Probiotic: This stuff is not supposed to completely dissolve in water so you would basically have a yellowish suspension with softened granules. These granules don't irritate (at least not me)...
Probiotic and Mike: I have written all the details about my lecithin enema protocol on this site a couple of times. Ig you search for 'sakiv46', you will find them here. But briefly I use Whole Foods...
I didn't order from Germany. But I have been using lecithin enema (off and on) for the last five years to achieve and maintain remission. When I flare, lecithin enema is the first thing I indtroduce...
I just read that Dr. David Rubin and other GIs at the University of Chicago Medical School are about to begin clinical trials of the fecal transplant therapy for UC patients. They just published the...
Sorry to hear about your rxn to rPC. I still haven't got the oral medicine ordered but lecithin enema has been working for me so far!...
quincy's comment: "fresher food? I guess some shopping at the local garbage dump classifies as fresh. Oh, maybe it's the feces and urine in the local water supply or outside the front door?" is very...
Danthaman, Based on my experience with lecithin enema, yellowish stool is normal. It is most likely undigested residues of lecithin -- which is good in the sense that some PC is getting to the colon...
Retarded release lecithin brought me in remission 5 years ago when my GI (who I fired promptly) was telling me that I would end up in ER and loose my colon if I didn't follow his orders. Since then I...
Danthaman, Is the German pharmacy still requiring a prescription from an MD? I have made an appointment with an "alternative medicine" type MD to get a prescription, but would be great if I didn't...
Thanks probiotic. Please let us know when your fedex shipment arrives. Now I need to find a doc to write the prescription. Maybe I will try some alternative type because my GI won't touch anything...
Probiotic, What did your Dr write in the perscription slip? Delayed form phosphatidylcholine?...
Old Mike, The German research group has been using lecithin granules wrapped in enteric coating in their clinical trials. If granules delivered via enteric coated pills lead to increased...
Hi Levi, I have never tried mixing lecithin with Rowasa. Without knowing about all the possible interactions, I would be inclined not to experiment with it. If I were you, I would start with lecithin...
Thanks killcolitis. Delarge: I have read most of the original papers on this topic, as I have access to most of the medical journals at my work. You are right -- the German researchers have never...
killcolitis, Can you please give us the email or phone number of the German pharmacy? Also I will need to find a dcotor to write perscrition for it. I have used and continue to use lecithin enema...
killcolitis, The research protocol I was referring to is the trials in Germany where patients were given retarded release PC for 3 months. There is no enema protocol out there -- what I am describing...
By the way pure phospahtidylchole supplements (such as Phoschol) are really irritating because of alcohol so I would avoid them. I tried it and it lead to profuse bleeding for a couple of days....
Hi Levi, I have got great results by doing lecithin enema in my my last two flare-ups. After some experimentation, the best protocol for me seems to be to mix 1 scoop of Whole Food soy lecithin...
I agree old mike. Even now the "drug" seems to be at least 3-4 years away from being marketed in Europe. Who knows how long FDA will take after that! It is sad because as you say PC/lecithin is...
kate22, I haven't heard of this compound. But if the pharmacist believe that it can retard the absorption, there is no harm in trying it. I will be willing to buy from them. According to the Germans...
Do they mean combining some sort of delayed release powder with PC and putting it in a gelatin capsule? Do you know what the powder is called? A good pharmacist should be able to figure out whether...
chef patrick, I did PC enema for about 6 months and then stopped after I was well out of my flare. I was on low dose Lialda (1-2 tablets per day) for next four years without any flare. The trick is...
kate22, as far as I know, delayed release PC is not available anywhere. Four years ago I even aproached some compounding pharmacies to have it made but no luck. Some people, including me, have used...
It will be great to have this soon. But you don't have to wait for it. The "drug" is really phosphatisylcholine (PC) rich soy lecithin that you can buy from many health food stores. The trick is to...