If I were to picture what having an ileostomy would be like, or being with someone with one prior to mine I might be a little weirded out as well. Having one for a year at age 23 and now I have had a...
Thank you, I have been part of that site for quite a while and feel I get better feedback from this site and the no colon and still rollin site. But maybe I will post something there as well....
I am 38 weeks pregnant with a Jpouch and after months and months of trying to figure out if I am going to deliver vaginally or via c section, I still can't figure out what to do...
I don't visit the UC page much anymore because I typically go on J-pouch.org. I stopped by the page again to see if there was any advice I could give any of you still living with UC and it felt like...
I took imuran for about 3 years and didnt have many side affects but ultimately i recommend surgery to everyone. I feel and live the best life i could imagine and i never thought i could feel this...
I have had a J-Pouch for 3 years, i am 26 years old. My husband and I have been trying to get pregnant for 13 months now. I am really starting to get worried but my surgeon says i shouldnt have...
Hello everyone, i have had a j-pouch for 3 years now and i have never had any problems. However, the last 2 days i have been having a bright red blood when i wipe but i dont see anything in my stool....
I still go about 8-10 times a day and i had my takedown 3 years ago. It was 15+ at the beginning tho. I basically go every time i pee or anything. If i want to go to the bathroom i can. So before i...
I had my ostomy takedown jan 09, can't believe its been 3 years! I am basically a normal person again! I have never had an accident, many close calls tho. I can eat whatever i want. If i eat spicy...
I always took the enema and layed on my stomach for about 10 minutes after i "used" it to give it a little bit of time to settle a little bit....
Wow, i have never had anyone treat me that way before!! All of my family and friends and even people at work have always been so supportive and understanding to me and my extra needs. I think maybe...
Pinkerton- I got diagnosed with UC at age 14, i tried every medication and took 26 pills a day for over 8 years. When remicade quit working after about 4 infusions i was told surgery was my best...
Idont know about the iron saturation but i know that i was diagnosed with a fatty liver a few years ago after i had my total colectomy and they said over 75% of people have a fatty liver so its...
Hello! Reading all of your responses i can relate to so many of you and some of you have already said some of the things im going to say but to you DWAS, i can't even begin to tell you how happy i am...
Im looking to find or start a support group for Chrohns and Colitis in the northwestern WI area, does anyone know of a current one? Or even in the Minneapolis/St.Paul area?...
Im looking to find or start a support group for Chrohns and Colitis in the northwestern WI area, does anyone know of a current one in this area? Otherwise in the Minneapolis/St.paul area?...
It worked for me immediately! The same day i was feeling better! Although the only thing is that it worked for the first 3 infusions and then i started getting symptoms back but as someone stated...
I had my reversal Jan 09 so i have had my jpouch for about 2 years now and i still go about 8 times a day. It stared off about 12 and has gotten less and less but the urgency is still a little bad...
I was very sick when i had my surgeries so i had to have 3 surgeries. I had to have a temp ileostomy for a year because of some other complications. I had my reversal a year later and now have a...
Thank you for the feedback!! I am more worried about the surgery affecting me and getting pregnant. From what ive read since i had the surgery it increases my risk by 48 percent to not be able to get...
The gas slows down a lot after a while. It was a lot more for me in the beginning. Once you have a lot of output going through there the gas will lessen.Im a waitress and i though my customers were...
Hey! Welcome to the site! I am 25 years old. I had UC for 10 years and about a 2 and half years ago i had a total colectomy. I was very ill due to the prednisome, imuran, asacol and remicade all not...
yay!! Your disease colon is out!! I have been reading your preious posts and im so glad you decided to go through with the surgery!! I had UC for 10 years and had a total colectomy almost 2 years...
U will be very happy to finally have that diseased colon out of your body!! After 10 years of UC i had mine removed in Feb 2008 and i cant believe how great life is again!! Are you going to be having...
I was in the exact same boat as you!! I had to have my ileostomy for a year due to blood clots after my first surgery, so that gave me time to really get used to having the bag. I am a petite girl...
Hello! For all of you women out there with UC i have a pregnancy question. I had UC for 10 years and was on obviously a ton of meds the entire time but i was on prednisone for four years of that...
This is totally normal! I had it as well and was very confused because of the same reason you are, i didnt understand how if my bowels werent attached to anything how i would need to go. Its just...
Northern Wisconsin! I have a j-pouch! Its pretty great!...
Hello! Crab is my favorite food and i to was a little worried. From my experience it goes through me very fast! I wouldnt even be done eating and i would need to go empty my bag because it was...
Hey just wanted to let you kno i did have some butt burning and went to the bathroom about 10 times a day for about a month but it did NOT take me even 2 months to feel normal again and i had my...
Hey! So i am 24 and female so i think that you can relate to me pretty well. I wont go into a ton of detail of the 10 years that led up to where i am but i will tell you what my life has been like...
I was on Remicade for 2 years and although it worked quickly it wore off fast and the times inbetween when i would need an infusion would get shorter and shorter. Remicade was my last option before...
I was on asacol for about 6 years and then i suddenly started losing my hair. I started noticing a lot in the shower and when i would brush my hair a ton would come out with it. I told my doctor and...
Another thing i did forget, have you tried rowasa enemas or suppositories? Those did help me for a while. Amber...
Hello! I had been diagnosed at age 14, was on prednisone almost the entire time and tried various drugs like imuran and asacol but they only worked for a short period of time. They decided to put me...
Hey! I dont have an ileostomy anymore because i had a reversal but i had my ileostomy for a year. At that time i was only 22 years old and so ofcouse that wasnt going to stop me from drinking. I got...
Hello Leon-Alot of people have already give you advice so i will just tell you a little bit about my experience. I went in for my reversal Jan 9th of this year. I went in the morning of surgery and...
i gained a lot of weight from prednisone, very quickly and i have horrible stretch marks on my thighs, stomach, hips....i have tried every kind of skin cream or OTC product i can find and they have...
Your MIL is nuts! When i read your post i was completely confused! She has no idea what she's talking about! Its actually kind of funny. I slept in the same bed as my fiance and slept in every...
Hello! I am having my ileostomy takedown on January 8th and i am so excited but so scared!! I hear all these things about people not being able to eat anything, not being able to sleep, having 20 BM...