Hello! Has anyone ever used the powder sachets as a prep? This is my first with this prep...worried about the taste..should I add flavor? Instructions are to use 16, 5gram sachets in 16 cups of...
I'm in the United Arab Emirates. They do sell pentasa suppositories...which I use. But those don't work very well for me. The hydrocortisone enemas were great! Just wish I could find them here....
Anyone?...
I know this is an odd question...but, can a 5mg, or 10mg steroid pill be used rectally, like a suppository? I ask this because I live In a country that does not sell the steroid enemas. I have used...
Wow thanks for the replies! So far, I think it is improving after going gluten free. It's still only been less than a week, but I can see a small change already. Not completely back to normal, but...
Hello all! Do any of you also have a Gluten sensitivity/intolerance and/or Celiac disease? I do not usually post, (mostly because if I'm feeling good, I like to try and forget all together that I...
Update on my experience with taking Ativan and flying....it works great! I haven't had such enjoyable flights in years! I sure wish I would have asked for this sooner. I took two 7 hour flights with...
Thanks for the responses. I sure hope it works!...
Hello, My colitis is under control and i feel really good 90% of the time...but every time I take long flights overseas (which is 3-4 times a year), I get so extremely anxious before flying that I...
Hello, Does anyone live in Abu Dhabi and know of a good GI doctor there? Thanks!...
thanks for the input. I would never stop Humira, since it's keep my UC in check. I'm trying one of the over the counter shampoos daily which so far is not helping. thanks!...
I take Immodium on a regular basis. Half a dose, not a full dose. For me it helps, but may not be needed or liked by everyone....
Hello! I do not frequent the forum unless I have a question, so it's been awhile. For the most part I try and forget that I have UC and that includes not reading about it on the forum every day. :-)...
I have been on 40mg for about 6 weeks now. Finally feel well enough to start my tapering. I started out with going down to 30mg for 5 days. Today I went down to 20.5mg and I plan on cutting back 5mg...
I also cannot tolerate probiotics. I tried VSL3 and it gave me soft bms, gas, cramping, and uncontrollable bms! it was like I was in a flare...but i wasn't. problems went away as soon as i stopped...
Oh no! I was hoping for better experiences! I'm sorry you both had to opt for surgery. I'm still hoping Humira will work for me since I did have such a great run with Remicade for about 6 years. In...
Hi Everyone, I've read some past posts about switching from Remicade to Humira, but am hoping for some more recent feedback from anyone. I was on Remicade for about 5-6 years and doing great! Then,...
Thanks for the info. I was using the max dose...and for months i never adjusted. Maybe I should try a lower dose and see how it goes...but I'm scared! thanks again!...
I tried taking VSL3 and it seemed to have the reverse effects on me. It caused loose bm's, urgency, gas etc. I'm pretty sure it was the VSL because I tried taking it twice. Once for several...
Any advice from anyone? I would really appreciate it!!...
Hi Everyone, I need advice on how to combat the prednisone side effects. It's been 5 years since I have had to take it for a flare up, but I still remember the terrible moon face, red face, hump...
I'm going to Dubai for vacation. I am debating on purchasing the direct flight that is around 14 hours....or breaking it up with a stop in London. That would mean first flight is 6-7 hrs, layover in...
Thank you for the advice! Yes, taxying and landing are definitely the worst. I usually use the bathroom as soon as i get on the plane when they are finishing boarding...and then i watch the time and...
Thank you very much for the responses! Although it has been many years since I have actually had an accident...I still get extremely anxious and nervous on airplanes. I always reserve the seat...
Also...any suggestions on a brand? I am a slim 5'3" 110 lbs, and am afraid that the sizes will be too big for me?...
Hello, I would like to know if anyone has had an accident in an adult diaper while on an airplane? I have an extremely long 14 hr flight and get very anxious about having to use the bathroom on the...
Has anyone tried a portable toilet in the house? My husband and I live in a small apartment with 1 bathroom. We are expecting to have three guests over for at least two weeks and 5 people to one...
A few months ago I tried using VSL3...after a few weeks I developed very runny, soft, foul smelling stools. the symptoms i had were nothing like my usual UC flare symptoms, but much different. at...
Hello! if anyone uses diapers for emergencies or long road trips etc., could you please let me know of a good brand? i appreciate it!!...
Hello! Has anyone had the experience where your Remicade infusions just are not working as well as they use to? Is it possible to become immune to the medicine? I've been on remicade for a few years...
Just wondering if anyone is a patient of Dr. Chobanian, and your opinion of him? I'm a new resident to Cambridge MA and recently scheduled an appointment with him for UC. Thanks!...
I am currently relocating from Ohio to Boston, and have been trying to schedule an appointment with one of the Dr. at the Colitis Clinic. I called the office number posted on their website,...
I will use the Rowasa suspension enemas when coming down to the last week before my next Remicade infusion, and occasionally when I feel the first symptoms of a flare. Recently I have noticed that...
Just curious... has anyone experienced this side effect when tapering from predisone? I am not currently on pred, but when I was, and I was tapering, I had such a strange side effect. At night I...
thanks for the advice! i will definitely be looking into the colitis center...it sounds great! thanks also for the reassurance that the bathroom situation in cambridge, is not as scary as i was...
my side effects differ greatly while taking predisone now, vs. when i was first diagnosed. everyone is different. even on very small doses, i can feel the side effects kick in. my big one is mood...
My turn to respond to your question! :-) Narrow stools is just another symptom of a flare for me. I usually experience it when I'm starting to get well from a flare...but it can happen anytime i'm...
Thank you for the responses! I'm sure will find a job since I have a degree and plenty of banking experience....there is always that fear of "what if" something will happen and I won't find a job,...
Thank you for your response Birunji! That's funny that you mentioned Starbucks because my husband and I were seriously considering doing that just for the insurance. And thanks for the Dr. names......
Also, I am worried, about[b] quiting my job, and then finding a new one with insurance to cover me. Has anyone had this experience and had to deal with COBRA insurance? [/color] Thanks so much for...
Hello everyone! I've had colonoscopy tests, and the Trylite prep several times, but am always interested in hearing any advice for making it go down easier? I have to start the "special cocktail", as...
I was in the beginning of a bad flare when I met my husband...and things only got worse after we met. I told him upfront about the disease and shared with him the good, the bad, and the ugly. I knew...
Hello! Does anyone know the main difference between the two? I rarely use it...only during a flare, and now I'm flaring so my dr. called in another prescription for me. Except this time it is the...