Hi All, I just want to say that I was so sick and almost died with my last UC Flare, my Ileostomy literally saved my life. Believe me it's now a year and 1/2 and it's not easy, but I keep reminding...
Brian, the reason why he kept my rectum and 3 feet of colon is in case I want to get a J pouch, that's what he told me. I have time to decide. But as I said, I was in an emergency situation, my colon...
I freaked also, especially when I started to see blood. I still have some UC in my rectum and little bit of colon left after my ilestomy. My surgeon gave me canada and i do them three to twice a...
Hi, I went through the same thing as Daffodil, and finally 4 months after surgery I went from a 45mm to a perfect 25mm and holding. I do notice sometimes that my stoma moves in more and out more, i...
hello everyone, Well 2 weeks ago I ate almost raw cauliflower was sick as a dog and had to take 1/2 day from work. Eventually everything passed through. Two days ago I had some raw nuts and some raw...
I went back to work after 9 weeks, but I was very Ill before I had my surgery so recovery was longer for me....
My surgery was on 2/29/12 and I was a little freaked out when I saw that too. Trench is a good analogy! It will close up mine finally did after 5 months....
They are and that's why I need to protect myself. Also I am having a knee replacement in October as soon as my Colon Rectal Surgeon releases me. I have had so many joint problems because of the UC...
NASCARon, See what we go through! OMG thank you so so much for the instructions. Renee...
Yes the same thing happened to me when I went back to work, it's better now, but I am always self conscience and always have blow outs. I know we are covered under the ADA while at work so I can't...
Good Morning All, I miss sleeping on my stomach so much but I really can't either. I can sleep to the side of the stoma with a soft pillow tucked under my rib stomach area to protect my stoma. Last...
Can one of you give me a step by step instructions, I need to hear like a fifth grader! Sorry still new to this...Thanks, Renee...
Hello All, Are any of you on long term disability with your employer, just want to know how many of us ostomates work in a full time job or were approved for LTD. I came back to work full time a few...
Butterfly42 I had my disease for 24 years, my flares got so bad the last two years that I was on and off prednisone and going out of my mind! I got so sick I couldn't even lift my arm up off the bed!...
Hi all I came here today for the same reason, how great is this! I'm 5 mouths out and the last 2 months I have been pancaking/lifting and leaks, what's the deal. This is my first summer with my...
ahh bluegrass I am sorry to hear that. I have time before I decide to do this......
I had a ostomy friend I meet on line and she did the same. She said all the mucus and stuff was reminding her of her disease and it was annoying. She said she couldn't be happier... Renee...
This is still new to me, but my surgeon left 6 inches up from my rectum if I decided down the road to do a J-pouch. After my 7.5 hour emergency surgery 5 months ago, I have no plans to go through 2...
I use the Cavilon spray, it works good. My supplies come from Byram too, I live in CT....
I agree with YYC, I've been eating a lot them, if I don't chew them I can feel them slip through my ostomy, so funny. It's been 5 months and i have more sensation. One day I felt like the faucet...
Had UC and suffered for WAY too long! I had an emergency ileostomy, recovery was long, but no pain after surgery because of all the medcations. I had no complications, well at least I don't remember....
My GI told me 8-10 times a day is considered normal. Now, I do eat a lot, when I eat less I empty less. Plus, I am like Windy City, if I feel any kind of heaviness or bulge I am in that bathroom. I...
It has been 15 weeks since my emergency surgery for an ileostomy and doing well, learning to love life again with Ulcerated Colits. I wanted to know how many time everyone empties their pouch a day....
Hi Rosemary, How are you today hope feeling better! Can you tell me who your doctor/surgeon is at Mt. Sinai? They are suppose to be the best. I will be sending up prayers for you. Renee...
Hi FaithandHope: I had my entire colon removed because of UC, have an ileo, then if I want a J pouch can be constructed and once J pouch is healed, then they reattach to the rectum. Did you have UC?...
What type of surgery are they doing? Are you getting a permanent Ileo/Colostomy?...
I have an ileostomy, surgery was february 29 and my hair is still falling out! We just recently redid our bathroom in white/beige tile and I can't believe how much hair is on the bathroom floor, let...
HI Dan, I mentioned Friar's to my ostomy she never heard of it, but I will go to their website. She also said that in a year I will probably be on a different system, newer products come out and your...
Thank you everyone!...
It's interesting you say powder first then spray. When I was in the hospital the spray was applied first, then the powder, but lightly, by the nursing staff, later on by my home ostomy nurse, and a...
yes it does dry sticky then I apply some powder! Am I correct in saying that if we use soap only use Ivory, that's what my ostomy nurse said! If my rash is gone do I still use powder?...
The spray I use is Cavalion......
WOW Dan, that's interesting, I think I'm using too much powder. I will do that next time and change the wafer afterwards. If my rash disappears do I still have to use the powder or can I stop? Still...
Well I was told to only use Ivory soap in that area or just plain water. I wipe the area around the stoma then I use a Barrier Spray, then let it dry and then put on powder (that's only because I...
Hello Everyone, It has been 10 weeks since my surgery and I'm back to work Part Time and happy and healthy so far! Imagine how great I'm going to feel in about 6 more months!! Yea! I'm having a...
Did you have a colectomy or an ileostomy? Wow your story in the hospital sounds similiar to mine.......
Theresa did you want the surgery, were medications not keeping you in remission? I wish I did surgery a long time ago, but my CR felt if the medications were working why do the surgery. Renee...
Hi Therea, My CR left my 6 inches of my rectum; anus area up - if that makes sense-, just in case I want to get the J-Pouch! My CR said we don't know if I am a candidate for the J-Pouch or not, we...
I am wearing a hollister on piece, and I heard that if the wafer gets wet, then the water can get in under the water and loosen it, is that true? I am change my appliance every 3 days, and I find I...
It has been 5 weeks since my emergency ileo for sever UC and I am still sore. I am only on 1/2 oxycodone and will be completely off next week. Just stopped prednisone today. I cannot believe i had...
I Killcolitis... I just recently had surgery 4 weeks ago and suffered 24 years with this nasty disease. My GI was very reluctant, but was always leaving the decision up to me which was no help to me....
Bluegrass, Yes the swelling in my stomach is going down, and the stoma is already shrinking. The hospital said all paitents go out of the hospital with a size 45. My CR also said that my stoma will...
Hi everyone: Well welcome to the world of leaks, I experienced a big one the other night and again today, it looks like I have been changing my wafer EVERY Day since I got home. My home ostomy nurse...
HI Everyone, Well I'm on the other side. Saw my colon surgeon on Monday 2/20 as all of you might know. Once he saw me in the office he said I needed to be hospitalized immediately, very dehydrated...
Hi all, Saw my CR yesterday he said I need to be hospital, going to many times with UC. I will be admitted in a few hours, the doctor will try to calm my UC down with intravenous IV's and a iv food...
Hi all, As you may know I'm now dealing with refractory UC, I am in a major flare and have been out of work for about 3 weeks, Doctors have added so much medication to my cocktail nothing is working....
Ddd, I am concerned about the high percentage of problems with the J pouch, I hear it a lot. I have meet two people in my local area who had problems with the J pouch and then they had to revert to a...
Hi all, How many times do you empty your ostomy bag/ And do you get up many times at night to empty it. Don't know if surgery will do permanent ileo or J pouch, depends on what i am a candidate for....
Also, how long is surgery? Do they remove your colon laproscopically or open incision? thanks, Renee...
Gilda, It's funny you should mentioned depression, I am in a severe flare and can't wait for surgery. One of the nurses at my GI's office said that they were taught in nursing school that after...