My father had Crohns so I was familiar with IBD. I already had two children when I was diagnosed with UC 16 years ago. My kids are both in college now and back in June my 21 year old son was...
Let me start by saying I have had UC for 20 years so I am familiar with IBD. My son was diagnosed in June 2010 with Crohn's. My father died of complications from Crohn's when I was pregnant with him....
I also hate tight things around my stomach, even the seatbelt in the car can causes discomfort. I take Levsin SL for spasms. Any kinds of pants that I wear have to be below the waist fit, or I can't...
Yes, my initial diagnosis was pancolitis. I currently take (18) Colazal, (1) Canasa, (2) 50mg 6mp, (4) Fibercon, (2) 25mg Amitriptyline (which is for chronic, undetermined pain when I eat) The issues...
So, I had my colonoscopy the other day and these are the preliminary results before I get the biospy results Feb 8th: Pseudopolyps in the sigmoid, descending and transverse colon (biopsy) An isolated...
Qunicy - I have been on 6MP for 5 years, no new toothpastes or face wash or anything that I haven't used for awhile, not sure why 18 Colazal other than it is what has worked. I definitely don't like...
I'm not sure why I am having this problem, but for the last 3 weeks my lips have been burning. I even get cracks on both sides of my mouth. Just putting my finger on my lips make it hurt. They also...
Please excue my negativity but Cobra is the answer only if you have the ability to afford it. Most people who are unemployed cannot afford this. My husband lost his job in June and we are on Cobra....
He lost his job June 24th. I don't understand why they would have something like that but say you only qualify if you lost your job before May 31st. What the heck??? We were aware of it because it...
I thought dealing with UC for the last 20 years was hard enough but my 21 year old son just had a colonoscopy and has Crohns Disease (awaiting biospy of course). My father died at 59 of complications...
University of Kentucky Wildcats!!! GO CATS!!!...
I am in the same boat as you. I had been on Colazal for about 6 years or so and I just switched 2 weeks ago because my copay went to $100 and it was almost impossible with all the medicine I take to...
you may not like them, but Gushers are gluten free and I love them!...
It will be a year ago in April that I was put on it....It is also know as Amitriptyline (which is what I get). I had such pain after I would eat I lost 20 pounds before being put on it. Yes, it...
I had my yearly colonoscopy last week and I did the Osmo Prep. I also have a big problem with being nauseous so this was not bad. This is the second year I have gone with the pills. I took 20 the...
I had a scope yesterday and did the liquid diet on Monday. I did the Osmoprep tablets. Not so bad. I was able to drink Ensure which did help with me feeling so hungry....
I had the same pain you are describing for over a year. I lost almost 20 lbs. because I actually almost stopped eating because when I would eat I would get the pain. I also felt like I could feel...
We live in the Cincinnati and have had about 5 inches today. My son has been in London the last couple weeks and is suppose to come home Saturday. I am wondering if his flight will be delayed or not....
I am probably going to go as the monkey from the Wizard of Oz. I don't like to buy costumes and in no way am I a seamstress, but I do make costumes each year for myself. Both kids are now in college,...
I also had the same problem with Asacol that Sherry had. I was changed to Colazal several years ago and I started at 9 and now I take 18 a day. I have been at this does since April of this year. No...
I really know what you mean. I was on pred for 2 (yep 2) years before I could get off completely. I went from 120 to 172 lbs. But once I was off the pounds went away as well. I now weight 138. I also...
Yep, I am still on it. It works fine at 25mg. Other than I take it at night as it does make me very sleepy. I would rather be sleepy than have the pain I was having!! LOL...
I know exactly what you mean about the pain. I also could not stand up and it was worse about an hour after eating. It didn't matter if I had a bowel moment, I still had the pain. It was awful. I...
I have been on 6MP for the past 4 years. The first time I took it I was on it for 5 years, came off for 1-2 years, and had to go back to it. So, total of 9 years on it. I take 100mg every day. No...
So, I have had this addominal pain since August. I have lost 12 pounds and I am finding it harder and harder to eat anything without pain (the kinds of pain that I have to lay down, stop everything...
I also had my colonscopy this past Monday. I was suppose to do the Fleets phospha soda but was told they had recalled it on 12/18/08 because it causes kidney damage. I ended up doing the pills....32...
Thanks Judy......
I just had a colonoscopy this morning and here were the findings: Diverticulosis of the sigmoid colon Pseudopolyps in the descending colon and proximal sigmoid colon Atrophic with submucosal scarring...
I will be there on October 10th & 11th. The roundtable discussion will be on the 11th of October. Well, it would have been great to have met you but maybe another time!...
I have received my information for my trip to Orlando for the Shire Pharma. roundtable discussion regarding ulcerative colitis. Just wondering if anyone on here is going as well??? I am really...
Hi! Maybe you are talking about the card I have. This is a Colazal discount card. I received from Salix back in Jan. It is good for up to $100 off a 30 day supply (up to 6 prescript ions- meaning...
No, no particular drug. I took a survey online regarding Lialda (I have since switched back to Colazal) and that is how they contacted me. But it doesn't matter what medicines you take (I am not on...
I received a call from Michelle today regarding the Shire Pharmaceutical roundtable discussion this October. She only wanted to know if I would be interested in going. I also got the call last...
Just my 2 cents regarding Colazal....According to my doctor after being on it for several months it will continue to work after you stop...for a while....So just maybe the Colazal was working...
Hi Jen, just wanted to post and let you know my experience with Fleets. I have had many colonoscopy's in the last 10 years. Most of the time, I have used Fleets (I have done the pills and the gallon...
I just had a colonoscopy on Tuesday. I did the Fleets. I have done the Fleets many times as well but always mixed it with something. YUK! This time I did it like a shot. I took the 1 1/2 ounces and...
Yes, I also think there is a family connection. My paternal grandmother died of some colon ailment (not sure because she was 34 when she died, could have been colon cancer but this was all before I...
43 years old, near Cincinnati, OH...
Big Lucy- The levsin does work sometimes and the only time I have side effects is if I take more than 1 in a couple of hours (I can take 4 a day). Then I usually get blurred vision and my voice is...
Yes, yes, and yes. I have this all the time as well. When I eat a meal, it really helps to stay seated for about 1/2 hour. I know this sound weird, but if I get up and start moving around (or if I am...