Hey just wondering been getting diarrhea for 2 weeks foul smelling but with no blood all my other flares involved blood anybody help...
Hey I am starting humira next. Week just looking for good or bad xperiences on the drug before I start any replies much appreciated...
I have been having constant tingling and strange sensations in hands and feet for 3 months now when I say strange sensations a feeling of hot and cold and sometimes stabbing hot pains like hot...
I have suffered of anxiety of and on for ten years 6 weeks ago anxiety came back into my life have had tingling and strange feelings all over my body it lasts all day long and hasn't gone away doctor...
Going for my third remicade infusion next week and it hasn't started working yet. Just wondered how long it can take before it starts working starting to think it won't work for me...
Just had my 2nd remicade infusion last week and not feeling my symtoms improve just wondering how long it can take to kick in. Maybe I should be more patient just taught it would kick in quicker....
I have enough of this disease and all the meds that come with it. Sick of imuran, remicade and mezavent and never feeling well or having energy. Also sick of all the side affects of the medicines....
no not numb just cold never had cold feet before no rashes as of yet. Dont know if I should ask doctor is it normal for this with remicade...
This is going to sound strange but since I got my remicade infusion last week my feet have been cold constantly. Has anybody ever experienced this or is it just me thanks...
Hey well at the end of the road for normal medication tried it all but its remicade time. So afraid of this drug doesn't seem natural to me so worried of bad side affects have young family and don't...
think i took my daily dose of 4 mezavent tablets twice today which means i took 8 dont know if this is dangerous please let me know...
Hey guys thanks can I ask u do you feel exhausted some days with this really tired and pale today. Feel like this chrons or uc affects my whole body with strange aches and pains forget what its like...
Hey only started enemas 3 days ago don't feel great on them very tired and drained but that could be the UC 2. I'm on 2 salofalk 4g a day and 2 predfoam enemas a day,...
Hey guys taught I had UC for the past year since my scope last year. Been in almost a constant flare since and doctors couldn'tget a handle on it. Went for second scope yesterday and now they are...
.Just before the scope I was on 150mg imuran a day and 4 mezavent tabs a day plus countless steriod periods during the year. These Enemas I dont think are suiting me mad noises in my tummy and feel...
Hey guys had colonoscopy done on tuesay and I have been put on enemas 4g salofalk twice a day predfoam twice a day. I already on 4 mezavent a day and 100 mg of imuran. Just wondering since I started...
Had a colonoscopy 2 days ago and have cramps in my stomach since. I usually have stomach pain with the ibd anyway but these cramps aren't going away and a feeling of discomfort has anybody else...
Hey guys have UC a whole year now even though I have had good days haven't felt myself since this all began. Have universal colitis and been flaring pretty much all the time. Been on steriods 3 times...
Hey I'm on 150mg imuran a day and 4 tabs of 1200 mezavent but still flaring also been on steriods 4 times in one year for serious flare ups. Doctor is talking about getting injections but don't know...
hey guys I live in Ireland so my health care is free so think doctor is thinkg oif my best interests. Does anybody else flare when there on alll the meds I am on. Just seems pointless taking these...
Cheers guys that really helped think the doctor just wants to see what stage I am at and see what further treatment to use. I know UC is for life just hope it will one day go away for a period of...
Hey guys have bad uc a year now on mesalime and imuran bu still having flares. Doctor has ordered another colonoscopy to see where i'm at I am just wondering is this normal procedure i taught after...
I get aches and pains just from the uc its very common I'm on imuran and mesalime but had the pains before starting tablets they have done studies and joint pain is very common with uc...
hey pauly and the walrus I find imuran ok been tired alot since I started it but its alot better than feeling the way I did. Wasn't to sure about going on it at fiurst but I had no choice in the end...
good to see some people from Dublin have we not got an Irish site like this. I am on imuran and still getting a flare just started flaring last week nightmare had a couplke of drinks over christmas...
hey just wondering anybody in Dublin Ireland to discuss the care they are getting here...
Hey guys my dose of imuran was upped to 150mg a day. I am 27 year old man since theY upped the dose I have had constant nausea and feeling like I am going to vomit. Anybody has this problem before...
Here mate I am with you in the same boat small daughter amd girlfriend no tablets working for me and sick of taking them. I don't think this is going to go away either think some of us are just...
Hey I don' avoid any foods I've tried to not eat certain things but it did'nt make any change. Also alocohol if your flaring maybe you should stay clear but I think it down to the person. Sometimes...
Hey little buddy I am with you I have had enough of the UC it is destroying my life to. I am the most positive perwson you can ever meet I haven't let UC stop me doing anything but deep down it has...
Hey I'm living in ireland and surgery is up to the doctor ain't an option unless they want you to have it...
Hey I am on imuran and mesaline 150mg imuran and 4 tabs of mezavent so tired all the time and the usual no energy just enough to type ha ha. What country are you living in notsosicklygirl...
Hey guys I have universal colitis got told last November. Since then its been an erray of steriods and imuran and mesaline. I mean with all these tablets you would think I'd be feeling better guess...
Hey guys been having a bit of a flare since doctor stopped my steriod treatment as usual after steriods stop falres begin. Started 2 months ago on imuran get up to 150mg a day starting tomorrow does...
yeah what a bitch this disease is I'm only 27 and can't go and have a few beers with my mates crazy to think I was healthy and happy a year ago. Kind of makes you think what life was like before uc I...
Just wondered cause I'm young and going on holidays will alcohol affect my uc the doctor told me there is no evidence between alcohol and uc getting worse help need advice....
Ah thats good advice I'm naturally positive until i realised I never had anything to be negative about until I got uc. I have accepted it just didn't expect all my energy to be zapped from me just...
Yeah I guess the only problem I have is since I start taking it I feel really tired. I'm very optimistic that my doctors know what they are doing but it is a grey area over here. Does this disease...
yeah guess I need to let it work but it doesn't seem to improve my uc. I'm living in ireland don't know if the doctors here are as advanced as they are stateside. Seems strange to be taking a drug...
thanks alot I hope it does get better You can start to lose faith with the doctors. The imuran was suppose to be increased but the white cell count wasn't great so he is holding of increasing it....
Hey been tired is big part of this illness. I'm 27 use to run marathons and everything before I got this last year some days are better than others but Im always tired hope he is ok...
hey have pan colitis as they tell me so its everywhere in the colon which I guess is harder to treat. I'm on 5o mg a day Imuran also on 4 tablets of mezavent they have me on a low dose of Imuran...
Hey just wondered has anybody felt strange and tired after taking imuran. Feels so weird taking a drug that lowers your immune system when drugs are suppose to do the opposite. I used to be a good...
Hey I think it does have affect on your job lifestyle. When you are in a flare up working can be pretty difficult so you will probalay miss alot of days if your uc is bad. Also your energy can be low...
I like to have a few beers after a long day at work to relax and to chill out. I am very healthy jog every morning and eat well. Got the bad news a christmas that I have pancolitis. Just wondering...
Doctor wants to put me on imuran. Can anybody offer me advice. i'm a little bit nervous about taking such a drug any responses would help me alot thanks....
Hey nobody else see's to be on mezavent so can't see has it ever worked cause seems to be not having to much difference to me since i stopped taking the steriods....
Thanks for advice. I am on 4 1200mg of mezavent not many people seem to be on that drug hope they ain't trying to see if it works on me. There not to keen over here to have you on to many tablets at...
im just on mezavent 4 a day they took me off steriods I live in ireland there not to keen over here to keep you on steriods don't know if there giving me enough treatment....
Hey everybody just wondering is there any end to uc. When I stopped taking the steriods its back to square one does this always happen. Also does anybody have trouble drinking alcohol is it a bad...