Ending, sounds like you had it done here in WA. Just wondering where at as I am likely heading down that road sooner then later. (Remicade doesnt seem to be helping)...
I think that is the case....just was going thru my paperwork and my doc did sign the slip as premed with benadryl....ugh so frustrating....I have to use a 3rd party infusion service so I can have it...
Thanks! They infusion nurse was very close to using an epipen but I was alert enough to say no to it since I could fell the Benadryl working otherwise I would have ended up in the hospital myself. I...
Had my 3rd Remicade infusion yesterday and within 5min of starting it I couldnt breath and started getting really red and light headed. Nurse gave me benadryl via IV and within about 5mins was...
Have you had labs done to check your levels? Sounds like you are anemic as well. I know I am and am at this point getting Iron + Remicade infusions to try and control this flare....
I have the exact same issues. I split my dose for 5am and 2pm yet by 11pm the D comes on strong and from 3-5am im wide awake having to go every 30mins~ Its so frustrating not getting much sleep and...
So had doc do all labs today...he doesn’t seem to think it’s anything other than the flare being stubborn and wants to wait for next remicade infusion (3rd before adding any other meds) with the...
I know when my doc tried imuran, i started to feel tired/disconnected/and nausiea all right away and upon upping the dose to 150 ended up not being able to eat/drink anything stoped it right away and...
Yeah, I’m going to push for more tests next visit. I am also curious what things like my vit d are at so I can try and figure out what else i need....That’s a good idea on the flagyl/cipro as they...
I had tried canasa but that seemed to make things worse so doc x'd it. I should ask about the steroids. Pretty much been on 60 since the start of the flare :( i hate it but not much choice right...
So last 2 days have been really bad for me....have been in a flare for about 1 1/2 months now and doc has me on 2nd dose of remicade as of last thurs...feel noticeable diff but still having 10+ D...
Movi-prep isnt bad i just did it... tip is get it as cold as posib not frozen drink it with a big straw as fast as you can for each glass then per my docc chase with a glass of ginger ale after that...
I wish my orig GI doc had! I started with asacol and went thru a year of flares every month or two with my UC. Finally my new GI moved me to imuran but I had a bad reaction and am now on my 2nd dose...
Like others are saying I would try and get back on Remicade asap. Here in the states they do one dose then another 2 weeks after that then 4 weeks after that and ongoing every 2months to maintain. It...
My doc pulled me off of imuran due to it causing so much nausea and moved me to Remicade. Have you already tried that?...
Yeah my last GI doc wouldnt move me past 5-asa meds after almost a year of flaring finally chged doc he moved me to imuran had a bad reaction and now on remicade. Im sure it'l be fine just try and...
your infusion center should also know that info?...
My doc tried imuran for me since all the 5-asa's dont seem to make any improvement. It gave me a lot of nausia and pain so had to stop it after a week. Now getting remicade so hopefully that will...
Also perhaps you need IV pred to get into remission? Have you been in the hospital for this flare? I know my last one 60mg wasnt enough oral to start it but after 2 days of IV it has got it going...
For me its when I start failing on the fluids side. You can only take in so much water etc when your not feeling ok before just need that helping hand. Expensive yeah but better then being sick...
also id suggest a light diet at least 2 days before the prep makes what comes out lot less painful IMO...
I just had my first infusion today. Might be my mind but the urgency for me seems to have gone away today. I still have had 5-6 movements since it but the question will be if i wake up at 3am like...
I just had 2 do this as well. The movi prep wasnt going to kill me but i did take zofran (sp?) about a hour before. I also took a glass of the movi prep drank as quick as i could and then drank a...
most insurances will cover vsl#3ds i think is the perscript ver might be worth looking into....
Im in the same boat. Tried all the 5-asa, all blood tests said imuran was fine but had a bad reaction right away (sick to my stomach on 50mg, and when upped to 150mg couldnt function) doc did another...
Like others are saying see what your state offers. Here in Washington State, I had lost my job but was under a severence plan that kept insurance for 6months. Was Diag with UC then new company had...
just south of Seattle, WA here...
Thanks for the info! Thats what my fear is, my last GI doc didnt seem to think it was crohn's from the orig diag but then again it took over a year to give up with the 5-asa meds so i wonder how much...
I have tried Canasa and didnt get any relief before. I will ask about the enemas instead. I had brought up Rowasa to my previous GI but he quickly shot it down due to the ammt of inf. Im guessing...
Yeah the only thing the doc could say was it is normal to have more issues at night. I have been on 40mg in morning and 20 in the afternoon due to feeling like it was wearing off around 2-3pm. That...
Hey All, Sorry in advance as I’m sure this is hard to read/follow Been reading on and off for awhile but finally joined looking for some advice/venting..... about a year ago ended up having really...