Haven't posted on this site forever, but just got on and I feel for you! I've been through this. flagyl is definitely powerful stuff. I had all the side effects! But if antibiotics are going to work,...
I haven't posted in a while either. Adjusted my dosage of ldn to 3mg (at 4.5 my liver and/or metabolism was too sluggish to clear it, so I was blocking the endorphin production too long). It has...
Hey there, I'm in the same boat. I have been doing ldn, which has been helping, but I have had a fistula for a little less than a year. have a seton, but am thinking of doing humira to see if it will...
Totally! When I see a normal bm I want to crack a bottle of champagne:)...
Thanks for posting. I'm curious about this. I understand that opiates don't work while the ldn is in your system, if you take them does it make you sick? I have heard some people say the ldn clears...
Hey Eric, for the fecal transplantation there is a clinic in minnesota that does it for the treatment of c dif. The success rate is ridiculously high....
insofla, thank you! I'm happy to hear that you are doing so well. I think transdermal makes sense, because most of us have so much trouble absorbing anything with the state of our intestines. oral...
Thanks Endeavor! It's just so frustrating, it helps to hear from someone else who's dealing with it. Tea tree oil is a good idea, I'm going to try that. I use the epsom salt sometimes, and I really...
Just checking in at 2 and 1/2 months, I'm doing really well. Going to the bathroom normally, sleeping well, energy is good. The only down side has been an ongoing battle with an abscess/fistula, so...
Hi all, I have been experiencing some abscess fistula drama, and would love to get some feedback. I am taking ldn for crohns, and it has taken me out of an ugly flare. Unfortunately, last summer I...
Lima is known for world class seafood, the best sushi, the best ceviche, the best chinese food. They are known for multitudes of varieties of potatoes and corn (sadly not scd) There's lots of roasted...
http://preventdisease.com/news/articles/birthday_linked_to_crohns.shtml Who knows? I had seen this in harpers monthly, and found the link. It's just sort of interesting. This study in Denmark shows...
Oh god, I feel for you. I had a 6x8 centimeter abscess lanced last summer. How did it get that big? I have a really high pain tolerance, and by the time it got unbearable my doc put me on antibiotics...
hey blueclassring, When I went to peru, all of my friends had food poisoning at one point or another, so my bowel function seemed exemplary by comparison:) That's a great goal!...
Peace and Harmony, so glad it is working for you too! Thanks for posting, I was hoping you would follow up. Sally, I was in a really bad flare when I started than made it worse with a candida...
Awesome!!!!!!!! I am so happy for you! I'm doing well on it too. This stuff works!...
have you considered low dose naltrexone? I have been taking it for 1.5 months, brought me out of a flare. incredibly minimal side effects, and is actually used for many people with cancer as well...
Good luck Sally, please keep me posted on your progress!...
For me it changed the focus of my career. I'm a set designer, and while I still take jobs, I used to travel all the time. Now I work in town, and started my own stock photo business. I'm also going...
Thanks Bee! I have a fistula to deal with too, so I definitely can't see ldn being the answer to all my issues, but it's a good tool. I'm hoping to get the crohns/colitis in solid remission so I can...
I'm a pretty healthy, close to scd gluten free eater, and though I was shocked by the ingredients in (corn syrup etc.) ensure, when I was in the hospital last time I feel like it saved me. Normally I...
Hey all, just wanted to check in and let you know that 1.5 months in on ldn, and I am heading into remission. No more blood, solid stool. I am so thrilled. I feel like every day I'm just a little...
Checking in, a little over a month and a half on ldn, no more bleeding. bms are more normal than they've been in a very long time (though still look somewhat constricted) Feeling good. I'm also...
Nat, this is awesome! Please keep us posted on all the details going forward...best of health!...
Hi Nat, No, I haven't tried them. I'm newly on ldn, and having some success with that, but I was very interested in the worms. It just seemed to complicated to get them, and of course it's expensive...
Thanks Insofla, good information! how did you know the avicel was an issue? interesting about the transdermal, can they do that at any compounding pharmacy? And thanks for clarifying about the...
I was initially diagnosed with colitis, but now there is reason to believe it may be crohns, so surgery isn't a good option, but if it was, I would go for it. My aunt contracted cdif colitis in the...
Maybe...but I live in southern california, and I tend to flare in august. For me I think the heat and the smog are triggers! Strangely though, even in Los Angeles I am vitamin d deficient, so I...
hey max, As far as I know, in all the jill smith studies (the primary crohns research on ldn happening at penn state) The only medication people were told to wean off of was remicade, and I think...
The main provider is out of the country, and they don't ship to the united states. I was emailing them for info. There is a place in mexico as well, I believe. check out wormtherapy.com for tons of...
Thanks! I actually use coconut oil on my skin already because it is the best, cheapest moisturizer, but strangely, don't ever eat it. I don't know why, because I know how healthy it is. I'm going to...
I'm so happy to hear that! How much coconut oil are you taking, or have you just started to replace other oil with it? Whatever it is, great news......
checking back in...it's been 3 weeks, and I'm getting some traction on this nasty flare I've been in. Hoping the ldn is responsible!...
An update. I'm at week three, and seeing some improvements. I initially tried to take a candida cleanse that ran through me, made me very sick and made my flare much worse. But over the last two...
I also have a seton in, and it keeps the pressure and pain from the fistula (which was a 6x8cm abscess originally) to a minimum. Doesn't bother me. My doctor wants to do the repair, but I'm in no...
I did a wheatgrass cleanse years ago, and found it very helpful (pre crohns) but it also made me hate the smell and taste of it! Literally after 6 years, starting in december, I will grab a shot of...
definitely get worse at that time of the month, I feel for you!...
also fish oil, or a spoonful of oil with meals will help a little, and stay super hydrated....
does align have saccrymose boulardii in it? I was told that strain survives antibiotics (by an infectious disease specialist, so hopefully he knows what he's talking about!)...
thank you for the info j_liz, please keep me posted on your progress...hope it helps you this time!...
Figured I would update this periodically, in case anyone is considering this treatment. No noticeable pro or cons re: crohns/colits this week, but something interesting did happen. I have had a weird...
I'm in Los Angeles, and my dr. just prescribed this week (and as it happens, recommended a compounding pharmacy in beverly hills that made it for me same day). I was hesitant to ask her, but she was...
Hey Bee, I am normally on the colitis board, but I just started ldn 3 days ago, and I'm really excited. I have a colitis diagnoses, but I recently had an abscess and 2 fistulas that made my doctor...
I think it would help him to try to eliminate some things from his diet that a lot of people find to be triggers and see what happens. A lot of people find that dairy and gluten in wheat barley and...
thanks, I will check the crohns board! I have colitis and never tested positive for crohns markers, but I had had an abscess and fistula recently that made my dr. reconsider the diagnoses. My dr. was...
I know I've read a few posts about people using ldn. I just started two nights ago on a 4.5 dose (was surprised that my gi not only said yes to prescribing, but knew a local compounding pharmacy in...
Hi Hoshi, I am going to try getting pregnant this year, so I've been asking lots of questions of my gi, my colo rectal surgeon and my gyn. I have had an abscess/fistula, so my doctor tells me a c...
your doctor will see right away if there is ulceration/inflammation in your colon, and hopefully get you on an antiinflammatory even prior to the biopsy results if that is the case, and possibly a...
We live in Los Angeles for our jobs, but I would love to live in Santa Cruz. I grew up in Cleveland and Chicago, and don't miss the cold weather at all, so I agree with the other california...
Able, yes, it would be great if drs. said 'there is no one diet that works, but diet definitely plays a role in autoimmune disorders. do an elimination diet to see what works for your body' I...