DBwithUC: I definitely think depression plays into it. When I first got sick, I went on anti-anxiety meds and anti-depressants and have been on them since. That was actually why my psychiatrist...
DMC, that just shows how long it's been since I've been on here, I didn't even notice that I hadn't changed my med regimen! Thanks for pointing it out, gotta get that changed!...
Thyroid levels are normal, but since I don't really have "healthy" baseline levels, your point is a valid one and I've been frustrated about that (I'm 35). I do take depression and anxiety drugs but...
Hi everyone, I'm about two years out from my final J-pouch surgery. There have been ups and downs, but I feel lucky because my quality of life is so improved...except for one thing. For about the...
Good luck, keep us updated on how it goes!...
NSSG, I seriously LOL'd at that--thank you, I needed it. Tank, I can completely relate, I've been off pred for a little over a month now (after being on it for 6 months) and despite feeling better,...
I actually asked my doctor how to deal with these "speed bumps" at my last appointment, as I have finally finished a long taper off of prednisone and have definitely had some days where I've felt a...
Like I said on the other thread, I feel like we have a lot of similar issues, so here we are again :) I've actually been wondering the same thing myself about Asacol HD. It didn't really do anything...
I can't imagine having to deal with this at such a young age--your daughter must be a very brave girl. Best wishes that this infusion works and brings along a long lasting remission!...
I've had hair loss that I think was largely due to prednisone. It didn't happen right away, but when it started, I was terrified that I was going to go bald also (hasn't happened yet :)) I started...
Thank you all--I appreciate your responses. I'm still pretty new at this and seeing blood for the first time in months is very, very discouraging to me. I'm trying not to stress, but the memory of...
I have been using mesalamine enemas once a day for the last few weeks, although admittedly, I have a hard time retaining them overnight. Would you recommend increasing to 2x a day? My doctor had...
Good morning everyone. I need to ask you all for your expert opinions on stopping a flare before it gets too far along. I'm currently tapering off prednisone and have been at 5 mg for the last two...
I used to read this every morning when I was dealing with my first (and worst) flare. The idea of asking for protection when going into battle seemed particularly appropriate :) Hope you start...
Hello everyone. I'm in the home stretch of tapering off of prednisone--went down from 10 mg to 5 yesterday. Thankfully, I'm not seeing any GI effects, but I have been having horrible sinus-like...
Hi Baggravation, Our experiences are so similar...I started on pred in late January, hopefully will be tapering off completely in about a month. I was playing soccer 3-4 times a week prior to getting...
Hi mama_blueyes, I can completely relate to how your daughter is feeling--I actually had to ban myself from reading stuff about prednisone online for a while because most of what I found was so...
Thanks for the suggestions so far! One of the things that I liked about Johns Hopkins is that it seems as though they have a program where they combine standard treatments with alternative approaches...
Humira and Remicade are both synthetic proteins that block the same target (an inflammatory protein called TNF alpha), but Humira is a completely human protein whereas Remicade is a hybrid...
Hi everyone, After having some concerns for a while about my current doctor, I have decided that I am going to pursue a second opinion which will hopefully lead to me transitioning over to someone...
Thank you all for your helpful posts. I was kind of freaked out by the idea of infusions because new things equate to high anxiety for me still, but now that I've had some time to process this, I...
For those of you who have had to deal with a low RBC count due to iron-deficient anemia, how long did it take for your RBC count to go up after starting oral supplements and what dosage did you take?...
I can definitely relate to a lack of discipline. I have a lot of the Kabat-Zinn books and though I enjoy the time I spend reading or practicing different techniques, I always seem to get distracted...
Good evening everyone :) I'm very interested in signing up for one of several MBSR programs that are offered in my area--I actually probably would have started already except that they were all in...
Update: My latest labs showed that while my hematocrit is still low, I'm holding steady at around where I've been since starting 6mp. The reading that showed that I had dropped again appears to have...
Hi ER212, I am not an expert at this by any means (I just got diagnosed in February), but hopefully what I have learned so far can provide some help/comfort. Regardless, do know that it is completely...
Hi wavefunction, My first flare was pretty aggressive and when I failed to respond to Asacol, Cipro and Flagyl, my doctor put me on low dose (25 mg) prednisone. At that point, I was extremely weak...
Hi Eva Lou, thanks for directing me to your post! I went to the see my GI doctor today and got my blood drawn for a bunch of anemia-related tests as well as for the Prometheus test that will check my...
Yes, in fact, when I go to the doctor's office tomorrow, I'm going to have blood drawn for that test. It is confusing how they do it, I think that I have to go to the building across the street from...
I've been on a relatively slow taper, started down 5 mgs the first week and then the weeks after that I dropped by 2.5 mgs when I mentioned to my dr that there was some increase in the bleeding. The...
Yep, right now I'm at 30 mg prednisone down from 40 mg. After overthinking this a little bit more, I'm starting to wonder if the prednisone taper has more to do with the RBC situation than the 6mp....
Thank you so much for your response, notsosicklygirl. I think the hardest thing about this is that I don't really feel bad--in fact, I expected that my RBC count was going to go up this week because...
I have been on 6MP for a little bit over a month now while I have been tapering off prednisone. I've been feeling pretty good lately and my weekly blood work has been good too, no liver toxicity,...
Good afternoon :) Has anyone had luck combatting the mood swings brought on by prednisone by taking an anti-depressant? I started on 10 mg/day of prozac a few weeks ago and thus far, it's not having...
Thank you guys for responding so quickly :) My basic story is that initially, my doctor thought that I had an infection, so I went through all the stool testing and nothing came back positive, so I...
Good morning everyone :) This is my first post here and the title of this pretty much sums it up. I have just been diagnosed this week with IBD (most likely UC) after suffering from symptoms for a...