Hi Andrina, Sorry you have to deal with the side effects of Pred. Great advice from Jay, exercising moderately has helped me too. I would only add that it is good to let the people around you...
Hi, The first stool in the morning is usually softer/liquid, with traces of the enema. I have that even when in remission and using Rowasa for maintenance. I guess that, if you are able to hold the...
Thanks, Old Mike, great reminder! For those of us who drink almond milk, the Silk brand does not list carrageenan as an ingredient, so this is the one that I use. Best to all, RT...
I agree with kazbern, do not stop the enemas right now. How long have you been on the hydrocort ones? Keep using them for at least another week nightly, then you might try to alternate the...
Hi sis, I'm sorry you are feeling so poorly right now. The reason it is recommended to use the enemas at night is because you retain them better and longer when you lay down. You can try to insert...
Congratulations, fruitgirl! May your UC remission be very, very long, and your pregnancy very easy. Every expecting mom is different, but I dealt with nausea by sucking on slices of lemon and...
Hi, I am sorry to hear about your son. It sounds like he is still on the "college schedule," and his body might need some time to readjust. I would not go as far as asking your doc for Ambien or...
Hi, Does anyone know how Songlady is doing? I have not seen her post here in a long time. Back in 2010, when I was diagnosed with pancolitis, she and quincy have been very helpful and gave me...
Hi, I was diagnosed with very mild proctitis, used only Canasa occasionally and had no symptoms for 4 years. Then, it progressed to pancolitis... Rectal meds are very helpful for me, and I used them...
Hi, I usually post on the Ulcerative colitis forum, but I am here now to ask for your advice regarding psoriasis inversa. I have some red, itchy spots on my buttocks and close to the genital area....
Hi, I only got samples of Apriso (oral mesalamine) from the GI, never any rectal meds. Sorry, I don't know if they keep those around. But it does not hurt to ask the doctor, especially since you just...
Hi Texas Gal, I'm sorry you did not find relief after two months on the enemas. Many of us here agree that the rectum is the last and the hardest to heal when in a flare. I had a proctitis flare in...
Hi, There were some posts recently about UC and adult acne. I just wanted to let you know about a skin disease that is frequently left undiagnosed, but affects many people. It is called Hidradenitis...
Hi, I wanted to ask if anyone experiences skin problems along with UC. In the past two months or so, while also in a mild flare, I started having some lumps or bad pimples in the groin area. I had a...
Hi, I posted a question almost 3 weeks ago, asking for suggestions to control a mild flare. Here is an update on my situation: I have been on nightly hydrocortisone enemas for 2 weeks, now I use them...
Hi, Sorry to hear you are flaring and have to take care of newly born twins. But congratulations on the babies! Many women flare during pregnancy, must be the hormonal changes. How bad is your flare?...
Hi, I'm sorry to hear you had to be in the hospital 4 times in 3 months, it seems that you have a hard time controlling your symptoms. The decision to go for surgery should come after a good talk to...
Thank you all for your great advice! pmedic, I have been on generic mesalamine enemas for maintenance (1-2/week) since 2010, then I upped them to 1 nightly for the past two weeks. I also love them...
Hi everybody, I have not been posting in a while, but have been reading the topics every day. I am writing to ask for your advice. After a nice 1year and 8 months remission, I started to see symptoms...
Hi, I have a questions for those of you who, unfortunately, have children with IBD. When (at what age) did you notice symptoms and what were they? How bad were the children feeling? I might be...
My thoughts are with you and your son. I can imagine it is extremely stressful for both of you, but he will feel better in a few months and will not take big guns meds anymore. Once he recovers from...
Hi, Here is a link to an article (professional, but a bit funny) about where humans might have gotten the auto-immune issues from:...
Yes, thank you for posting this! On a related note, since Calcium is mentioned on the chart as being beneficial to colon health, which Calcium supplements/types worked better for any of you? Which...
All the best to you and your daughter! I feel for you, this is not something to see your child go through. She will get better, things DO get better! Hugs, RT...
Hi, I'm sorry you are not feeling very good. You might be heading into a flare, if you are experiencing urgency to go to the bathroom. What other symptoms are you having now - mucous, blood,...
Hi, I'm so sorry to hear about what you and your son are going through. I don't really think that the food caused him this severe flare, the inflammation was probably there and just happened to be...
Hi, It is frustrating that you did not get the brand name, but I just wanted to mention that I always took the generics - Perrigo, TEVA, and they worked perfectly. Do not be afraid to use them the...
Thank you all for your replies, I appreciate it. I am feeling better, I did not go to the doctor. I took some Tylenol, there is no fever, just a mild sore throat and nasal congestion. I drink a lot...
Hi, I think I might have strep - both my kids have it right now, and I experience the usual symptoms; very sore throat, low-grade fever, chills at night. I was going to go see my PCP and, in case I...
Hi, Yes, I would increase the enemas to one daily, for at least two weeks. You can even use a Canasa suppository in the morning, to make sure that the rectum is protected. Do everything you can to...
Yes, so far, my flares always started with mucous and some blood. If I act right away with enemas, I am able to control it and things have not progressed to D or pain. But I agree that this disease...
I think that during a flare or right after it, it is common to notice hair loss. It might be related to the fact that your body went through a tough time, stress, inflammation, loss of important...
Hi, Sometimes, a thin stool might be caused by an inflammation a bit higher in the colon. When it is inflamed, the colon narrows. But ask your doctor, he is the expert on this. Best, R...
Hi, I am not a medical doctor, but I think your symptoms are not extreme at this point to go to the ER. If you can talk to a GI on call, he/she might advise you better. With UC or UP, a flare has ups...
Really? Wow! I guess I am still in the incipient phase, since I was diagnosed less than a year ago. Since I see some bloody mucous, I guess I worry that the inflammation is not resolved and might...
Hi, I just wanted to ask those of you who consider themselves in remission (for 1, 2, 3 years or more) if you never had any minor blip, i.e. some mucous or traces of blood on the stool. I had been in...
Hi, I am sure you can find many suggestions simply by looking at people's signatures on this forum. Many of us have tried different probiotics and sometimes had different results, so you have to see...
I only took Apriso (6 pills while flaring, 4 while in remission) and it seems to work fine for me. I know that it has a delayed release, so the pills do not open until later and further in your...
Hello ladies, I've had an IUD (Mirena) for a few years now and I am thinking about having it removed. I am worried about the bleeding that will start afterward. I know that my UC symptoms tend to...
I wonder if all this apply to organic milk, as well. It is supposed to come from healthy cows, well fed etc....
And had the Rhogam vaccine? It is just out of curiosity, because someone mentioned this in a different post. I have noticed from many posts that several women seem to have been dx with proctitis or...
Hi, I absolutely understand your worries - I have two young boys and fear I will pass this terrible thing on to them. Hopefully, it is just related to what your girl ate. As a suggestion for your...
Shannon, Don't beat yourself up over something you eat. I don't think it was the food that caused your bleeding. You probably had an inflammation that was not treated in the first place, just...
Songlady, I am sorry to hear about your flare and your kids. I have two young boys (8 and 4) and I get scared sometimes about their future. It is hard, but I'm sure they will find their way. Even if...
For mixing the VSL#3 DS, I always use unsweetened applesauce or yogurt, as several suggested here. It really isn't bad at all, you barely feel the taste. For the cravings, add some banana slices to...
Hi, I have used Canasa in the past, when I had proctitis only. After 4 years, it turned into pancolitis... Anyway, I just wanted to mention that the whitish, softer stuff that comes out first is a...
I hope all of you get to spend calm and restful Holidays, UC symptoms free, and the year 2011 brings you health and countless happy moments. Thank you for being kind and helpful! Merry Christmas and...
When I was flaring and the inflammation was pretty bad, I also had some cramping and discomfort while administering the enemas. But it would last for a couple of minutes or so. Once the inflammation...
I went to the pharmacy to refill my Rowasa enemas, and they only had the Perrigo brand in stock. Is it the same thing? The ingredients on the box are identical to those on the Rowasa/TEVA, but I...
I agree with Red_34, you should it some solid foods that are good for the gut. Your body needs the nutrients to get better. It is OK if you feel hungry, just eat the right foods, try not to have...