Kweeks....Glad to hear things are going well with you. And now that you do talk about when we were pregnant i totally remember. I had my son in sept 09. I had to have surgery due to being prednisone...
Yes I do have a jpouch. Had the 2 step procedure and had the pouch o gram 2 weeks ago. Hoping to go home today and on with a new life...very exciting!!...
Hey...sorry i haven't been around. I did have my first surgery on aug 31st and just had the iliostomy reversed on tuesday. I am still in the hospital but things just started moving today...so hoping...
Newshinycd and honestwoman50....just wanted to let you know that the pouchogram wasn't bad at all. Only lasted about 5 minutes and i got to watch it on the screen. Pretty cool. Thanks for the replys....
I am having a pouchogram tomorrow morning. I was wondering if anyone could tell me what to expect. Thanks...
I have been taking flinstones forever...can't tolerate the regular vitamins. And while i was pregnant i actually was taking 2 a day instead of a prenatal vitamin....
Well i had surgery a week ago and up until today the smell wasn't too bad emptying it...but OMG....I don't know what to do?? I have sprayed, lit candles...any ideas?? I can't imagine going into a...
Well..heading home today. Bleeding stopped and it was kind of like 2b colonfree said. Doctors said it may happen because it is fresh and it will clear up on its own. I can't believe i am going home...
Just had my 1st step of 2 jpouch surgery on tuesday....was just wondering on how long i will see blood in the ostomy?? Thanks...
Notsosicklygirl....i am having the 2 step procedure. He is doing laproscopically tomorrow if all goes well and then checking the pouch in 6 weeks. Thanks for all the positive thoughts!...
Well this is it...tomorrow is the big day!! so nervous but not all at the same time. Really strange. Guess i am just ready to get my life back and my face...haha (tired of the prednisone) Last day of...
I hear you....I am going in on tuesday for surgery and remember the doctor saying the same thing when i got diagnosed. It is really scary...but i have been prednisone dependent for over a year....
I do the ducolox tabs and miralax....which isn't bad. i will be doing it on monday to prepare for surgery on tuesday....
I was in remission when i got pregnant and flared at about 20 weeks. continued on prednisone through out and my son is going to be 1 year old in sept and i have been flaring on and off since then....
I have been getting the worse cramping pain with bowel movements with this flare. I have been in somewhat of a remission but only on prednisone. I have been taking vicodin for the pain...and i am...
I had to have a larger dose of remicade too...but still only works for a few weeks and that is only if im still taking the prednisone. I had my last dose a few weeks ago and im throwing in the...
It is so great to hear positive stories...thank you. I am meeting with the surgeon tomorrow. And i am so scared and confused but know i will get through this. Thanks again!...
I am actually going to meet with my surgeon on monday and thinking we are going to be setting a date. I am thinking sometime in september. We can go through this together...it helps to know that...
I had asked my doctor about bentyl and he wasn't a big fan of it. So for right now just sticking with the vicodin as needed and seeing the surgeon to set a date on monday!...
That is exacty how my flares are until i get on prednisone...so uncomfortable and time consuming. Hope things start to get better for you....
I have actually been taking vicodin...not over the counter but was given the script last time i was hospitalized. I have had abdominal cramping before but nothing like this flare. The urgency, blood,...
I had a miscarraige the first time i got pregnant and just had a baby a year ago september. I flared during the pregnancy but was monitored very closely and my son is just fine....
Thanks songlady....I had taken metamucil in the past with not much luck. It has never really been this bad before. I am getting the remicade on tuesday so hoping for some relief for a few weeks from...
I am so tired of the pain....i am back on prednisone 40mg for a week now. No blood...urgency not bad...just such bad pains. I am taking vicodin to help with them. I am also seeing the surgeon again...
I flared at 20 weeks and remained on prednisone 20mg through out my pregnancy. And then had a really bad flare again 4 mos post part. and ended up back in the hosp. I felt great for the end of my...
I worked in a hospital until i really started to flare and i was the same way...i would check the baby with a doppler everyday i worked. Just make sure the doctors keep a good eye on the baby. It...
Hi...I flared at about the same time...20 weeks or so. I started out having the blood, mucous, and pushing feeling...ended up trying everything. Enemas, suppositories, oral prednisone...and still...
the suppositories are called canasa. They don't get as far up in the colon to treat but i have such a hard time holding the enemas in that it works best for me. especially when i was pregnant and...
I was on meds when pregnant with my son....i stayed on asacol, 6mp, and was on prednisone 20 weeks on due to a flare. My son was born 2 weeks early weighing 8 lb 3 oz. healthy as can be. He is now 9...
My last colonoscopy that was done in march was the dulcolax/miralax prep. It wasn't bad at all. I drank about half of it and was going clear so i stopped. Good luck!...
Everytime I have quit smoking I have flared. I have flared 3 times because of it....and don't plan on ever smoking again to have to go through the quitting and flaring. But the smoking side effects...
I dream like crazy too when i am on the prednisone. And really strange ones. I am going down to 10mg tomorrow...yah!!! Keeping my fingers crossed that all stays ok for awhile....
Pam....I have been there too. I was up all night when i was in the hospital. i still have trouble sleeping just so drained. One crazy drug...really can't wait to be off it....
I have a meter from when i was pregnant...maybe i will check myself tomorrow. I had done a random BS check last time i was on steroids and was fine. But good thinking...thanks for the replys....
Ugh....I am tapering off prednisone again..and i am sooooo tired. Usually occurs in the afternoon/night but makes me miserable. Do you think it is from coming off the steroids. I am down to 20mg...
So glad she is doing well...thinking of her!...
I can't wait to be off of them for longer than a few months at a time!! Good for you...hope you continue to feel good!...
I flared around 20 weeks and remained on prednisone through out the rest of my pregnancy..20mg. I did have a ob/gi specialist that followed me and was happy about that because i was hospitalized for...
My Gi said that he doesn't want me flaring from not receiving the remicade. I am going to get it on tuesday and talk to him then. If i have to put it off a few weeks i will have to do that. I will...
Thank you all for the replys. I will let you know how tuesday goes....such a hard decision!...
UGH...i am so confused. The doctor sent me to the surgeon on monday and i decided to get the surgery done...called to cancel my remicade for this upcoming tuesday and my gi now wants to give me the...
Good luck...will be thinking of you!!!...
Has anyone ever had this blood work that is suppose to test to see if you have chrons or not?? I met with the surgeon on monday and he said we could do this prior to surgery. anyone heard of this...
Christine...i feel the same way. I am calling the surgeon tomorrow to schedule my surgery for july and i feel pretty good right now. Crazy. But i am also still on 30mg of prednisone and can't wait to...
Thanks for the great stories. I am going to the surgeon tomorrow for a consult. Not feeling too bad right now but know that can all change very soon. Thanks again!...
Getting a surgery consult on monday....I have had it too. I don't feel too bad right now but whatever i eat goes right through me and im so done with being on the prednisone and the side effects. I...
Well I saw the GI today and he wants me to get a surgery consult. He says living on prednisone isn't the way to go and it isn't changing things. He says im too young and need to get my life back. It...
I was just wondering if anyone on here is from the rhode island area?? Since this flare i have been thinking about surgery and setting up a consult just to look at my options. I see the dr on monday...
Hormones i believe make a big difference with UC. Since getting pregnant i have been in a flare and the doctors say it could be from the hormones. I hope things continue to improve for you!!...
I just used 2 today...i haven't used them since i got out of the hospital months ago. Just couldn't take it today....needed some kind of relief. i don't plan on taking them all the time. I see my...