Hi I am so pleased to read that people are having success with this treatment. I haven't been on the site for a while as my health has been good. I was diagnosed with UC about 10 years ago, which...
Hi Lisa Yeah, same thing happened to me the second time I was hospitalized during my last pregnancy. It was a couple of years ago, so my memory is sketchy, but I'm pretty sure I didn't go for several...
Yes, I've heard really good things about Ian Lawrence too....
Hi I am in Perth, and see Charlie Vialla at SJOG Subiaco. He has been pretty useful for me. I saw Luka Cordova at Mercy a couple of times, and he was pretty good too. Best of luck!...
Hi I flared badly during my last pregnancy and was hospitalized on two occasions. I was on loads of prednisone, but only after week 18. I would be cautious about using it in the first trimester as...
I believe the thinking is that the procedure should work best when the colon is less inflamed, but lets face it, for most people its the kind of treatment you use when you are really sick and nothing...
I would not imagine that a course of antibiotics 18 months ago would preclude you as a viable donor. If you have a healthy gut, then things should be back in balance, and may not have even been...
I was induced three times. The first 2 were prior to UC, and I did have an enema both times. The third time I wasn't offered an enema (think they forgot). I don't think it would do any harm, but they...
Hi tracey anti-inflammatory foods might help while you are waiting to see a Dr and get some effective medication. Things like sweet potato, salmon, yoghurt, poached chicken breast. If you google...
Ooops, I actually posted this under the Fecal Transplant thread but it came up as a new thread. There was a post in that thread suggesting that NG tube is the method for administering the transplant,...
I think the most common way to perform fecal transplant is through rectal enema. It is sometimes done in a clinical setting via naso-gastric tube, but I'm not sure what the criteria is for selecting...
I think my ob/gyn was happy for me to do it as he wasn't keen for me to use IV steroids again, and didn't have any experience with remicade during pregnancy. I gave him one of Borody's papers to read...
Hi KK I was already on a low residue diet, but the recommendation from Dr Borody via my GI was to eat a low-fibre diet for 2 weeks, and then fast the day before the first transfer and then switch...
Hi Poo Bare I'm so pleased you are responding to the FT's. I have to say that I didn't experience any of the uncomfortable side effects that youo mention, although interestingly the mesalamine enemas...
I think the majority of people probably have bleeding ulcers when they try this treatment - its not generally something that people with mild symptoms are really interested in!! However Borody does...
You got it! Poop on a plate is the way to go. My donor actually used a large measuring bowl with a handle which he could hold under his butt while he sat on the toilet...The things we do!!...
When I was about 17 weeks pregnant I saw a GP as I had become worried about the amount of blood I was losing. He misunderstood me and thought that I was losing a few tablespoons of blood per day, and...
My situation sounds similar to Lynne's. I was flaring slightly from about 15 weeks, and by 18 weeks the symptoms were so bad I needed to be hospitalised for a few days - on IV steroids and fluids....
After being on IV steroids in hospital, I was released on 40 mg oral pred, which didn't stop my symptoms returning. They finally upped my dosage to 75mg which got things moving in the right...
Hi Killcolitis When I first discussed the issue with my GI, he took it upon himself to call Dr Borody to discuss the pros and cons of someone in my condition attempting the treatments. His call was...
I believe the 90% success rate relates to known c-diff infections. That was my understanding from reading Prof Borody's literature. I suffered a severe flare during my pregnancy, starting at about 18...
Who knows? Personally, I'm inclined to think that the more frequent infusions have assisted by giving my colon a chance to become less inflamed (because my symptoms are relieved), and that, over...
Hi all Have been reading about others' experience with FT, and just wanted to add to the discussion about what quantity to use. Kathy, you haven't mentioned how much stool you collect prior to mixing...
Actually Burli, I did do 6 attempts, but, as you will likely find if you try this, it is an acquired skill, so I'm not sure that the first couple were as effective as they might have been!! There is...
Hi Burli I am not a scientist, but my understanding is that some cases of UC may be a result of a bacterial imbalance which triggers an inappropriate immune response. The solution would therefore be...
Hi there As some of you know, I have been using FT to control a flare that had become steroid dependent - I really couldn't get below 50mg pred without symptoms returning. The last time this happened...
Hi Jesse Dr Borody recommends a low fibre diet for 2 weeks prior to commencing the infusions. Maybe that would be a better time to do your liquid diet. The FT treatment protocol requires you to...
Hi chocolate_stains The protocol appears to be the same for the home infusion procedure. I was already on a very low fibre diet due to the flare, but I did two infusions before receiving a copy of...
I agree that the toilet bowl idea is not a good one. Pooping into a bag or an ice-cream container, or a potty is much safer. Burli, prior to this flare, my colitis was fairly well controlled with 4gm...
During my reading, I have come across some research which suggests that oat bran also increases the butyrate levels in the gut. Thought it might be useful for the people who are finding it difficult...
Hi All Just a quick update. I have now done 6 infusions, last one due today before I switch to a once weekly maintenance schedule while I continue to taper off my steroids. Some of you might remember...
Jesse For some patients, I believe that Dr Barody recommends antibiotic treatment prior to the transplants, and a lavage (basically a colonoscopy prep, I think). It wasn't recommended for me, and I...
Dr A, To be honest, I don't know what difference it makes. But Dr Barody has been doing this for a long time, and done alot of research into it, and if he recommends saline solution, that's what I am...
Hi guys I use what we call a 'stab mixer' here, or bamix. I don't know what the equivalent would be called in the States. It is an electronic gadget, basically cylindrical in shape, with a blade at...
Hi Guila My GI doc corresponded with Dr Barody on my behalf, and yes, they did send out some enema delivery kits, which make the whole process alot easier! I use the saline solution that I use for my...
Hi I have the treatment protocol from Dr Barody, and they recommend roughly equal amounts of poo and normal saline. They also recommend using the solution immediately after blending it, within 10...
Hi Kazygirl I don't really know anything about hair anaylsis, apart from when my mum had cancer and was looking at alternative treatments, she had it done. I presume that you have had blood tests...
Most super markets here (australia) carry psyllium husk powder in the health food section. Certainly any health food store should have it. People on here have recommended psyllium SEED powder, more...
Hi I am also tryimg to taper off steroids following a severe flare. I was in hospital on IV steroids and came out on 37.5 mg pred, and started to flare up again after a few days. Bumped up to 50mg,...
If you google 'Barody Toying with Motions', you will come across a PDF article written by the australian researchers who have been very active in this field. There is a good account of how to go...
You know what? My GI has always been fixated on the fact that I have ulcerative proctitis, because that's what it was at diagnosis. I have been having a severe flare, and it is quite obvious to me...
Hi I know, it's hard. I am so scared to stress my colon by eating. I am 23 weeks pregnant, but look about 12 weeks. Most people haven't even noticed yet! If you can tolerate them, drink...
Anyone out there been on high doses of prednisone (I am currently on 75mg oral per day), and not experienced any noticeable side effects? I have been on high dose steroids for at least 6 weeks - the...
Thanks for the offer. I will let my GI know. You know what specialists are like - they know best, even when they don't! But he's a young guy so he might be open to correspondence with someone who has...
Hi Kazygirl I am in Australia too, over in Perth. I started flaring around week 17, and was hospitalised for a couple of days for IV fluids and steroids, then oral pred. Didn't settle, so landed back...
Hi Lynne While in hospital I was on 300mg of IV hydrocortisone, which I believe equates to about 100mg prednisone. When I came out I started on 40 oral, and started to flare again, so cranked it up...
Thanks for the replies Ladies. Lynn, do you remember what dose of steroids you had to be on for the remainder of your pregnancy? I realise that I have to get this flare under some sort of control,...
Thanks for the reply Joy. I have read your posts in the past and am so pleased that the FT worked for you. I am pretty keen to give it a go if there are no obvious down-sides to the procedure. Wish...
Thanks Canadian Chick! Wow, five weeks, you poor thing! This whole thing is doing my head in, it is really nice to read about a positive outcome. I am just about to up my oral prednisone from 50mg to...
Hello I have recently had 9 days of IV steroids to try and get a flare under control. I am currently 22 weeks pregnant. Anyone else out there follow a similar protocol? Healthy, happy baby born in...