Well, you surely came to the right place with your frustration for not findinding answers. I think a lot of the topics have just come up before, and that's why people are less apt to respond...
I just want to mention that I had a persistent, productive cough for about a year and a half. It drove me insane. My med school professors suggested I get it looked at 1000 times- every time I went...
No, I guess I should consider that. I have seen 3 gynecologists now at top hospitals, including one fertility specialist. Normal pap. My blood work is always "normal," they say. Now that I have an...
Wow, I just posted the same question without seeing this first- SORRY! But yes- this is me, me, me!! Ever since I was diagnosed and began mesalamine, the periods are GONE. I tried as hard as I could...
Hi all, I've been in/out of remission for the past few years, and I have also switched mesalamines a few times. However, I have a puzzling problem- amenorrhea. I'm only 23, but I stopped getting my...
Hey All, I hope everyone is well. I have a chronic cough that has persisted for 1 year and 4 months now. I'm 23. I am very active, and the cough is productive daily. (It is a deep, smoker's cough.)...
How often do you do exercise? I would say thats actually a pretty healthy beat. I run a few miles a day, and I have realized that mine is in the low forties- maybe even upper 30s sometimes when I'm...
Don't worry!!!! I can't swallow pills either. I swear its a mental thing. I FOUND A SOLUTION. Take them with food. Chew up a big gulp of something, and then throw the pills in and pretend that they...
zed92 and all others, I'm a 22yo senior in college. I'm also going to dental school next year; however, I am much more positive about that situation. College is great but it is difficult with IBD...
Thanks, all.. It definitely is a bummer to hear.. and i haven't quite accepted it yet... but everything happens for a reason, right? I'm still a firm believer. I may not be able to go some expensive,...
Ugh. I dont know why I overlooked this... I was just accepted to the dental school of my dreams. Couldn't believe it- I have never been so excited. However, the expense of the schools are so...
notsosicklygirl, When i was first diagnosed with UC, they put me on 4.8 g of Lialda. I took Lialda for ~7 months until I went to the Mayo to figure out what the heck was wrong with me. The Lialda...
I usually have huge appetite issues during a flare. Less food=less mass trying to meander around my digestive tract=less razor blades keeping me on my toes all day/night. However, I count my cals to...
I would say try chewing up a big bite of food and then throwing it in. That's what I have to do... I CANNOT swallow pills. Even if you gave me ten glasses of water to do it. If you chew something up...
Thanks for the kind words! I figure I may as well be as educated as I can on this matter since it is something unlikely to go away. :) (which is why i often browse this forum- unbelievable how much...
I have seen that most UCers stick with the low fiber diet. Although, most also have issues with chronic diarrhea. If I don't eat an absolute TON of fiber, I won't go to the bathroom for a week. After...
The only diet alteration that I have found to truly help me out is by eating a very high fiber diet. (it will relieve the constipation.) Plus, it's healthier anyways. good luck...
very interesting article. i'm currently taking a course on microbes, and i have learned a ton about the gut biome. my professor is one hundred percent convinced that probiotics will be a future...
I'm going to the mayo in may- they're ranked number 1 for GI in the US, I believe. Very nice people. Though I am sure either would be great....
Pea soup, avocados, bananas (maybe with peanut butter? pb can irritate though), squash! (if theyre available this time of year?) hard boiled eggs....
I'm on 4.8 g's, and I will tell you that I also have bladder issues because the Lialda dehydrates me so much and causes me to drink TONSSSS of water. Therefore, I am always about to pee my pants, and...
This was my life until I completely altered my diet to HIGGHHH FIBER. At first I would try just a couple prunes- results still painfully disappointing (no pun intended). Then i realized i had...
Did you have the migraines before you started taking meds for UC? I'm on Lialda and mine are awful. Though I do not take any meds because it freaks me out (to add MORE chemicals to my body), but I...
My kidney function blood tests came back saying completely normal. (Though Im not so sure they checked my liver fxn.) Neither my GI nor my PCP seem to think anything is the matter. Woke up today to...
Keep yourself busy with something else. Tell whoever you live with you can't eat those foods. By saying it, it helps me to do it. Plus they keep an eye out and would question you eating something...
Okay, so I haven't been on Lialda for that long. (Since about November.) It makes my head hurt; I chug water. I urinate more frequently also, which seems to make sense. Although, I have noticed that...
I too am pretty scared to lower my dosage. Most people say that that was a bad decision for them, so I am very reluctant to do so. Although my mom keeps telling me to email my doc and ask if i can-...
I live pretty close by, and my dad called for like 2 weeks to schedule a colonoscopy. They are just slow, I think. Keep calling and someone should get back to you. Very odd that they would not...
Hey, I dont know about the link between the two, but I do know a lot of people who have going relief from psoriasis while on Barney's Formula. You can google it and it should pop up....
Do you have any family members with a history of colon cancer? I am only 21 and was diagnosed only a few months ago (though I've had UC for about 5 years).. Since my uncle had colon cancer, I am...
I literally just went into the doctor for this earlier this week. Basically an odd feeling throat developed into a persistent sore throat for about 2 to 3 months for me. (Like that of a cold) I...
Thank you so much for the responses and suggestions. I truly appreciate your help! I will probably contact my GI and let her know... even though I guess i will be seeing an ear/nose/throat specialist...
After my first colonoscopy 2 months ago, my doctor didnt give me a solid diagnosis. She said that I have what looks like Ulcerative Colitis, but that it could very well be Crohn's. Although for the...
Have you guys experienced hair loss from it? I haven't been on it long enough to know... but am starting to worry. Just wondering if more Lialda = more hair loss? Thanks...
Zach, I can't answer your questions about remicade since Im new at this and have never taken it. I will say, though, that I feel pretty fatigued very often. And im not really sure why- but I recently...
Thank you for the responses. I have always been taking them food (actually because I can't swallow pills w/out food, just some weird mental thing, i guess). Also, I've been taking them later like she...
Okay, so I know that one of the main side effects of Lialda are headaches. I have them. I'm currently on 4 a day. I dont usually get headaches, and I have been drinking gallons of water to make them...
Wow, thanks for posting this- this is great! Although experimental results of human treatments don't always mirror those of animals, or in this case mice, this information sounds truly promising. I'm...
I am not sure what the orange stuff is, but they had me drink 2 64 ozs of orange gatorade with 1 gigantic bottle of miralax (dont remember the exact size..). They recommended that because it really...
Hey, kittyannkat You're definitely not the only one that has to deal with college + UC. Which can be a LOT. It definitely is difficult to do well with both UC and classes, especially at this awful...
Thanks so much for the detailed response and advice, fruitgirl! Hoping that it will work for me- or anything for that matter. Hope all is well! Thanks again, MNL...
does anyone know anything about lialda? I went to the doctor today, and that is what she gave me. I looked it up, and it said don't take if you are allergic to aspirin. Well, I'm only twenty, and...
Oops, I forgot to ask you- what kind of diet are you on? Thank you again, MNL...
MyUC, I agree with hateuc. Your posting still is interesting/helpful to the rest of us, even if we don't have a response or advice. I just found out I have UC, so I am pretty uneducated on the...
Thanks for the advice. For medications, why is the Asacol considered "a curse for others?" Also, I have looked into SCD, and it seems to make sense. Although, an extremely difficult task when on a...
Thanks for the responses. 4 years, I know, is an awfully long time. Although, I was an ignorant, high-school girl at the time and was, quite frankly, pretty scared to mention it to anyone. (but i...
Well, here I am. Just another name to add to the list. I am currently 20-just had my colonoscopy last Friday- and I have had symptoms for about 4 years before getting anything done. Haven't gotten my...