I've had two children since being diagnosed and it was a hard decision. I researched, I agonized, I researched some more. Yes my kids have a higher probability of getting the disease compared to the...
I would definitely hold off on trying to conceive until you're stable. It will probably make you flare even worse and then you'll have no choice but to take some of the stronger medication to get it...
I've been on it for about 8 months now. I had to increase the frequency to every week as I was still having issues with the bi-weekly frequency. My GI says that of his 80 patients who are on Humira,...
I don't know if this'll help but I was on 40mgs of Prednisone starting at 5 weeks until well into my third trimester, plus Remicade starting at 5 weeks - and I gave a very healthy little boy. I know...
I was high risk with my first pregnancy because it triggered a huge hospital-staying-medical leave flare. But they told me at the end of that pregnancy that if I got pregnant again, I didn't need to...
I was on Remicade for two years - it brought me out of a really bad flare caused by pregnancy. I would still be on it, but I stopped taking it during my last trimester, then subsequently started...
I can only offer you my experience which was that I flared very badly in the beginning of my pregnancy. I waited too long to get help and ended up having to take Remicade and prednisone for most of...
I had many conversations with my GI prior to conceiving and he told me that the data shows that Humira does not increase your chances of miscarriage or there being something wrong with your baby any...
Thank you for sharing and for the continued updates. I have a little boy so your story has really impacted me. I hope Chris continues to heal and can go home this weekend....
I almost hate to go against everyone else, but if it were me, I'd wait another month. I was having symptoms when we conceived and my flare spiralled out of control very quickly - I ended up in the...
I just had a consult this morning with a surgeon and asked him if I had to be off any medication prior to surgery and he said no! Man, this is so confusing. :)...
My colon behaves the best the week after seeing my GI. I don't understand it, but it happens every time. It's like it knows that he's the guy who will take it out!...
I had a very scary pregnancy - the pregnancy sent me into a huge flare, ended up in hospital for 5 weeks and eventually Remicade took me out of the flare. I was very very very sick from week 1 to...
Hi folks, If anyone is on Imuran and Humira simultaneously, please post your experience. I'm hesitant to be on two immunosuppressants at once so I'd appreciate knowing other's experiences. Thank you,...
I was pregnant now, although I was in July 2007. At that time my pregnant threw me into a large relapse. What I was told at the time was that 1/3 of people get better during pregnancy, 1/3 stay the...
My experience with Remicade was a positive one - it took me out of a flare in which I was 1 day away from losing my colon and maybe my child (8 weeks pregnant at the time). It has since stopped...
Hi everyone, Anyone experience this? I've had insomnia for about 4 weeks now, which is 6 weeks after starting Humira every 2 weeks. At first I chalked it up to the usual holiday stress but now I've...
Congrats on the pregnancy! I started Remi 8 weeks into my pregnancy because I was so sick from being pregnant. Healthy baby boy was born 7 months later! No issues at all. I can understand being...
Hi everyone, My doctor is gone for the next four weeks so I don't know who I can ask this of. I am also starting on Humira this week. For those of you on Humira, what advice have you gotten from your...
Amygrace, my doctor actually specializes in pregnant women and IBD. He may be willing to talk to your doctor. I know he's called a few colleagues around Canada and Germany (!) trying to decide on a...
This is one of my biggest fears - that my son may have to endure what I've had to. Will it stop us from having another? Probably not. Will I be on high alert for the rest of my life for UC symptoms...
You're welcome Amygrace, a Canadian Chick living in Australia. :) I'm happy to answer any questions you may have, as best that I can. As Fruitgirl mentioned, cleft palate is the biggest concern about...
I had 5 weeks of IV steroids, followed by tapering oral steroids, combined with Remicade, starting at 8 weeks pregnant. I had a healthy, happy baby boy in spite of this mega-dosage of medication. I...
My pregnancy sent me into such a huge flare that I was hospitalized for five weeks. My suggestion would be to get admitted to the hospital. This way your health will be monitored on a daily basis and...
Congrats on your little girl! I hope your family is settling in well. I didn't flare until 3 months postpartum, when I stopped bfing in order to take Remicade again. Those three months were awesome -...
I have been thinking of your daughter. I have a 1.5 year old son and I don't know how I'd handle it if he was diagnosed with UC ever in his life, nevermind at the age of three (I have severe UC). I...
Hi there, I was having mild mild symptoms when we conceived our son and it threw me into a flare that landed me in the hospital for five weeks. I don't say this to scare you but to inform you. I wish...
Hi there, Everyone reacts differently to prednisone, but what you are experiencing does sound somewhat like the norm. I didn't get the heartburn you've mentioned, but I did bruise easily and feel...
Sigh... I was all ready to move forward with the surgery... and now reading this thread makes me want to put it off again. Sigh......
Thanks Collicat... I appreciate the info. I wonder if I'll be able to do the surgery through Mt. Sinai, because it's all part of the same Hospital Network. Good luck to your son, I will be thinking...
Thank you Cheryl - I appreciate the info. I will google him for sure!...
I'm sorry, I don't mean to get a bit off topic, but Collicat, can you tell me what surgeon you will be seeing? I am from the GTA and I'm just starting this whole process of finding a surgeon. My GI...
OK, so there is a scientific way of knowing - so if my dr does a blood test at 4 weeks and shows that there's enough Remi in my system to fight the flare, yet I'm not, then we know the Remi isn't...
Yes, after this last dose, I started having symptoms even the day afterwards. I was able to stop the symptoms but now they've come back worse this week, and it's week 4 of my 6-week cycle. I don't...
Hi there, For those of you who were on Remicade and it stopped working for you - how did you know? Was it a return of symptoms or was there a more conclusive (i.e. a bloodtest) way of knowing that it...
From what I understand, NiRo is correct - Remicade is built with mice proteins and Humira with human proteins. I was reacting harshly to Remicade and if I hadn't gotten it under control with...
I would wait unti you're either symptom-free or your GI gives you the go-ahead. I wish I had waited... I just had some blood when we conceived and it spinned me into such a large flare that I ended...
Thanks everyone for your replies. I didn't think it was a big deal, but then I googled it and got all sorts of warnings. I've only got one scheduled - that seems weird now that I've read your...
Hi everyone, My doctor has prescribed an iron infusion for me, in a few weeks. Has anyone had this before and can tell me what to expect? Thank you!...
I started reacting to Remicade after having it for almost a year. As soon as it hit my bloodstream, I would get chest pains and I couldn't breathe. The first time I was able to breathe through it but...
I'm only on Remicade. My GI has never mentioned taking it in conjunction with other medicines....
I usually end up eating the few fruits and veggies that don't bug me for days or weeks until I get teh flare under control. I also eat much less than normal (and am hungry for most of the day) as I...
For me, I started having symptoms in week 7, so my GI said I had two options - increase my dosage for my regular 8 week intervals, or increase the frequency of the infusions to every 6 weeks. He's...
I don't want to start a debate on Remicade, I'm just curious to know from those of you who refuse to take it, why not? There is so much information out there on the Internet, I'm just trying to...
I flared up when I stopped breast feeding 3 months post-partum. I started on Remicade in T2 due to a flare caused by pregnancy. At that time, my doctors stopped the Remicade once I got within 6 weeks...
Mine also took 3 infusions before I noticed any significant difference. Hang in there. I know it's hard, I relapsed badly after having my son last April too....
My tongue gets all sand papery too... I thought it happened after the flare, when I would be mal-nourished... Now I'm wondering if it's a sign of a flare......
Just wondering what warning signs you are aware of that make you think "uh, oh, a flare is coming, I should adjust my diet, etc."? I've had three flares in the past three years and looking back, I'm...
I third the recommendation to get your flare under control. I went into a major flare up triggered by my first pregnancy and was in the hospital for five weeks. We were so close to loosing the baby...
I saw an improvement a few days after the 3rd dose. I was really impatient for it to help as I was so sick, but unfortunately had to wait almost 7 weeks for it to kick in....