I'm 30. but I miss being active. I rock climb. so the pouch would cause an issue with my harness. that and wake boarding. seems like I have to give up my passions either way. I hope that a J pouch...
http://www.gesundheitsregionen-bw.com/magazin/index.html?lang=en&artikelid=/artikel/04648/index.html turns out there are upcoming options I may be able to try before surgery. I def don't want a...
sakiv46, you mentioned you maintained remission for 4 years with a lecithin enema. did you stop using it and found you started to flare again? or have you had a flare while on the enema? I am curious...
so in theory a banana enema might help? seems absurd but, hey. people put all kinds of enemas up the butt....
Joint pain is a result of steroid therapy. it destroys your connective tissue over a long term. I hate the stuff cuz it makes me zitty. that and moon face. doctor wants me to have another infusion...
guategirl: remicade might help for you. I'd give it a try at least. it is horribly ironic that we love food as chefs but are tortured by it with this disease. I plan on getting Jpouch surgery. as I...
well, ever since doc started tapering me off my prednisone I've started to bleed worse and worse by the day. so I have one more remicade infusion this week, and if I don't improve I'm going for...
I can totally relate. I miss being able to rock climb, and run, and exercise. or just feel normal. I have a friend with Crohn's and she does very well on Remicade. so at least give it a try before...
now.....where's the cure? LOL. I'd like to find it before I decide to get my colon removed....
at least give the remicade a try. its not working for me so far. I'm giving it one more infusion. then I'm going to look into Humira and then surgery. or maybe just skip straight to surgery because...
well, I don't know why I'm having pain and bloating, or a little bit of blood, but the doc scoped me, and my colon is looking better than it did two months ago. healing. not 100% but much much...
I've tried Rowasa, and colocort (steriod enema) before I was on oral steroids. didn't get any results from it. I'm gonna give Remicade two more infusions. but I'm backed up bad, not much poop this...
that's unfortunate, I'll post after my GI appt tomorrow. I suspect that the doc will keep me on Remicade since I've only had two infusions. maybe it will come around. I hope so. and surgery is scary...
Surgery is a scary subject. one lady at the infusion clinic had an ostomy bag and her stoma was always getting infected. and people with J-pouch claim to get pouchitis. so no guarantees there either....
I tried the rectal steroids before the oral, but they didn't work for me. joint pain is common while on prednisone. especially if you have been on high dose for a long time. it can ruin cartilage....
anyone ever heard about any advances or recent publications, and or trial tests being done in correlation with Crohn's and UC? Just curious if we should or are expecting some advances or answers for...
Acne, night sweats, mood swings, weight gain, sensitive teeth, restlessness, appetite increase, puffy face, inablility to urinate (when on 80mg) all around a horrible drug, and now that I'm tapering...
I hear ya. I just had my second remicade infusion last week, and I'm bleeding past two days, feel sick like a cold with sore throat. going to see my GI on wednesday. I had a hard time sleeping when I...
I just had my second treatment of Remicade, and now I'm sick. my throat hurts etc. had blood the past two days as well which is weird since I've gone without blood for the most part for about a...
My GI wants to keep me on 50 mg of Imuran, while on Remicade. he mentioned it will help keep my body from developing antibodies to the remicade. I hear this is a common problem associated with...
I just had my 2nd infusion on wednesday, trying to taper off prednisone, currently down to 30 mg from 60. I had a bit of blood today, but must say I'm much better than when compared to going 20 times...
that's what I was trying to accomplish with a phone call so he can order the unit and have it sent to the infusion center. and hopefully get in next week. since I'm technically a week past due on the...
no, they just follow the instructions sent in by doc. but you would think they would. or even MY doc would know....I'm really dissapointed and upset. especially since I've been trying to get him on...
I thought so, damn. I am looking into a new GI. gonna go see the one a friend of mine goes to. she has Crohn's but I have left sided UC. and I agree, he doesn't have experience with the remicade. I'm...
so I'm on imuran, lialda, and prednisone. I got my first dose of remicade 4 weeks ago. felt better until about three days ago. had a bit of blood. after having none for a while. I don't think my doc...
and to Mackster. everyone reacts differently. look at what I'm on and no results. my friend with Crohn's has been on it for two years and its a life saver for her....
I got my remicade for free today, meds and all. I felt ok afterwards, but kinda got a afternoon nap feeling a while ago. other than that no side effects yet. I hope it works well for me....
I've tried the rectal meds. not much of a difference. I was in remission a while back and only taking asacol 3 times a day. I was even on a steroid enema before starting the oral. and it seemed to...
so I'm on Lialda,100 mg Imuran for the past month, and 80mg prednisone for the past month as well. in addition to lost of iron for my anemia, b12, and fish oil, probiotics, etc etc. with absolutely...
every person gets a different reaction, and all I can say is give it a try, I have been on Imuran for little over a month now with little improvement if any, and that is probably from the prednisone...
I'm about to start remicade. and if it fails I'm not taking another med again. its gonna be the knife for me. I'd really need to stress the importance of surgery if meds fail for people. there is a...
I think its the prednisone causing knee pain. I am so tired myself. woke up and my shins and knees ache like I've been running all day. I'm almost certain I get this from the prednisone and not the...
how can Crohn's result from a suppressed immune system? that makes no sense at all....they wouldn't give HUMURIA and REMICADE to Crohn's patients if that were the case. and they DO recieve relief...
I've got to tell you I put off going on IMURAN for a long time and regret every day. I ended up in the hospital because of a flare and anemia. I've been on it for about three weeks and I still have...
So here I sit in the er waiting room for 2 hours. Apparently a bug bite is priority. Told them all my symptoms and meds I'm on, still waiting. Rediculous...
a 12 day dose pack is a taper pack. 10mg and you work your way up to 60mg a day then taper back down to 20. even when I was taking 80 mg a day for a month it didn't seem to make the flare go away....
I understand how Imuran works. but the steroids are not working. even last year in a bad flare I was on 80 MG a day of prednisone without any relief. I really want surgery, just don't know how to go...
Don't blame the Doctors, unless they are a bad one and ignore your requests. Blame the Hospitals. they set the rates. I am at the point for surgery too. I am a prisoner in my own house. can't work,...
I am on Oral steroids as well, it was a 12 day dose pack. hasn't helped at all. they never do. I'm not too optimistic about the Imuran Either. 5 days after being on it I came down with a cold on top...
I am in the worst flare of my life. I have never been this sick or had to run to the bathroom to pass bloody gas in my entire 4 years with this disease. I started Imuran about a week ago, now I have...
my symptoms have been getting worse and worse, for about the past two months. I can't even leave the house, wake up at least 7 times a night to run to the bathroom, and 20 times a day. on oral and...
I've been on it for 7 days. and couldn't be sicker with my flare. of course doctors say it takes a month to three months to work. I think I'll be dead by then if it takes that long. I really just...
I've had two GI doctors and the one I am seeing now said to take 100mg of Imuran. I was originally prescribed 200mg. I never started it out of pure ignorance. but my doc I am seeing now said 200 is...
sue, who was your surgeon? that is the scary part. picking someone that won't mess you up too bad. I think It something I should be ready to look into and have a decision for when the time comes. I'm...
doesn't sound like I'm gonna get much relief from the reviews. I'm on Imuran right now. 7 days into it so its quick to judge. but if it doesn't work I'm on remicade next. I really want to skip to...
I'm not having any luck from Apriso, Prednisone, or steroid enema. I just started Imuran. about 5 days into it. not long enough to judge it yet. but I am still having alot of bleeding and cramps,...
DO IT!...
I've been on one nightly with no results, could be from how ulcerated my colon is. I am starting Imuran after I get my blood work back. there are doctors out there that stress the importance of...
I'm about to start Imuran, I never knew you could take that and Remicade at the same time. I'm really in bad pain, worst flare I've had in a long time. I also have diverticulosis, and worry about...
I've gotten worse since being on them for 2 weeks. probably as bad as I've ever been....