I get alot of funny stuff that sends me to the hospital. ex. i got selulitis and the doctors thought i had the flesh eating disease. I get colds and all that really easy and my white count drops very...
10 years on 10 ml or more....
So I went to MGH last wensday to get a second opion about having my colan removed. I did this at the request of my liver transplant team. Now I talked to the transplant team at the request of the...
Im really glad you posted this. Its kind of funny Im having the oppisite problem. My B/F is pushing for me to have surgery. That sounds funny I know. Iv had UC for 11 years and it always been what my...
I would like to start taking probiotics...anyone have recomondations? I looked online and found Crohn's & Colitis-Digestive Advantage Once Daily Therapy, Im wondering if I should start there. I...
I used to get that a lot and it stressed me out cause I though it was from my transplant, but my dr said it was just gas. streching and stuff or a heating pad helps a lot just keeps things moving so...
After my first infution I got something called sudo-tumor. My body thought I had a brain tumor and sent fluid to my head. I got the worst migrain and endded up in the hospital for spinal taps. THey...
my apointment is the 1st. the only problem I have with it really is I cant have the second step surgery. Sooo that leaves me with the pouch for the rest of my life. Not really my idea of a good time....
I have tryed all the "normal" meds for my UC. All that has ever worked is prednison, not a drug you want to be on for 10 years. I have always had bad rections to the meds or they did nothing....
I have the same problem. I think its cause when I eat it tells my body to start digesting again so whats in there wants out and in our case it usually wants out right now! I just try to eat really...
I have to agree with the idea that with any illness the brain can be involved. Wether it be stress or memorie loss. after I had my transplant I had a lot of memory problems and my dr told me it was...
Laltey when ever I eat my stomic makes tons of noise so much my b/f asked if my stomic was goin to explode last night...he like to think hes funny...but I dont usually worrie about it. It seems to be...
I agree that the prep is the worst part. I get scoped about 3 times a year flare or no flare. Its not that bad. when I was a kid I woke up during one and kicked the crap out of the dr. so now they...
As a young person this is one of the things that scares me the most. I have been removed from work due to my health and have no isurence. One of the reasons I dont want to have my colan removed is...
So Iv been feelin really bad latley. Iv been hospitalized 5 time since oct. only once for my UC. The thing is that Im on all these drugs that lower my amun system so if my temp goes over 100 my B/f...
It looks like surgery is my next step, though Id like to put it off. Iv been trying to get more info. I know its hard but keeping a food journal of what bothers you and what doesnt worked for me....
Iv been on Prednison for a long time. Im at a regular dose of 10mg that seems to be the lowest I can go without a flare. 30-40 mg is what my doctor usually bumps me up to when I start to flare but it...
OK so maybe this will make me sound like a u know what but I have to ask. Iv been sick for a long time so even when Im "better" im not great. But my question is does anyone else get tired of people...
I was on cyclosporine before my transplant. My body was rejscting my own liver so the drug was supossed to stop that, it also helped my colitis a little bit I was diegnosed while i was on it. This...
Thats awsome!! I get bruises if people blow on me to hard. I will try very soon....
mmc is the hospital I go to and when I was younger I used to put a sign on my door that said princess. It just kind of stuck....
My transplant was due to PSC. I had the transplant when I was 16. All the advise is great....
Iv had uc 11 years and I have bee on prednisone all that time. I have tryed all the drugs that my doctors can offer none of them have worked. Now my uc has never been horrable. However its been...