Try to relax. At least until tomorrow. See what they tell you. May be you will hear good news. Good luck again. Let us know what they say....
I hope everything goes well. Good luck....
Hospital first few days, infusion center couple weeks, last 10 days at home through PICC line. Your treatment could be different from mine as our immune deficiencies are caused by different things....
In my case, if UC was misdiagnosed then I am almost positive it was C-Diff and not CMV. CMV flare was a result of my immune system being suppressed by prednisone. CMV is very common, it is just...
Yes, I had a biopsy that detected the CMV. I had about four weeks of IV Cytovene and then switched to oral Valcyte. I am still taking oral Valcyte. On top of CMV I have C-Diff and UC. My symptoms...
I just recently had CMV and I am still on meds for it. Did you have any specific questions?...
Stress. It affects me. But I don't mean normal daily stress (fast paced work, meeting deadlines, etc) - that type of stress I am fine with. I would rank stress #1. Diet - not as much as what I eat...
From my personal experiences I could tell that lower back pain, if one sided, could be due to kidney stones or just a muscular pain. Last time I had pain like that it lasted about three weeks and...
Second day - definetely not worse, but can't tell if I am any better. Retained it again all night. Morning stool was diarrhea like in the beginning with formed stool towards the end of BM. Yesterday...
Lynn4221 - I used enema syringe that I bought from CVS. Will keep posting updates....
I did my first yesterday before bed. 1 cup of water with one sachet of VSL#3 orally and 1 cup of distilled water with one sachet of VSL#3 by enema. After the enema - 10 minutes on one side, 10...
Thanks for the quick response...
Good luck to everyone who started the FT... I have a question. I have been thinking about the FT lately as well. I could use either my 8 year old kid or my wife as a donor, but I would like to test...
Subdued, Could you please share some details on how you used probiotics (which probiotics, how often, times of a day, etc) during the last flare you had. I am still fighting my last flare that put me...
Hi Linda, I got diagnosed through colonoscopy. The medicine I am taking is different from what you are taking. I can't tell if it helped my UC since I got CMV and C-Diff at the same and during my UC...
I am taking vancomycin for C-Diff and it is in liquid form. If you can't take pills then you may get the Vancomycin in liquid form at one of the compounding farmacies....
I have CMV and I am taking Valganciclovir (Vancyte) for it. Started with infusions for almost a month, and then switched to pills....
Quincy - I was tested via biopsy for CMV and yes, it is active in the colon. I am on Pred for UC, Vancomycin for C-Diff and another antibiotic for CMV (IV). lizziemc - CMV is very common virus that...
After 10 days in the hospital got discharged on oral prednisone. Few days later got diagnosed with C-Diff and CMV. Has any of you had similar experience? How hard do you think it will be to get these...
One thing I forgot to mention is that the colonoscopy (four days ago) indicated a severe active UC of the whole colon....
I have seen a lot of people here mention that they are in active flare that started weeks / months / even years ago and they are still fighting that same flare. I am currently in a serious (by my...
Matt, You are at one of the best hospitals for IBD - so that is a good start. As for the steroids, the first time I was diagnosed the steroids took about a week to work, but they worked. So give it a...
Thanks again to all responding. JayBee - just read your story (the thread you closed) and what your are going through. Wish you a quick recovery from C-Diff and that will hopefully bring the...
O.k. Just thought I will send an update. Been at the hospital 4 full days now, today is the 5th. The number of BM's is considerably less than at home before the hosp. (only 6-7 in 24-hour periods at...
I agree with you all about the diet. Thank you. I am going to stick to homemade broth instead and avoid all the packaged artificial broth along with all the other stuff just in case. I think they are...
Thank you again for your responses. My white blood cell count is very high now and they are doing bunch of blood work to see if there is an infection. I hope I didn't / don'g get any infection here....
Just got a comp/net access at the hospital. Got admitted into hospital yesterday. Was put on clear liquid diet, IV fluids, IV prednisone. Could anyone with hospitalization experience please (!) tell...
Thanks to all for quick responses. To be honest I asked my doctor if I could go from 60 to 80 as 60 was not only doing nothing but I was getting worse. He agreed but mentioned that that would be the...
Need help please. I have been diagnosed with severe UC of the whole colon in Sep 09 about two weeks into my first flare. Was put on 30 mg Prednisone which helped in about a week and was then put on 4...
Hi, Would you please let me know if you know any GI doctor in Houston area that you would recommend? I have an ulcerative colitis. I just moved to Houston, TX and need to find a good doctor. Thanks...