I want another one but I had already had trouble getting pregnant when I was normal. Now add in UC that will not stop flaring and medication does not help. I forgot to take my medication for a couple...
Just wondering since I have. I never had glands swell until I got UC. Every now and then I get one that swells but goes down and I wonder if anyone else does as well....
I read somewhere that a person had a test that proved they had UC yet there was patched of inflamation in the colon....
Yeah I know there are more drugs out there but I do not want to take them. Just reading the warnings about liver problems, deadly infections and cancer gives me cold chills. My doctor hates steroids...
Ok, thanks....
Yeah I have wondered how long and bad it would hurt with having the anus removed. I am going to have a perm. Ileo....
In 2005 I had a diverticulitis rupture and I got a massive infection. I had a recesection done and the Dr had to rince of everything because infection was everywhere in there. I remember the pain was...
I agreed to let the Dr try one more medication before a surgery consult so he called in Colazal. I am not optimistic since Lialda did not help Rowasa did not help and now cortenema's are no longer...
Oh my you threw up with miralax? I am sorry. Did your doctor give you a pill to settle your stomach? Mine did but I never needed it....
My GI was the same way with me. He brought up in immune surpressants but when I told him my reasons for not wanting to take them he said he did not blame me and many others refuse to take them....
Thanks. I am afraid they will say you are not in urgent need of surgery so lets get the anemia under control but how can that happen while I am still bleeding? I am already on medications and they do...
I have not gotten an appointment yet but my GI has said that my hemoglobin is pretty low so that makes me nervous. We decided to have a colonoscopy first to see what is going on. Well I no longer...
I had a colon resection done in 05 with a temp Ileo. The pain was really bad at first but I was dumb and asked to be taken off the morphene because I was scared I would become addicted. Once I got...
My hips hurt but I think it is my colon and not arthritis. I had really bad hip pain a few years ago before UC and it turned out to be diverticulitis that was about to rupture....
Anyone have problems with anemia and still get surgery? I have heard that surgeons will not want to do a surgery with a low hemoblobin. (Mine is 8.9) I am on Iron but my colon still bleeds a lot so I...
Well the scope itself was the best one I have ever had, ever. I had my own room to wait and for my family to wait. It had a TV and bathroom just like a small hospital room. They took me back and were...
Many people here say that when it is bad and you want the best you go to Barnes in St louis....
Well I am glad it is not unheard of then....
Our local hospital is ok but it is a 3 star and my mom was not happy with the care I had last time I had a major surgery although I saw nothing horrible. Then again my mom was a nurse on the same...
I will pray you have a good visit with the surgeon....
I would not take that at again. I would flat out tell your doctor you cannot tolerate the side effects and you want surgery. If he says no then find another doctor. Go to a different city if you have...
I discovered that when the miralax is mixed the night before there is no yucky flavor to it but the batch I mixed a couple of hours before drinking did have some aftertaste to it. I dont get why a...
so you have no other city you can go to in order to get surgery? I was going to go to my family doctor and go to colombia if I had to....
I have painful spots all over but when I press on them they are not tender but if I press on my left side where I have lefts sided colitis it does feel very tender. I am also assuming it is referred...
My last colonoscopy They gave me this jug of fowl salty stuff. I was complaining to my mom who told me about her prep of miralax mixed with gatorade and dulcolax pills. I was very naughty and did not...
I cannot imagine the worry and stress you are going through. I have a 5 year old little girl myself and when she is ill I know how worried I get even though I know it will pass. It is one thing for...
Wow what a rude doctor. My doctor gave me a list of medications that would treat my area of inflamation with their side effects and how they work then let me decide what I wanted to try. He has...
Yes I sure am! What a weight off my shoulders knowing I can say the word and he will get me an appointment with the surgeon....
Chef patrick Perhaps you could put your harness on and have the stoma put where it would not interfere with the pouch....
I have one. My doctor will push surgery before steroids. He says they are horrible and he does not like giving more then a short dose. My doctor does not like the immunosuppressant drugs either, but...
If it were me I would do it. I had a temp ileo in 2005 before I had UC. It was not fun at first. Finding what works and learning how to change my wafer was hard but once I got it figured out it was...
I was so nervous going in since I planned to talk to him about having surgery if the anemia did not get under control. I am not very sick so I did not think he would agree and it would be a lot...
My insurance does not require a referral but I have heard of surgeons not doing the surgery if the GI does not think it is needed. That is my fear....
Thank you, yes I do believe you have told me that before. I am really hoping that my GI sees it that way too. Although I did find out that my family doctor understands completely and agree's with me....
Thanks, I too plan on getting a perm. ileo. I have had a temp before for a couple of months and I did great on it. I hope to have good news tomorrow. I hope that they would be more apt to do surgery...
The thing I worry about is I see all the different things people try in order to feel better only to see a return of symptoms. I do not want to do that. I do not want to be on steroids for more then...
I have an appt. with my GI tomorrow. My colitis was at the point where it would get worse now and then but overall was pretty tolerable. I found out I am anemic at a regular doctors appt. I will not...
I have an appointment tomorrow where I plan to ask about that. I am scared he will say no way you have to be very sick and go through every drug before you get surgery....
I dont have pain, I have a lot of discomfort from the spasms during bm but not pain....
I was telling my mom how tired I was of UC and now anemia. I told her how I was not in pain very much but the accidents were terrible but at least they only happened at home. SO my mom says if it...
I got pretty paranoid about it so I took the plunge and googled it. I usually do not do that since google can scare 10 years off of my life but instead I found some relief. I found that certian...
I wonder if maybe he did put it high. Maybe that would explain why my liver enzymes were high during that time too. My family doctor freaked out about it but the surgeon did said it is common....
Well that is good to hear. I remember I had trouble with an omelet because it had a ton of mushrooms on it and I was grossed out by the mushroom coming out whole. I wonder if they would go through...
Back in 05 I got a temp Ileostomy due to an infection that ruptured in my colon. When I was getting ready to start regular food the surgeon and the ostomy nurse said I could have a regular diet. I...
Thank you. I have an appointment on Oct 5th with my GI. He has already said he wants a repeat colonoscopy to make sure it is the UC causing this. I plan on telling him if it is then I want to be...
I too have seriously thought of surgery several times. I am not in pain but I do have accidents and many trips to the bathroom every day. Then once I am on the toilet I have to sit there forever...
My hemoglobin was 8.9. What is beetroot?...
I tried ferrous sulfate for anemia and oh my lands that was awful. My stomach hurt all the time and I got lightheaded after taking it. I called the dr and he said to just go get a different iron...
I use it and like it. I saw improvement right away but I have never been completely better. But then nothing seems to make me better....
Yeah the doctor told me to get a different type of iron. I hope that this anemia is actually from a few months ago and it is resolving. I actually had symptoms of anemia a few months ago but figured...