You sound so miserable, be assured we are all sympathising with you because most of us have been there at some time or other. If you get a chance to be admitted take that chance, they will be able to...
Veebo, i wish i had seen your question earlier. I have had this exact test done quite a few times and it was called a barium swallow and follow through. It was just as you described, the only...
Hi dinkydee, Yes i count myself as lucky but not that lucky, reason can control is because i have sub acute obstruction and most days nothing gets through to my j pouch until my abdo is about...
Wow, you have got a lot on your plate. Having a baby and a premmie at that is enough but to be feeling so unwell and being away from home must be really difficult. You must be made of strong stuff to...
Try lying on left side or on back with knees up. Also a warm bath might help you feel a bit better. Obviously you need to get rid of that gas. I think you have already tried lots of other things,...
Yup, a common problem. I would never dream of passing gas anywhere other than the bathroom, it would smell terrible and yes it might cause soiling. Of course i can't control it in the middle of the...
I haven't had barium enema for a few years but from what i can remember they kind of talk you through it as they do the test but send the official results to your doctor. They don't usually put you...
I am having a scope on 13th so have to stop eating from midnight on the 12th. When i have a scope they usually give me a laxative drink x2 and it generally does the job. This time they gave me a...
I have been diagnosed with CD after 28yrs and many major ops later, previously diagnosed with UC. Just about to go for a scope on 13th to see the state of play. had a flare over the last fortnight...
yes, i suffer from sacroilitis and it is just constant pain. Once it was so painful and lasted about 14 weeks. In the end after trying different meds i just took some prednisolone i had in the...
Going a bit off track, but talking about drugs that worked to stop a flare. When i was really ill, (hospitalised about 3 times a year for 1 month each time) I was initially tried on Oral and then IV...
yeah, a job is a job and at least no problem reaching a toilet....
By the way, tooth paste is a good one for cleaning white toilet seats!...
RoseAnnette, i really feel for you. It is terrible when you know that something is wrong yet unless whatever is wrong is so obvious some Drs seem to think it clever to say there is no problem, they...
yes, funny moments keep you going don't they. I am a nurse and one night i was working on a female orthopaedic ward when i became absolutely desperate to go to the loo. I was the only person on a...
hi, I took the medication for years, and yes my urine turned orange. The other main thing i remembered was the terrible nausea which went on for so long. Eventually the Drs. gave me enteric coated...
yes, back pain is a constant feature and is particularly bad during a flare, along with all the other joints. I have osteoarthritis in my back and spine. I used to be a nurse so a bad back was always...
know how you feel, my stomach is always making noises, so bad one time that folk thought it was the radiator. When i sit on a wooden or plastic chair i need to sit on my hands, particularly awful in...
what is the SCD diet you are all talking about?...
yes, i would say just to ring your usual number, surely someone must be covering for the doctor while he and the nurse are on holiday. Otherwise i would just ring the Emergency Room. Bleeding does...
hi to Andy, Welcome aboard, hope we can all share our experiences and help each other out. I have a question that folk may be able to comment on. Apart from when you are having a flare, does anyone...
hi chatter here again. Thought it could be adhesions if you have had previous surgery or extensive inflammation. Sometimes when i over do it going upstairs or something physical my adhesions seem to...
That pain sounds pretty sore and totally unexpected, maybe you stretched something? Sometimes i am sore if i press just in my right iliac fossa, i think that is where my anastamosis is. ( i had...
Glad your okay ArtistGuy. Never been anywhere near an earthquake, except my own of course!...
yes it does sound familiar, i had sub-acute obstruction for quite some time. Everyday my abdomen would bloat but nothing was getting into my pouch. By the time i got home i could barely move because...
yes, i have considerable pain in nearly all my joints. some joints are worse when i am having a flare, i also have osteoarthritis in my neck and lower back and arthritis in my right jaw....
hi to kry135 Yes, i had a total colectomy and j pouch operation 15yrs ago and have had major surgery since. For the last 28yrs i was under the impression that i had ulcerative colitis. I had UC for...
Thanks JaSanne, There is so much i don't know about CD but by listening to everyone on the forum, suddenly all the problems i have had start to make sense. I was diagnosed with UC for the last 28yrs...
Thanks to you all for a really warm welcome. Do you know, you all sound so cheerful despite all the obvious problems. Just laughing at the comment from artist guy, about making too much noise in the...
thanks elizabeth, i wish i had known about this web site a long time ago. The long road wouldn't have seemed so lonely. I am currently awaiting a scope on the 13th of April to give me a definitive...
sorry, that last comment was meant for Sissy2...
hi, sounds like a lot of people are in a lot of pain with their IBD and often the doctors don't appear to understand. I too, like JaSanna have been in pain of varying degrees for the last 28yrs. I...
hi, I am just logging into the crohns forum, i did post a couple of comments last week and got some useful comments. Just thought i would introduce myself properly because that is what the moderator...
Hi to mom-who-hurts It can be quite an anxious time cant it. I am due to have a scope on 13/4/10. I have been having some trouble despite being diagnosed with UC 28yrs ago and having a total...
thanks to tsitodawg and HabsHockeyfan for your comments. in a strange way, being diagnosed with CD may in the end be a bit of a veiled gift. I know that sounds strange but i have had something more...
Hi everyone, This is my first time on the CD site. I was diagnose with UC 28yrs ago and after 12 terrible years i had a total colectomy and ileo-anal pouch. As with UC this should have then cured my...
hi all, Listening to the stories about farting and more to the point sharting made me laugh hysterically, especially as just this morning my husband was explaining just how bad it is during the...
hi In answer to your question, should i go ahead with a colonoscopy when i am having a flare? I think the best person to answer this question would be your consultant. I think that perhaps they would...
hi just thought i would join the discussion. i started with ulcerative colitis approximately 27yrs ago at age 27yrs old. I had lots of hospital admissions, about 4 times a year and usually for 1...
hi princess, glad you got lots of replies, gives you lots of different opinions. As i said, i struggled on for 12 years before i eventually gave in and was more or less forced into surgery, the...
hi princess, thought i would reply to your query. Don't know if your case is the same as mine but, well i started with ulcerative colitis when i was aged 27 yrs old. I am now 54 yrs old, very old by...
when i have a flare up then i am up 3-4 times during the night. when it used to be really bad i might be up twice as often. I remember being in hospital once and i heard another patient telling the...
I agree, UC can present as periods of loose or constipated stool. However, i was never constipated but i'm sure it would be really uncomfortable. Cant win can we!...
hi Sandy62, i have just noticed that although you have had UC since 1983, you have only recently joined the forum. My point is that i also have had UC for many years, since 1981 and i have also...
christine is right, The incidence of bowel cancer is increased in people who have had UC for more than ten years so it is a good idea to have a repeat colonoscopy. It sounds like you guys maybe have...
to hellokitty, try not to feel so down, i started with UC at age 27yrs, 5 month after i had my first child and moved from england to scotland. I am now 54yrs old and have had to learn to live with...
hi everybody, i have joined the site. mine is quite a long story, 27 years to be exact, so wont bother you all with that now. just laughing about the story of the trooper. I am in Scotland, so i...