Sorry if this gets ranty or offtopic or isnt very coherrent, I feel like my mental faculties are deteriorating here so...well, you guys understand. So. I started flaring around the 1st of this month...
Just wanted your advice on this, trying to make the best of a bad situation. I'm flaring again, but I have no insurance, no doctor, and I can't afford another trip to the Urgent Care. I know what...
Hey there All I can say is that when I was able to get remicade, it was heaven to me. I had no side effects and it worked absolutely perfectly, it made me feel normal for the first time in a long...
Depending on your yearly income, you should inquire about some form of patients assistance. I know that, as someone who is uninsured, if I hadn't have qualified for help, I would be in very, VERY...
It wasn't all at once, it sort of snuck up on me, but it was after the second infusion, maybe a week after. Which is relatively quickly. I started to feel better before that, probably a week after...
I am so happy. I started this latest flare all the way back in late June and, even though I have been on a high dose of prednisone for months now, which was effective at controlling the bleeding, it...
I have that happen usually one time after I start to flare. I will get really weak and dizzy, start sweating like I just ran a marathon, feel absolutely wiped out, and usually really nauseous. After...
Tumeric sounds like a cheap and easy to try remedy, I think I may give it a whirl. Worse comes to worst and...well, basically nothing! How would you recommend eating the tumeric?...
Also, another question if I may? Right now "healing" from the bloody flare up has me a bit confused. I know that not taxing the gut has been effective on letting things heal up, but I also know...
Basically, when I get some really bad flaring with blood, I tend to empty out my digestive tract and leave it with not much work so it can heal. Well, the disease does a pretty good job of emptying...
One thing that is really throwing me for a loop, is that I would be expecting...I don't know...some abdomen pain? Bloating? Soreness? SOMETHING feeling wrong. That is what I think is most disturbing...
OK, now I am terrified. I will contact the doctor tomorrow. On the plus side, so far at least I have no abdominal pain, no real bloating, no fever or tachycardia or any other symptoms of septic...
Well, thursday I came home and after a BM it became clear that I was starting to flare again. I had gotten some of the symptoms in the week past (Bad gas, diarrhea), but those had both gone away and...
ANYWAY, update after my last doctor's appointment: My hemoglobin is up to 10 and a half from 6 and a half from the last time I visited. That is very good news. I am also getting stronger gradually as...
Thank you everyone that responded :smilewinkgrin: Yeah, I am waiting for it to pan out more before I start to panic. Right now it really hasn't affected me too much, just have to go a bit more often....
Basic background info: I am 20, started feeling bad around the beginning of july this year, took about a month to get properly diagnosed and by that time I was in baaaaad shape. When I got the...