Thank you for the replies. I am wondering if someone in his position in the US (prostate cancer with spread to local lymph nodes and no distant metastatic disease would be treated more aggressively...
Hi all, Firstly, thank you for sharing your paths and all the information you have gathered. I am the best friend of someone with prostate cancer and I have learned so much from reading this forum....
Hello all. Firstly, thank you for the wealth of information and inspiration each of you provide through your contributions on this board. A very close loved-one (friend but chosen close family...
So sorry to hear your news. Make sure you take care of yourself during this difficult time....
Now that I have been at this for 5 years, I am noticing all the extra-intestinal symptoms that precede my flares. The last week or so I have been really tired (slept 13 hours two nights ago), aching...
Thank you, everyone. I think people have been making things like chilli (with beans and spices) and casseroles with corn and other hard to digest veggies. I figured that things that I would be able...
Hi all, I usually post over on the UC board, but am here for a friend. She has recently been diagnosed with rectal cancer (stage 2 or 3) and just had an ileostomy done on Tuesday. I want to make her...
Thanks for 25 lbs in 6 weeks, loss of most of my muscle tone, acne, depression, lethargy, hump-back AND for not even touching the UC. It would have to be life or death, quite literally, before I...
I had the same problem after coming off of Prednisone. I lost about half of my hair as well. It thinned all over. I stopped taking the Pred at the end of March and am thrilled to say that my hair is...
You sure have been through a lot. I don't have any answers for you, but I just wanted to pass along my well wishes. I am sure that some others on the board can give you some good advice....
I'm with Sherry. Stress is a huge factor for me, so I would quit my job and be a stay-at-home mom. I would also take probiotics, see a naturopath and hire a personal trainer to help me shed the...
Supa - I have lost half of my hair (very literally) since I tapered as well. I also had the back hump. It is unbelievable what those pills can do. If they work to put you into remission, it is worth...
I really feel for you. I was on Budesonide enemas for one month and Prednisone for three months. I found that my side-effects were way worse from the Budesonide than the Prednisone. I had a 25 lb....
After coming out of an 8 month long flare, I lost so much blood that my hemoglobin is 93. At my GPs advice, I am taking 3 iron pills per day. I feared that they would cause constipation, but rather...
I started my first course of Pred in January at 40 mg. It never did do anything for me. I have now been able to taper down to 15 mg. Can't wait to get off of it as the side-effects have been really...
I have been on the equivalent of about 40 mg of Prednisone since mid-December. I started tapering 3 weeks ago and am now down to 20 mg. I expected that by now I would have at least stopped gaining...
Saw my GI today to follow-up post endoscopy/sigmoidoscopy. Moderate inflammation up to 22 cm on the bottom end and mild inflammation in my stomach (GI isn't worried about this). I am currently on 4.8...
I was on Betamethasone (Budesonide) enema that certainly contributed to my total body load. I had the same systemic effects on the Budesonide as I have had on the 40 mg of Pred. My Dr. told me that...
Much to my delight, my Dr. has me tapering off of my Pred. I have been on 40 mg for about 2.5 weeks (before that was on Betamethasone enema (with equivalent of 35 mg of Pred. for 4 weeks that caused...
I know the exact pain that you are talking about. It can be really sore. For immediate relief, I have found that sitz baths really do help. I get the water as hot as I can and, if I have them, I...
No words of wisdom, but wanted to send my thoughts and well-wishes. Let us know what the ENT says. I hope you got the answers that you wanted....
I echo what everyone else had said. I am currently on Pred and the side-effects have been worse than the actual flare I have been having. Hopefully doing nightly rectal meds will put you into...
I am another A- who had the shot 3 times. I was diagnosed about a year after my third child was born. Looking back though, I think I have been suffering with IBD since I was 14. Interesting though....
Hope you get your answers soon. Once you have the scope and some answers, you will at least know what you are dealing with and get the most effective treatment. In the meantime, I hope you are...
Huh, funny where life takes you. Just realized that while many people are out partying or visiting with friends on Saturday night, I am on my computer asking questions about constipation. Seriously...
So I am averaging one BM (real BM, not just blood and mucous, which happens 3-4 times a day), per week. I think the constipation is aggravating my bleeding and inflammation because I am straining....
What a horrible start to 2011 you have had. I hope that the pneumonia is starting to clear up as well as your UC. Are you still on the Prednisone as well, or just the Mesalamine? It is amazing to me...
I have heard that Asacol can cause nausea. I have also experienced the thinning hair from Asacol. My pharmacist once told me that a number of the UC oral meds list nausea as one of the potential side...
When I was taken off of my Betnesol enemas I was switched over to corticosteroid suppositories for my taper. My GI said that I couldn't just stop the Betnesol abruptly, mind you, I was having a lot...
Peace - Yikes! You poor thing. Are you taking any rectal meds now? I hope you find some relief soon. I am prone to stretch marks. Thanks Mom & Dad. I have really not found anything to be particularly...
Great information everyone, thank you. Notsosickly, I was really surprised to be put on the Pred with only having 6 BMs a day as well. I thought that it was overkill. At my next appointment I am...
In many posts I have read that Prednisone will turn off symptoms practically like a switch. Presumably, most people are referring to the Prednisone reducing/stopping their diarrhea. My UC symptoms...
How much of your daughter's colon is affected by the UC? Prior to being on the Pred what were her stools like?...
Thinking of you. I am glad that you are finding some relief. For what it is worth, the one pregnancy that I wasn't on medication with (not UC medication, but anxiety/depression medication), was the...
Q - Yes, I have had Salofalk suppositories. After the Salofalk stopped working, the Dr. switched me directly to Entocort. From Entocort, I was put on Betnesol enemas. Last rectal med I was put on...
Q- The 5ASA enemas didn't work for me. I just didn't have any success with them. The Dr. took me off of the oral 5ASAs while I am on Pred. Not sure why.... I am actually going to phone and ask about...
I actually started with the dreaded moonface about a week after I began taking the Betnesol enemas. My face got bigger for a couple weeks and then seemed to stay the same. When I switched from the...
When will my face stop expanding? I have been on 40 mg. of Prednisone for a week and a half now and my face keeps getting bigger and bigger! I actually have a small stretch mark on my jawline now...
I tend to get nausea when I am constipated. With my flares, I suffer more frequently from constipation than diarrhea. I get really bloated and nauseated to the point where I take OTC meds for it. I...
I have definitely noticed a seasonal pattern to my flares. Mine always start in the late spring/summer. I wonder if it has something to do with my diet being different at that time of year (I eat a...
I haven't done up until now, but I think it is a fabulous idea. Any information we can arm ourselves with is helpful....
I am so sorry to hear of Bob's passing. My thoughts are with you. I was just thinking about Bob the other day and missing his thoughtful and helpful posts. Please know that he made an impact on many...
That was me! That was me! Good memory Ugh! You know, I think that I screwed up though. I was on Budesonide enemas for 2 weeks and had nothing in the way of relief or side-effects. It just did nothing...
This is my first time on it ever! I was on Betnesol enemas (betamethasone steroid). Even with the enema-based steroid I ended up with those horrible side-effects. My PCP did tell me that with the...
I am glad to hear that the results were good, but sorry to hear the experience was so lousy. I am phobic of throwing up, so I really feel for you. I had an endoscopy and flex sig done yesterday...
Well, after having a horrible set of reactions to my Betnesol enemas (thrush infection, moon face, mental alertness, fatigue, no energy), I was weaning off the steroids using corticosteroid...
I am so glad that you went to the Dr. when you did. What a horrible ordeal you have been through. I am so glad that you are on the other side of it and now on your way to recovery. How are you...
Oops, forgot to add that my GI has taken me off the Betnesol enemas (took my last one on Tuesday night). I am now on corticosteroid suppositories (40 mg) instead. Not sure how much less steroid is...
Let this be a cautionary tale to anyone who has been told that you do not get systemic effects from steroid enemas. I have been in a flare since the end of August - probably a relatively mild flare...