I was having a very bad flare, up to 20 BM a day, lost 18 kg in 5 months..steroid resistant .. But after the second infusion of Remicade, the blood stopped, the pain had passed with the first...
I am currently following a naturapath, but and the same time since I have just come out from a severe flare, twice in hospital with blood transfusion, no improvement with steroids etc etc, I am still...
So sorry you feel so bad!! I do understand you!! TG...
Remicade started working after the second infusion, now I have had my third infusion, after four weeks, and I will be waiting for the eight weeks.. I think it is a bit too early to say if remicade is...
I started to' see the difference, and mainly stopped cramping and bleeding, after the second infusion, on Tues I had my third..I always get very tired the day I do it.. Let's keep fingers crossed for...
Wow, I am really impressed! Finger crossed!...
I noticed a difference after the second infusion, the day after...just stopped bleeding and BMs from 6-7 to 3- so definitely a success for me All the best, TG...
I had my third infusion yesterday, feeling a bit groggy, but since the second infusion I stopped bleeding and started eating ALMOST everything again, some foods still off limits such as cheese,...
Great news!! Thanks for sharing!...
Colonscopy in august, all my colon.....
The day after my second REmicade infusion, I stopped bleeding and I am definitely feeling better, on Tues I have my third infusion. I had been flaring quite badly since Feb 10 and steroid resistant...
A fasting of a week as also been recommended by my naturapath, liquids are admitted, but you have to be medicine free, he thinks it is a kind of reset of your body. I never have had up to now the...
Thanks, I will find out on Tues My Gi is in Milan, and some times I am under the impression he is a bit too conservative, but on the other hand I do not have 100% faith in Doctors in general, so I...
Never heard of this therapy here in Italy, I have to look it up to understand more..so on Tues when I see my Gi for third Remicade/Infliximab infusion I can ask him and have a laugh...I bet he never...
Thanks for all the suggestione! I had my hair cut of about 15 cm...still very long..but i need to' get slowly in the idea of having it short... :scool:...
Yes I would agree with the enemas, here in Italy it is then first thing GIs prescribe .. Did you take into account any food relation with the BM? I keep a food diary and BM diary and some very...
I noticed yesterday my hair loss...quite abnormal...I am on Remicade, on Tues I will have my third infusion..and I have been on Prednisone since the end of August, now tapering down.but my last flare...
Congratulations!!!!!! Glad you managed!...
Sorry, whqt is FT? Thanks,...
Yes i have used it before passing to classic steroids..and at the beginning it hqs been quite good ...but I live in Italy ...:-) If you need any advice on the Italian best centrex for UC. Just let me...
I use Reiki to minimise the drugs side effects...if I do not treat the steroids with reiki I suffer from insomnia .. At the moment I am following also the advice of a naturopath. And my energy level...
I will think at you tomorrow....really best of luck!!!...
My veins harden due to the IV iron, this is what they told me at the hospitals..at the end of the recovery they had difficulty in finding veins for my IV steroids and for the Remicade..the espression...
I was so bad that I had to have 4 blood transfusions in a month, plus IV iron infusions..my veins were devasted.. Now I am on minerals given to me by the naturapath, plus I use fresh lemon on my...
Oh please, get out of that house, plan a new life with your kids, start studing again, see a counselor if you manage, you need to' build up again your selfesteem and your kid's too.. And all your...
After one month of Prednisone 50 mg, plus steroids enemas, and IV steroids in hospital with no results...I had to accept Remicade...l was so frighten ..well after the second infusion I finally...
I stopped bleeding after the second infusion, but I am on Prednisone as well, tapering down...still 3 BM a day, on the 9th November I will have my 3rd go...but I know it can take longer, my GI told...
I get almonds and rice cakes with almonds butter...
No coffee for me either, it helps to have less cramps. Energy level: I have had big increase of energy levels, after very bad flare lasted for months, eating fresh pollen. You should see if you...
Thanks Downgarden!...
I started right away with two packs a day, I was not on probiotics before, I only had bloated tummy and slight pain on third day...
Yes I have red of many that mix it with juice, but the normal VSL#3. But I imagine that DS stands for double dose...it is not availablen here in Italy..:-) why do you plan to start on 1/4 packet?...