I have been on Remicade for about 4 months and get real stiffness in my left knee. Every time I stand up the knee is stiff and tight. Anyone had similar experiences?...
I may be looking to switch and want to know if anybody lives here and has a good one?...
When you can go on a website (this one) and read all the bowel habits of total strangers and NOT be grossed out but INTERESTED and able to relate!!! 39/M...
when I switched the last time, I did to them what they did to me...ignored their call about my upcoming appointment. They were non-responsive to my calls to the Dr... so I just blew them off for my...
yes, I currently have a case pending in the NJ courts. I took Accutane about 5 years before I developed UC, which is right at about the statute of limitations. My case was taken by a firm about 2...
no, I never refrigerate them. They stay in a drawer in the bathroom....
make that EXPIRATION!!..it is Monday afterall....
I still have a few 1000mg canasa left from an old prescript ion and the experation date is only like a month or 2 ago. Are these still effective? Is there a color they might turn that tells you? As...
UC sucks?...
Most of us have the same type of symptoms when we are flaring. I find it hard to describe my BM problems to my GI and my spouse (I usually just say “weird” symptoms” rather than be graphic to my...
I started Remi about 6 weeks ago. I saw about a 50% improvement the first week after, but then went downhill again. I went for infusion #2..2 weeks later still having problems after. We decided to...
I started on 5mg and did the introductory infusions spaced apart by 2 weeks. I am going in for #3 this week (1 week early) and bumping up to 10mg since I have had no relief and continue to suffer...
Disneynutt66 said: Can I ask you the name of your law firm (am I allowed to ask that?). It was several years after I took it before I had symptoms but am convinced (because I was older, no family...
I have a lawyer working on my case. I took Acutane in 2000 and had UC starting in 2005. They filed my case in 2008 and it is pending in the NJ courts. It may be years before I see any money, but as...
prednisone worked great for me while I was on and off of it for about 2 years. I would go on, and it would take about 3 weeks before it started working (40 mg). Then, after I would be off of it for...
I started my Remicade about 3 weeks ago. The 1 st week I had a major improvement (not out of the flare but much better). The 2nd week I seemed to have worse symptoms. I had my 2 nd infusion 6 days...
thanks for all the help. Insurance approved it so it is a go tomorrow!!!! I am willing to try anything after this 3 month flare. Maybe it won't effect me too bad or I can just deal with it. I am out...
Supa...glad to hear it is working for you, too. After a 3 month flare (my longest ever) I am ready for any relief. I have been reading about the side effects and not liking what I hear, but I rarely...
I am due to start REMI tomorrow (assuming insurance approves today). Glad to hear it works! Qwerty...tell me about how you have handled the side effects. 39/M UC since 2005...
Good to hear! I am scheduled to start Remicade this Friday after a 3 month long flare. This is the first time prednisone didn't work. I have tried evertyhing, including Immuran, and after a scope on...
sounds like we are all in the same regiment. Thankfully, I have not had any of the above symptoms. I have been on 40 pred and 4 lialda for 8 weeks and finally out of a 9 month flare. I have had no...
I will add make sure you squeeze out the excess air first. It will help a lot with the cramping and urgency feel. Squeeze slowly from the tip over the sink until the medicine comes to the top, then...
I have been on Lialda for about 6 weeks now and just moved from 3 to 4 per day. I can say I have no side-effects...but am unsure if it is working on its own as I started 40 pred and rowasa at the...
I have been on 3 lialda for about 1 month now. I cannot tell you how much it has helped so far because I started 40 pred and rowasa enamas at the same time. The combination has made me improve, and I...
my first experience with the lemon-lime (YUK) was completely differrent the 2nd time with Tri-Lite Cherry. I just mixed the entire cherry with the gallon ( left it over night and keep shaking it) and...
thanks guys I am happy to report morning 3 (today) was much improved, so hopefully it took time. I had done it back to back nights twice in the last 2 weeks, but gave up based on the worse symptoms,...
Quincy, I am on 3 lialda daily and 40 mg of pred. I can have a good morning every other day or so with no mucous or D, but when I do the Rowasa, it forces action every morning, so it is hard to tell...
Does anybody find the Rowasa enamas exasperate symptoms at first? I find as I start and stop them ,I am worse the first few mornings..and it makes it hard to stick with them Anyone find the make it...
good to know that a few of you were ok at 40 mg. I know it affects each one differerently. Hopefully since I tolerated the 20mg pretty well, the 40m won't make a huge change (except for gettng me out...
I have been on 20 mg of pred for 3 weeks now with no real side effects. I bumped up this morning to 40mg. I know everyone is different but, have your experiences been this jump from 20-40 will cause...
Do you take all of your Prednisone at once? I just bumped up from 20mg to 40mg today and want to make sure it is ok to take it all in the morning at one time. Is the best? thanks bluechipguy...
My GI put me back on Rowasa enemas, but the pharmacy only has the generic. Is it all the same mesalamine? thanksbluechipguy...
thanks, guys, that is good to hear. I should say that I started 20 mg of pred 2 weeks ago, and it seemd to work great at first. I was in a 6 month flare, with every single day symptoms. I had 2...
Any body use Lialda? I saw a new Gi yesterday and he switched me from Colazal to this. Colazal apparently stopped working for me. I like the fact that it is only 2 pills once per day instead of 3 /3...
jwogie, how much pred were you taking that gave you those side effects? Was it a larger dosage? bluechipguy...
thanks guys for the support. I don't have bleeding...expect maybe a tiny bit every once in a while and my GI says pred is reserved for the worst cases, but nobody can tell me if I have symptoms...
Dakota, I have used both the Cort Enemas and the Canasa. The Cort Enemasa worked very well for me last year whenever I had a flare. Since Jan, however, they stopped working as I have used them a few...
I have never taked Pred before. I am currently on 9 Colazal. My current flare consists of every morning movements, usually about 3-5 minimum, sometimes worse than others. My past flares I usually got...
After a non-stop 4 month flare, I am thinking about starting Prednisone. My GI wrote the prescript ion last month for me to fill if I need it. I just spoke with him and he said I could start at 20...
Has anyone found soda or diet soda to help fuel a flare? I had a good 4 day stretch; the first one in like 4 months, and the only thing different was that I had no soda for 3-4 days. I had 2...
Thanks everyone for all the replies. I am not sure what the dosage my GI wrote me was for (it is in my medicine cabinet in case I need to fill it) but I am sure it is a low dosage. It sounds to me...
I have not tried altering my diet in anyway. MY GI never mentions diet during treatment. I do not want to start the steriod if I do not have to, but my quality of life is suffering anyway. My wife...
I have mild UC, but after an 8 month remission, I have had a horrible flare with no letting up for the last 3 to 4 months. I am on 9 Colazal now and my cort enemas stopped working after helping on...