So I looked back at the calendar, my timeframe is way off. It has not been 2 years since I had an issue, it has been 4 years. Time flies I guess. Appt scheduled. Thanks for all the advice....
I have been primal/paleo for 2 years, only had the one flare which was fixed with prednisone. I just don't want to take the immunosupresents because we don't know what the long term side effects are....
I have been in remission for about 2 years now, no symptoms and no problems. About 9 months ago I decided to stop taking Lialda and azathioprine. I have not told my doc yet, I just keep getting the...
I have started taking glucosamine and chondroitin (sp?) Both have really helped my knees and other joints feel a lot better. I have also gotten back to exercising which seems to be helping a lot...
So I have done multiple marathons before I was diagnosed. I have found that hard workouts make my guts actually feel better and I have less D that day. So if you are like me, marathon training may...
Have you tried normal old benedryl? That works best for me, especially when I am on pred....
My suggestion, get used to swallowing pills. I am taking at least a dozen in the morning and 4-5 at night....
Does prednisone work for you? That stuff is dirt cheap, probably $10 for a few weeks supply....
The good thing about pred is what it does for me. The bad thing about pred is what it does to me. Hang in there....
You should watch the south park episode about Chipotle. It caused everyone who ate there to get explosive bloody D. Of course it made me laugh really hard because at the time I was flaring....
I get dizzy and feel horrible the few weeks before I start to flare. Once I get on pred it cures that....
The only people that make money off these kinds of lawsuits are the lawyers. I choose not to participate....
Mornings are bad for me. I used to be a runner, but once UC hit, I am stuck near a bathroom for the first 2 hrs of the day....
If you are making $8.50 an hour, can you apply for medicade? That is what it is for, and surely you qualify....
I missed my dose of lialda today. I did not even think about it until my 5th trip to the bathroom this afternoon. If I forget it, I have D by noon. Maybe it is all in my head, but my body does not...
I did not realize I lost so much hair until I went to Jamaica and sunburned my head. Ouch!...
Just wait, in 5 years all Americans will be on medicare. Then we get to start getting treatment rationing....
I would take the pred. I have a bottle in my cupboard waiting for my next flare. The side effects for me are much less severe than living with a flare....
Benedryl is your friend. Non habit forming, and probably one of the safest meds out there....
This is not going to be what you want to hear, but here it is anyway. I have given up. I used to be in great shape before UC. I could run 26 miles without stopping, I could bench my bodyweight, I...
Wireless headphones. I have my own office, I still wear headphones all day....
I get prescription strength hydrocortizone creme. It is just 2% instead of 1%. Works great....
I have used it in the past with no side effects. I use phillips colon health now because I can get a big bottle at costco for a good price. But align seemed to work just as well....
Exercise....
I will agree, I love Lialda, it is expensive as heck, but it works well for me....
I guess I am very lucky. I am married to a nurse, she has seen it all. Her best friend also has UC....
Count me in on this. I just chalked it up to shaving too close. It is driving me NUTS, it itches so much....
Keep the faith... I was diagnosed with UC in Aug, but I have been fighting it for 2 years. Once I got on the proper meds and got it under control the weight came back. I used to lift 4 days a week...
Something you will be VERY interested in: http://edlabor.house.gov/documents/111/pdf/publications/AHCAA-Immediately-102909.pdf 2. IMMEDIATE HELP FOR THE UNINSURED UNTIL EXCHANGE IS AVAILABLE (INTERIM...
Ummm I just paid $800 for a regular colonoscopy, so count me in!...
We will all soon have that insurance. Of course the US already has budget problems.... And this will not help. But hey, at least we cannot be denied coverage anymore. Sorry kids, daddy is spending...
So far I have had no issues with any food and I am more regular than I have been in years with this Lialda. I worry about a flare, but you know what, I can just prepare and then forget about it....
Great ideas. I will take a full bottle of pred, but since i am now down to 15mg a day, I will not want to be back unless things are really really bad. I cannot wait to get off this stuff. I have not...
Nope, I eat what I ate before. Diet has had very little difference for me either way....
So the wife and I have reservations 1 month from today for a week in Jamaica. I started my first major flare in Aug and got on pred and lialda after being diagnosed in late Sept. I am about 30 days...
Been on Lialda for 2 months. It is fantastic!...
If you found something that works for you, enjoy it! One margarita every few days will do you no harm at all. Heck one in the evening after work everyday is going to do you no harm at all....
Are you constipated?...
So before I was diagnosed with UC in Sept, I was a long distance runner, and in pretty good shape. My normal heartrate is in the 60s. Once I got really sick for a month before I was diagnosed my...
I cannot wait to be off pred. I am puffing up like a blowfish right now. I have stretchmarks on my stomach and legs for the rapid weight gain. I cannot wait to go to the beach and take my shirt off...
There is no actual meat in a big mac....
It makes me thirsty, so I drink more, and if I don't stop drinking so much by 9, I have to get up...
Too new to this to answer... so far pred and lialda have made me feel human again, but I still bleed....
I take 3 cirtacel every morning and 3 more at night. Seems to help "firm" things up....
Maybe you are eating better quality food on the road? I always feel better when I leave the US and eat out because there is less pre packaged crap food in other countries. When we go down to Jamaica,...
My only 2 flares have started with constipation. It lasts about 4 days and then boom, bloody D. That is how I know to hang on for the ride....
I like citracel. I take 3 in the morning with my pred and handfull of other pills. I take 3 at night with my fish oil, probiotic, etc....
Best thing I can offer is try to get some exercise. I am going to try and get back on the treadmill soon. My problem is, my wife is a nurse, and she keeps yelling at me to take it easy. My heartrate...
Thanks everyone... I am feeling better about this now. I love this board....
Been on pred and Lialda for 3 weeks now. I am going to take my twin boys to a college football game tomorrow. 3 weeks ago I could not get 10 feet away from a bathroom. That combo is working great for...