There are probably other people with UC on your campus, I was suprised to find out when I got an e-mail from my class president that he was affiliated with CCFA. I don't live at school so I cant say...
My last GI seemed a little scope happy as well, I also always woke up in pain before they shoved more drugs in me to pass out. Also, during my last prep, I threw up half of the stuff because my...
I started out on lialda but I was so sick the I and it wasn't working fast enough they basically skipped to the top, that was my last GI. I've never done rectal meds. When I was on the phone today...
I just typed this all out and accidently hit back. grrr. My last scope showed that I have inflamation and sereve ulceration in 15-30cm, and mild ulceration in the 30-40 and 5-10 area. The letter they...
I had a scope 2/24 and I am not doing so well now from stress, my regular GI doctor is out on maternity leave and the doctor covering her is trying to say they want another scope! I'm saying no, I...
Thanks for all the advice/feedback, it really did help to pick me up! Focusing on the the good can seem so difficult, I manage to do it for a day or two and then fall back into sadness, I am trying...
It's been a while, the last time I was on here I had been debating surgery, I ended up against it. As I realized I was doing so poorly because of the insane amoutn of stress in my life at the time,...
If you make an appointment with Chefietz make sure you confirm the appointment. I had called to make an appointment with him and it must have been either deleted from the computer or never put in...
Bluegrass- I havn't had a second opinion from a GI, and I'm not sure mine is a IBD specialist so he probably isnt. I don't really know how to go about finding a new one that is a specialist. I've...
They have done the blood test, which indicated UC, but both my GI and Surgeon are concerned it could be chrons due to my symptoms. In a case of UC the failure rate is about 10 percent, but if it...
Thanks for all the input, I'm still not sure what I'm going to do. If I was older the thought of living with a bag wouldn't bother me but at 22 years old I'm not sure I'm quite ready to kiss bikinis...
I was diagnosed last April with UC, after lialda failed in June my GI put me on Remicade. In August I was put back on prednisone and my next dose of Remi was doubled 10mg/kg. Now my remi seems to...
When I went to the hospital in order to get diagnoised, I had been serverly sick for 3 weeks (lost 30 pounds in 3 weeks, needed 2 bags of blood, and had a pulse of 150). I was doing the prep for my...
Medication has an expiration date because the chemical compounds in it can break down and not be effective or become toxic.- That is the explanation my pharmacist gave me...
Gatorade, Vitamin Water, Life Water and most sodas are all a death sentence to me. I like my drinks with flavor so I tend to stick with water and a raspberry crystal light packet, if that's not...
I found this... In general, although melatonin is one of the least toxic substances known, it is not recommended for people with autoimmune diseases or immune system cancers because of its ability to...
I've never been told how severe my UC is, after my scope in the hospital I was told things "looked pretty bad" but that's about the extent of it. My problem is that I have a high tolerance for pain...
I'm 21 and was diagnosed April 1st of this year(unfortunately it wasn't an april fools joke)...my GI put me on prednisone 60mg and Lialda 4.6g/day. After being on Lialda for a month, and while...