I heard Mangos are well-tolerated - true??...
First day on higher dose pentasa 4 of those huge brown/red tabs a day.... I'm the first person in SA to be a part of the clinical trial - hope the meds work - so far not too bad side effects except a...
I went to a dietician a year ago who advised no skins of anything as they get stuck in the colon (including tomatoes, potatoes, no olives, cherries, skins of apples etc...) and also no nuts and seeds...
Subdued, what is the ingredient of Lexapro - just wondering if we get it here in SA. I also suffered from certain social anxieties - different to yours but equally debilitating. I'm much better on...
Just realised my post should have been directed at Nightside of Eden, not Quincy - Sorrreey! :-)...
I'm ok with my weight - don't wanna put on! :-/...
I just wanna say I have thoroughly enjoyed readying this thread!:-) Nice to see the positive vibe - thank you guys xxx...
Good to hear Kiolm - hope I feel the same way! Starting the process on thursday so will keep the posts coming....
Hi Katkat Try using the generic of the Entocort enemas, called Predsol - they are much easier (and cheaper) to use. I struggled immensely with the Entocort enemas - took me like an hour to get done!...
Thanks all x...
Hi everyone I'm going to be joining this as from next week. I will get put on 4.8g per day for the first 8 weeks and then it is halved and then quartered over the year. I'm doing this as I don't have...
Anyone done the mindfulness training course which is geared towards dealing with and managing chronic illness (among other things)? It was suggested to me to do it. If anyone has done it - has it...
Hi Quincy, just to say I have been on anti-depressants/anxiety meds for quite a few years now - was suffering from panic attacks and after the initial 2 wks of side-effects they really helped me. No...
My colitis is mainly the bottom 7cm of the rectum. I have a lot of discomfort - in the front vaginal area and also aching in my bottom. I also feel like I am unfinished and need to do more when going...
thank u x...
Thanks Quincy, I will request a copy. :-) Well, my appointment was only at 3pm. I got home at about 5pm and was feeling drowsy so slept 'til about 7pm and then went out for supper (big mistake.) I...
It crossed my mind too; what exactly is meant by 'changing the course of the disease' - hmmm - as long as it's for the better! I await the day when they say ' A CURE FOR UC AND CROHNS HAS BEEN...
Oh, and good luck Chris!x...
Probiotic, I'm so sorry to hear about the possible colectomy... I hope it doesn't go that way. Chris, yes, when he upped the meds it definitely helped and he told the nurse to press down on my...
Hi everyone, Last week I had my first colonoscopy. Up until then I'd had one flexible sigmoidoscopy and and then rigid sigmoidoscopies over the years. Firstly, that solution that we are forced to...
I've been told by my doctor that it changes the course of the disease. Can be life-changing but as it is a very big immuno-suppressant it has serious side-effects. One has to be careful not to...
My first couple of flares about 10 years ago were mild, then last year I had a much worse flare and now I am flaring, not as badly as the last time yet but still worse than the first flares. So, who...
Ooooh wish we got his show here in SA.... would liked to have seen that....
Just to say I'm going to a new doctor for the first time in 13 years. Scary. And I feel bad about leaving the last one as he has been very good to me but tends to get flustered when I get sick and...
Hi there Finally my question has been answered. I'm currently flaring and going to see the dr tomorrow. Towards the end of my last flare, last year, I began taking Asacol tablets. I was already on...
Oh my gosh just read about the whale... that is quite funny! Not so funny if they'd been hurt, I suppose... BB, stay positive - there's someone out there for everyone. If someone loves you they will...
I am so very sorry to read this.... Wishing you strength and sending prayers xx...
A whale fell on a boat here? ! I need to keep up with the news. Yes, this is possibly the most beautiful place on earth! Or at least one of them. But today and yesterday, being nearly 40deg C makes...
I checked out the fb site - looks good. There's another one as well, called EMPWR for UC, Chrohns and IBS I think. Not as big a site but just so that you know. CTC...
Okey Dokey, thx Quincy, will speak to my doc and see if we get that/something similar here. x...
Thanks Chris, appreciate it x...
Thx :-)...
Thanks everyone, ok, at least I know I'm not the only one. Last december the feeling was so bad that I used to heat up a bean bag in the microwave (not sure what you call it - here in South Africa...
Thanks B, your positivity is an inspiration. I'm sorry you had to go through so much but at least that is over - and it's great to hear that the J-pouch works so well and life goes on as per usual....
Hi, just want to know if any other female uc sufferers experience a horrible pulling sensation in the vaginal area when they are flaring, like your bladder is full most of the time. It happens when I...
Hi everyone Just to apologise for breaking the forum rules with the question about the potential benefit of a certain illegal drug. I was unaware that I was not supposed to discuss that and should...
Hi guys, here I am - Cape Town Colitis! Happy New year to you! Apologies for the delayed reply. I was away in Durban for work and I have been away from this site for quite a while as I was in...
Hi Steve I use Asacol supps 500mg at night and they seem to be ok. I had 2 flares years ago where I doubled up on the asacol supps so that I was inserting one at night and one in the morning and that...
Hi Mudua! Wow, I didn't think there'd be anyone from South Africa here, let alone Cape Town. Well, nice to know I'm not the only one. Do you know if there is some kind of support group going here?...
NotSoSicklyGirl, you make me smile! I'm exactly the same. Ever since being in remission (not so long ago), when I poop and see a nice firm big one I am soooo happy! hehe! It really puts life into...
Just wondering... are there any other South Africans, in particular, Cape Townians, on this site? Am I the only one? I don't think there is any support group in Cape Town and it would be nice to have...
Pinkprincesshottie, thank you for this great topic and to all those who have answered thank you too. During my last flare I felt so down about myself and couldn't even think about being in a...
Thank you very much. Sorry for the delay in replying; I've been a bit caught up. xx...
Hi there What is the general opinion on taking SSRIs during and after pregnancy (with breastfeeding etc....) As a sufferer of anxiety and depression I am wondering whether it's ok to remain on them....
I recently began losing my hair - I think it's from Asacol tabs, so, also Mesalamine. I've stopped taking them and am using the product Vigro for my hair. So far, I think less hair is falling out....
I agree with the others. I was flaring badly and even a low dose of prednisone didn't help (20mg) but then the dr prescribed the entocort enemas and they sent me into remission after only 2 weeks of...
I've had many sigmoidoscopies. If it's the rigid one it is an oblong metal object about 15cm. The GI puts gel onto it to insert it easily. It's uncomfortable and then a bit sore when he turns the...
Thanks Scrap Girl. Will see how it goes off the Asacol. Many of the meds that are mentioned here, I have never heard of... I'm wondering if they are available in S.AFrica.. Thanks, I'll write the...
I tried following a diet for a few months, cutting out dairy, skins of everything, stringy veg like spinach which remains in the gut, peas, beans, corn, most veg except for starchy ones like potato...
Hi there, are you sure you're not depressed? During my last flare I felt very down. The relentlessness of the disease got to me and I felt completely powerless when nothing seemed to help. If that's...