Yes, he tried for a long time with no visible changes. He also tried Align for a long time and did not seem to make much of a difference either. Thanks so much for the concern!...
My son (age 22 at the time of the surgery), is doing well but has chronic pouchitis, for which he has to take antibiotics, possibly for life. Since he'll have to take antibiotics anyways, I wish we...
Hi, everybody: My son had a colectomy two years ago and is doing well. Since then, though I have met at least two people who had taken STRONG courses of antibiotics (Cipro is one of them), and that...
Hi everybody, My son had his first surgery about four weeks ago and is back home. Every time he tries to taper off the steroids, intestine activity stops, he gets terrible gas pain and output in the...
Some people in this forum had luck with an antifungal diet, and anti inflammatory foods, (one of them was Kim123 in case you want to look for her threads). It didn't help in my case, but I am...
just bumping it again....
Great! and thanks! :)...
Great John!! ;) Thanks for the reply! I think it's important to know. I am not looking......
Thanks, John. Let me know how you are doing in a week, :) Hope everything goes well with everything else too!...
Thanks for the feedback, Collicat. I was also told the same thing about the Viagra and I was wondering if anybody here had any problems and how they were dealing....
I am considering surgery and Jpouch due to years of UC that only responds to prednisone. The surgeon mentioned that 1 to 3% of people would experience sexual side effects such as impotence or...
To me, it was always like "fever", any number of things can cause it, but I like the "dermatitis" idea better....
I am sorry you were diagnosed with UC. My son was also diagnosed at age 21. Through this forum and research I have met with several people who were able to control their symptoms with a diet called...
Thanks, Megansmom. I will give my son the email address....
Thanks Judy! :)...
Megansmom, Thanks for your post. It is great to hear from somebody who has been to the same surgeon. How was your daughter's life with the temporary ostomy? How is she doing now? What food...
Thanks, Collicat. Your description of what your son had to go through before he decided for surgery sounds EXACTLY the same as what we are dealing with here, same medicines, same failures. My son...
Collicat, I saw your post about your son going through surgery. My son, age 21, is considering it in the very near future. I would like to know what your son's experiences were, if there is any...
I have asked the same question in the ostomies forum and post it here too since some people here also had the surgery. My son may have to have it soon. Thanks....
What would a typical day menu for you? Can you do it while flaring badly?...
I am considering Jpouch surgery at UCSF in the near future and would like to know if anybody had it there, (with Dr. Varma), and what your experiences there. Thanks,...
Thanks, amygrace. What is the size of the enema? (I mean, how many "cups") altogether? Are you able to hold it even if you are in a flare?...
You can get VSL#3 DS (double strength), with a prescription. It is covered by insurance. I understand the insurance doesn't cover the one that is not double strength. We get it at CVS pharmacy....
amygrace, thanks for your post. I called Borody's center in Australia, sent them an email, and all my information over a week ago, but so far have not heard from them. I understand they send you a...
Thanks for the story. Please, tell us how B12 was related to your symptoms and how the discovery helped in the healing. I am glad you are doing fine!...
Thanks a lot for the suggestions. Yes, I am scared of antidepressants too......
Can anybody advise on how to manage the psychological side effects of prednisone? I understand that some people take antidepressants. Any information on that? Thanks!...
natty 34, please, please, keep posting. I am extremely interested. Even if it does not work. I am sooo happy for you!...
80sChick, try the Specific Carbohydrate Diet, (google it up). It didn't help me, but I personally know several people who claim to be "cured", (most had Crohn's, so maybe there is a relationship...
Oops, sorry, I guess it should be fecal transplant. English is not my mother tongue......
I just came back from the CCFA Education Symposium in S.Fco, and doctors are now saying that IBD should be treated from high up, meaning starting with biologics (Remicade, Humira, Cimzia) and...
Rio, I presented the information and the site already and he read about it. He even sent an email to Borody, the doctor in Australia who did the experiment in 2004, but he hasn't heard from him yet....
Not to alarm you, but I am in contact with a mom of a 23 year old that was diagnosed with Avascular Necrosis (bone death), after taking only four months of prednisone. Apparently you can halt the...
Thank you guys for the details on how to do it. I don't know how I will convince my son, but I have to try it. The inflammation is very high right now, so I think I will wait, (he tried the Vitamin E...
Pop corn has always been VERY bad for my son who has colitis. I suggest the apple chips at Whole Foods which are dried apple pieces without anything added. They taste really good. Almonds and berries...
Please, check to see if it is not an obstruction. A friend of mine has a daughter diagnosed with UC who kept complaining about pains after a Jpouch. They told her it was all in her head, that she was...
Thanks, Subdued. My son is not taking anything with HFCS as he has been following (kind of), the SCD diet. I say kind of because I know he has been eating some rice and potatoes as it is very very...
Thanks, Kim. I sent you an email. Did you take any rice or rice crackers while on it? What about fruits? (My son is a college student and a diet of meat, fish, fruits and vegetables although sounds...
How is your son doing? We are considering surgery for my son if the 6MP does not work. Any information would be greatly appreciated. Thanks! Hope he is feeling good....
Oops! Yes, somebody with a similar name mentioned that her son was having surgery. Sorry. I will recheck! :)...
My son is considering surgery if the 6MP fails to work so I have started trying to get as much information as possible about the procedure. How is your son doing? May I ask where he had it? I will be...
I read you follow an antifungal diet. Did it worK? Were you taking medicines such as Dyflucan (an antifungal), at the same time? I would appreciate it if you could give me some details. Thanks a lot!...
Lots of luck! And PLEASE, post about your experiences. My son will have to consider surgery if what he is trying now fails, so I am very interested in hearing about it. I wish you the very best!...
Thanks Sam. My son is also a college student and is away from home, so that makes it very very hard. He had the IV procedure you described last year and it worked fine, but he got a clot from the...
Thank you songlady. I don't know if I should start it now or wait. He is out of the hospital on 60 mg of prednisone and just started trying the 6MP, (the only one he hasn't tried yet). If the 6Mp...
I plan to suggest using bee propolis to my son who is in a bad flare. He was somewhat allergic to bee stings in the past, but he swears that the last times he was fine. For those taking it, is there...
HI, I just saw your post about bowel rest. Did you have to be hospitalized for that? Did you just do it at home taking only fluids? How long did you do it for? Thanks!...
Spooglesmom, I personally know people that had lots of success with the Specific Carbohydrate Diet and are off meds. I know they mention autistic children in the book and some feel it might address...
LookingfortheCure, Unfortunately we are aware of the nasty side effects. He has tried Lialda, Humira, Remicade, rectal Entocort, Asacol and other rectal medicines in the meantime while trying to...
Thanks a lot keylime. I have been reading the posts at the site and already got some new information I was not aware of. People have been extremely helpful in all these forums....