I actually went gluten free for 6 months before all of this. Completely gluten free...Some dr thought I was allergic to wheat and I took it even further than that. Turns out it was chron's disease. 3...
I had been saying my throid was off for a year...First Dr said I was just fat...In the meantime I was admitted to ICU for massive PE and on the cat scan they saw a 2.1 cm noduel. So now the endo...
I had a lot of joint pain, and evenually went to a rumatologist. He diagnosed it as crohn's related arthritis and put me on humira, it took care of the joint pain and as a bonus I was able to go off...
I haven't been here much because I haven't really had any problems since I went on Humira. My bowels are great...That being said...I just got out of the hospital for a massive PE and infarction....
I know this thread is a little old, but I felt it important to add that Arnica is a blood thinner of sorts, so you need to keep that in mind when using it even topically. My Plastic surgeon...
I can't tell you if you should or shouldn't go off it...I can tell you what happened to me when I got the "bright Idea" to go off it. I have Crohn's Colitis...I have only ever had colon symptoms and...
It is right above my belly button. I am having some lower pain but that is not unusual for me. I can count on one hand the times I have had any problems with my upper GI tract. The dose before last...
I have always felt lucky because my chron's didn't really affect me too much. At the last scope it was mostly cleared up and I have never really had any problems other than loose stool because it was...
Um wow this just sucks....because when I went on the humira for arthitis, it cleared up my colon and My Skin....I was so glad I could get off the Asacol so my hair would stop falling out. I really...
That's what mine feels like. When I am not on humira anyways...It takes about 3 shots to get the humira in my system. It is also very independant of the crohns...I can actually keep my crohn's under...
I have been diagnosed with chrons related arthritis. Mostly in my hips and lower back. I am 42 and when I get up in the morning I walk like a really old lady. The RA put me on Humira and it has been...
I am off Humira untill the infection and wound heals from where they removed the infection. Then they may have to go back in and remove the actual cyst so it doesn't blow up again. The whole thing...
I have had the week from hell. I was doing great...then I had what turned out to be an inclusion cyst get inflamed and infected. I ended up in hospital, on many different antibiotics and blood...
I suddenly got a 2 in size infection on my waist. GP says its a sebascious (sp?) cyst that is infected. Not on the surface just under the skin, with no head or obvouis pus. She is treating it with...
Pam he said that the other Dr felt probably felt it was colitis because he had seen the whole colon and the current Dr was basing his on just a few pictures. He said we would not get a definative...
yes it went through my whole colon, it was like a sore here and then a sore a few centimeters up on the other side through most of my colon.....
I went to the new GI, the one with 20 years experience, and he looked at my photo's from the colonoscopy and said you have chron's disease? WHF? I asked why the other DR said colitis and he said...
As a follow up, I ended upi taking a muscle relaxer and a tylenol 3 that night because of my hips hurting as well. All pain was gone by next morning and hasn't come back. Well the hip pain has but...
I have perfectly formed non urgent 1 time a day at my leisure poos..... What's changed, you asked? I quit smoking in favor of a nicotine patch. I know I need to stay on this patch for 12 weeks,...
oh and thank you for your help.....
I have had tons of edema but all over not in any one place. Sitting straight up does help but not for long. I am beggining to think it's just more dang inflamation and pleursy. My hips have been...
If you did what were your symptoms? It feels like I have pleurisy again. Just pain in my right rib cage. Not having a problem breathing and not front pains or heart issues. It does hurt more to...
wow..all that scares me...the joint pains you describe sound like how I feel. My ana and reumy test came back negative, but I am still going to see a reumy Dr in two weeks. I don't know about having...
Did you see a Reumy in the past? Sounds like seronegitive splondeoarpthy (sp), I read somewhere that chiropratic adjustments were not good for the spine under this condition....
Hair loss is a definate yes, but It's dry and brittle, plus my skin won't mosurize for nothing......
Last night I took my canasa and after an hour I had to go. It wasn't because of the canasa, my number of BMs are increasing. Last night on the 5th one I had the "no form, consistancy of mud" that I...
I know that most of the research says it is probably the Co2 but for me it is the nicotine. I am trying to stop again and have already cut my nicotine consumption in 1/2 by stopping all nicotine...
Mine started really bad after I quit smoking. Prior to that I didn't think my BM's were bad because I was just happy I wasn't constipated. I have only had antibiotics once in 20 years. I was on...
Flax is a phyto estrogen. It won't keep you from getting pregnant, but your body will use it as an estrogen supply is it wants. Breast cancer patients are frequently told to stay off both. I was only...
There are two genes that are routine. One is the Leidend Factor V and the other is the Prothrombin gene 20210 mutation. I was tested becuase after my mother had a stroke in her 60's they found out...
Actually I never had hemmies... well once 17 years ago when I gave birth to this child. I never noticed blood in my stool before diagnosis. Cant say that I looked, but most of the time it's the...
we share the same gp so she definately knows my history!...
My son who is 17 came to me yesterday and said something about finding blood on his stool and in the bowl. He did have D yesterday but was constipated prior to that. Generally he is in good health....
Because my mother had a blood clot and they found that she had the gene, the insisted I get tested before I could have hormone replacement. Turns out I can't. If there is a history of blood clots or...
Hello back! If I just had the Leiden gene like my mom, I wouldn't have to take anti clotting unless something is major. But I also inherited the Prothrobin Gene Mutation G102010( or some such number...
Um just and FYI if you go gluten free and are tested either blood or biopsy after a few weeks you will get a false negative. I had been gluten free for 6 months when I was diagnosed with UC and had...
Thank you for that. Any chest pain I have is always checked out. I was recently diagnosed with Factor Leiden IV and Prothrombin Gene Mutation (both hetrozygous) and I am at increased risk of...
I saw someone mention on another thread that UC can cause a false positive on the D-timer test. Can anyone explain further? I have clotting issues and have this test done evey 3 months....
that's all I can attribute it to. I have been taking quite a few tylenol 3's for the joint pain but I haven't had one of those in 2 days. Food is normal and I have seen any mucus or blood for 4 weeks...
I missed one dose of asacol yesterday and today I am poo #3 today with blood and mucus! If it takes a few weeks to kick in why does one little missed dose cause a problem? I was doing so well, one...
Is it possible that the weight gain is water weight mostly? When I was on lialda I would swell up like a balloon. The the asacol is doing it as well just not as severe. I am really considering have a...
Opps I meant to say that the link doesn't work. Both lialda and asocol make me shed...Just trying to tough it out for now. What used to be 2 wraps of the pony tail holder is now 3. If I hit 4 we have...
I am also on the same asocol and don't feel quite fixed untill I started the rectal meds. I am on 1000 mg canasa supository and it has made a world of difference. I finally got my Dr to prescribe it...
Interesting story...Last January, I went gluten free because that was what we thought was the problem. I know know I was in mild flare and that the sudden bowel movements weren't accidental gluten....
Lialda made me swell like a ballon. Asacol doesn't. I looked like I had been punched in the eyes every morning. your link is working for me....
I seem to have this problem now too. It's wierd because I had always had a high tolerance for pain which is good since I am allergic to most pain meds, but for the last year I have been so achey and...
Can you explain rowasa to me? The reason say rectal steroids is my last bout with oral steroids was worse than the flare. At this point before I will only accept oral steroids if it is a choice...
It is almost too good to be true...I can not ever remember being this way. It has always been 2 or 3 movements in the morning. The oral asacol firmed them up, but Thank god I don't go to work till 10...
Ok I have only been on them for a week, but yea I finally feel completely normal down there...I good solid poop a day after I choose to get up. Meaning I am actually staying asleep for 8 hours...
I have used arnica topically since I had plastic surgery a few years ago. The surgeon gave it to me orally, but I only have it topically now. It does wonders, that being said becareful with other...