The doctor did order that blood test. The symptoms he is having are what is listed for addisons disease; Fatigue, weakness, low blood pressure, high heart rate, loss of appetite and dehydration. I...
Yeah, it's been one thing after another. How do you do the alternating taper? Do you think it's wise that they started him on 9 mg entocort while still tapering off the pred? In the midst of all...
Doctors are tapering my Dad's prednisone and switching him to entocort because he is suffering from prednisone induced myopathy. He was on 40 mg a day for about 42 days after high dose IV steroids in...
Why would they have you writhing in agony?...
Has anyone tried this product called Banatrol-Plus? http://www.medtritionnni.com/banatrol-diarrhea-relief/...
When my Dad does have a flare, it always starts around Oct.-Jan. If he can't get it under control with meds, it always resolves itself by summer so far. Last year he flared through May maybe because...
The rehabilitation center's doctor says that entocort doesn't replace the same kind of steroid that prednisone has so even with adding the 9 mg of entocort, dropping from 35 mg to 20 mg is too much...
The doctor said that it was found to raise sodium levels in people who use it so now it is sometimes used to treat Hyponatremia (low blood sodium). I think it is dangerous to treat someone with...
Due to my Dad's possible prednisone induced myopathy, his gastro wants to switch him to entocort. He's been on 40 mg pred for 42 days and this week they started tapering him and lowered it to 35 mg....
Yes, his diarrhea is getting a little worse. His stools were semi formed and now they are watery and runny again. I found out today that this antibiotic is strickly for his low sodium in his blood....
I just found out, to my extreme disapointment and anger, that the doctor at the rehabilitation center my Dad is at has been prescribing him an antibiotic in the tetracycline family called...
My Dad's primary physician now thinks my Dad has prednisone induced myopathy. He was weak to begin with from the colitis flare and loss of appetite. Then after getting IV Solu-cort F in the hospital...
I have read that Dr. Borody in Australia has a two antibiotic combo that put UC patients in remission. I just don't know what the two antibiotics are....
What is the fastest you can taper from prednisone and in what increments? Also, does cort enemas contribute to your whole steroid body load?...
I found this on onibasu.com. I only mentions crohn's disease but I think it could be applicable to UC. Warning: this is long. (Sorry if this has been posted before) "What about pasteurization of...
I thought the article said that raw milk was an even greater risk? Alba29 said... The article states that pasteurization and UC are related, and MAP survives in pasteurized milk. I got sick after...
I wonder about kefir made with raw or pasturized milk? It's been touted as a treatment for UC and crohns. What about yogurt?...
Are Sucralose and Acesulfame-Potassium antagonistic to UC? Many of the protein supplements that the doctor presrcibes for my Dad has these artificial sweeteners....
110 degrees is not hot enough to kill the bacteria. I actually wait till it drops to 109 just to be safe but anywhere from 110 to 100 is OK. That's what I have read anyway. The longer you ferment it,...
First of all, I am no expert on yogurt making but I do make a lot of VSL#3 yogurt. I don't use a yogurt maker. I use my oven with the light on to ferment the yogurt. I've heard alot of bad things...
My Dad always seems to flare from October to January and no matter how bad it gets, he is always out of his flare by June. So I have always suspected low vitamin D as a culprit....
They really haven't treated him for it yet apart from trying to get him to eat more protien. They say it's likely from his not eating very much due to his lack of appetite coupled with his colon's...
I don't know about the white line on his fingernails but my Dad with UC has low albumin....
My Dad tried Mutaflor and every time he stated it, he would get worse so we've given up trying it. I had such hopes for it too. I kept reading about E-Coli Nissil a few years ago and couldn't find...
My Dad's UC flares always occur around the same time of year. When he has a flare it always starts between October and January. When it finally gets under control it is always in the spring or early...
My Dad's UC flares almost always start in October-December and he always seems to get better as the weather gets warner. He has never had a flare in the summer. That got me to thinking if it's...
Milk proteins and lactose shouldn't be a problem if it's fermented long enough. The fermentation process eliminates the lactose and breaks down the casein into easily digested protein. I agree about...
How do you make your kefir? How long do you ferment at room temp? 24 hours? Do you then ripen the strained kefir for another 24 hours? If you do this, it increases the probiotic count even more and...
I started making kefir with raw milk and kefir grains for my Dad after a bad flare last June. He came out of the hospital after IV pred and oral pred with no real improvement. He started drinking one...
There is a guy that has a website (gutsense.com) and a book (Fiber Menace) that says that a lot of fiber is bad because it slows down the transit time and creates acid that kills all the good...
Yeah, He's tried Pepto and Kao Pectate and they didn't hepl and his gastro said that they were good to use with colitis. He's tried Imodium as well with no help. His bleeding stopped 3 weeks ago...
Has anyone tried zeolite products for diarrhea like these: ? http://www.breakthroughhealthproducts.com/diarrhea.html http://controldiarrhea.com/esdifan.html...
For those who's insurance won't pay for VSL#3 or just can't afford it. See if you can get free samples from your doctor or bite the bullet and buy just one box of regular VSL#3. You can then make...
There are a few websites with testimonials that black strap molasses caused improvement and remissions in some cases. Don't know how valid they are. Google black strap molasses for colitis....
For those that have had the Fecal Transplant at the Duluth Clinic; Is it hard to get in there for the proceedure? I have been trying to contact them for a week and they just send me to voice mail and...
I was looking at some old posts I made on a google groups colitis forum I made about my Dads colitis in 2006. I wrote that my Dad had tried VSL#3 at 4 packs a day and it didn't do a thing for him. He...
Jay Robb Whey Isolate is supposed to be very low lactose. I was giving him lactase enzyme with it but there is no difference with it or without it. He doesn't have the whey protein drink everyday...
Right now he is not eating any dairy except for some occational 24 hour VSL3 yogurt I make. The protein drinks are made with water. He has never been lactose intolerant before. He thrived on the...
It tends to be what ever he takes in the morning can show up in the toilet by that afternoon or that evening. These are capsules and softgels that will completely dissolved in a glass of water in 30...
No. He isn't still in the hospital. He is eating food but not much. He has virtually no appetite. He takes Marinal but it doesn't help much. He eats mostly peanut butter, some yogurt, some bread,...
Is it common in UC for pills and capsules to pass through the digestive system undissolved? My Dad, who is in a current flare finds undissolved supplement capsules and pills like Lialda in his stool....
I am trying to find a sweetener that is colitis safe for my Dad with UC. I was giving him Truvia get his VSL3 down but found out that an ingredient in it (Erythritol) can have a lot of bad gastro...
My 79 yr old Dad had a very bad UC flare and was hospitalized for about 10 days, 10 days ago. He had a pic line with TPN and he was getting IV Solu-cort F. He was switched to 40 mg. Prednisone just...
In another thread fresh mint leaves were mentioned as a treatment for anemia, how do you use them? Do you juice them or just eat them? Do you steep them in a tea?...
Can Pred cause weakness, dizziness and anemia? My Dad got out of the hospital and he is getting weaker with an almost inability to walk. His anemia has become a little worse since leaving the...
My Dad who is 79 years old has UC and is currently in a bad flare. After being hospitalized last week and put on IV steroids, they now have him on 40 mg of prednisone a day. Is that a high does for...
Has anyone tried bacillus subtilis for ulcerative colitis? According to this article it was available as a over the counter diarrhea aid in the 50's and 60's and is still used in Europe for digestive...
My Dad (Who is currently in a serious flare) was in a serious flare about 5 years ago. He was on Asacol and Prednisone and nothing was working. I heard about Seacure and after starting it he saw...
My Dad's been having a bad flare for several months. His worst time is at night when he goes up to 10 times. He is currently on prednisone, lialdia and VSL3 ds. His gastro put him on one dose of...
My Dad is in the hospital with a severe UC flare. They have started him on Solucortf a couple of days ago and yesterday they administered a drug called Protonix with it. He seemed to have a bad...