try to get it under control for the next step. He felt that if an...
I also tried it and finally gave up after spending a lot of money with no real effects....
Have been on 5ASA meds for years and have used Rowasa for since end of May nightly and then also tried the Colocort enemas for weeks. None of it has been working this time around....
Was wondering if anyone is using prednisone in the rectal foam instead of enemas and how it worked for them? Also what would be the brand name? I was checking it out here in the USA and could not...
Went for my colonoscopy and my inflammed area has not increased in 6 years but it really inflammed. It is 14inches....the real lower part. However, the weeks and weeks of rectal enemas have not...
Best of luck with the interview....
Yes, let us know after you talk with your Doc because I too have only heard this done with cases of cancer. With UC they feel the part of the colon left would start being attacked so I definitely...
Wondering about your thoughts about having the bad portion cut out and the rest of the colon stretched down. Did you find that it is a treatment option? I am interested because I was always told that...
I am also right there with you. A few weeks ago we were suppose to go to a wedding and my husband had to go to the reception alone because I could not trust myself. I do not go as much as you but I...
Yes, the mesalamines do cause hair loss......it lists it as a side effect. I have not been on Pred and just the mesalamines and lost quite a bit of hair making my hair much thinner....
Yes. drinking plenty of water, no infection, and taking probiotics. That is why I felt it was due to inflammation. Also it extends into my vaginal area at times....
I agree that alternative treatments can be used along with main stream meds. First, though you need to get something going main stream and get this under control. Alternative treatments take a while...
Imuran and 6MP knock your white blood cells down so that hopefully your immune system backs off your colon. Steroids decrease the inflammation. They are two different drugs all together. Would be...
This is the craziest flare ever. I am having symptoms that I have never had before. I feel like there is a lot of pressure probably from the inflammation pushing on my bladder. So I feel like I...
Interesting that your Gi says oral meds will not help because your UC is at the low end. I have that also and my GI says you have to hit it from both ends so I take oral and rectal meds. Also urgency...
Looking at some of my fish oil supplements and found that they have soy and other things included that is not considered legal on the SCD diet. Since, I have decided to give this diet a good try I...
I was reading that years ago Azulfidine was used as drug of choice for UC and it is related to the new 5ASA drugs but a little different. Wondered if anyone out there has tried it and how it worked...
Wipe off the door knobs frequently with sanitized wipes and phone, etc, My girlfriend did it last winter and kept herself well in a house full of sickness....
You definitely are flaring if there is any bleeding. My GI says that bleeding is the last to go. I myself feel that rectal enemas would be better than suppositories since it can get farther up the...
I think I would rather just go by the list of pro inflammatory foods to avoid. I found a good one just by googling it. Supposedly those list of foods cause your body to be more inflamed....
Susiebuddy So sorry to hear you are not making good progress with your UC......I know what you mean because I also am in that same place but not as far a long as you. It is so frustrating and...
He should be in contact with his doctor so it can be checked out. This could be something as simple as hemorrhoids but no one knows and bleeding is nothing to fool around with....
Definitely call your GI doc and catch this right at the beginning. Sounds like you could use some rectal meds.......enemas . He might also up your colozal. I have never used suppositories. My GI put...
Recently when looking up legal probiotics for the SCD diet I came across that VSL#3 was illegal for that diet. Wondering why since it is a multi strain probiotic I read more and it was suggested that...
Have tried Rowasa enemas for 14 weeks and colazaol 8 - 10 daily with no real effect. Then switched to Colocort enemas to see if that would help and I am not getting really any where with that. The...
I was told by my GI doc that chocolate is very irritating to an already irritated gi tract. Also I have seen on this board that other people have taken chocolate and started bleeding afterwards....
Welcome aboard Sorry to hear that you have UC but glad to see your doctor; keep the faith it will get you through a lot. As far as a cause no one knows, it is an immune system problem. However,...
The boxed Almond milks are not legal. There is starch and a lot of time cane sugar. That is why when you read the SCD book she says do not used any boxed items, even fruit juice because you never...
Thanks for all the replies. I was on Asacol for a long time when I first started 6 years ago and then it did not do much so switched to Colazol which helped till now. Spoke with doc about that and...
Was thinking about getting them on line. However, just wondered if they might work better since I am not getting much lately from 14 weeks of Rowasa...
Anyone find that Salofalk enemas work better than the plain Rowasa enemas?...
Best wishes for a speedy and healthy recovery!...
I have lower end colitis and just cannot seem to get it under control. Urgency with a lot of bleeding and passing small amounts of formed stool. Went to GI doc and he upped my Colazol to 12 pills a...
I see that some people have used cort enemas twice a day. Has anyone ever used Rowasa enemas twice a day or is that a no...no?...
Thinking of starting L-Glutamine since I have read a lot about the intestinal healing abilities from it. One place I read some people take high does because of their intestines. Any suggestions? And...
The VSL#3 people have done studies on UC with their probiotics and made suggested amounts for when you are in a flare, which I am in now unfortunately. You really should take the recommended dose...
When you use your Nebuliser do you rinse your mouth thoroughly out with water , swishing it all around after the treatment?...
Hi, Just wanted to say........Welcome...
I think you are right on track seeing a nutritionist or dietician at a hospital. That way they can help you knowing you have UC and some things do not agree with us at times. I would suggest meal...
I see Dr A uses L-Glutamine and it is suppose to heal intestines. Wonder what dosage and if any research has shown this to be true? Thanks....
Thanks for the replies.....makes me feel a little better. I was on Asacol before the Colazal and did not feel that it covered me well enough because I would pass pills in my stool. Even though the...
L-Glutamine helps heal intestines? Can you take it by itself and how much?...
Went into a flare the end of May and have been using rectal meds nightly. Also take 8 Colazol daily now. Started out with left sided discomfort which finally has mostly gone away but still bleeding....
So sorry to hear that it is back!!! Here is a BIG HUG! That seems to be the terrible problem that you can not pinpoint what starts the flare a lot of the time and it is such a roller coaster disease....
Interesting when I crossed over to the allergy board to ask a question I found that people with allergies that answered also had UC. Since it is an immune system disease I was thinking probably a lot...