Is that generic for 6mp? I started that yesterday....
My creatnine has not bounced back. It has slowly come down a bit but staying at 1.5 or 1.6 so she did the biopsy to see if the damage is permanent or reversible with medication. Does anyone know how...
Yes I went from 0.60 creatnine to 3.0 in 8 months while being on Apriso. My GI never once checked my kidney function and I landed in the hospital last summer. My kidneys have been slow to bounce back...
I had my overnight stay in the hospital for my kidney biopsy. Thankfully my GI Had prescribed me Pred to get me out of a flare because I was bedridden for 24 hours. I am now tapering at 30 mg. and he...
It looks like 6mp is in my very near future. What is the difference between that and Imuran? Is one better, stronger, a different type drug?...
Captain I like the sense of humor.... and with this disease we have to find humor where we can! I agree you must have some rectal inflammation, I myself ended up back on oral Pred this week, and my...
IBD and Bananagirl, thank you so much! He did say he wanted me to still be on Pred when I start it so I would think that will be after my biopsy in a couple of weeks. Hopefully the Pred gets me out...
Also, does anyone use anything to sleep while on Prednisone? I can't sleep for anything when I am on it....
Hey y'all. Well, it seems my good run is over. After my hospitalization last summer for acute kidney failure from Apriso, my 5 weeks of Prednisone put me in remission until January. I believe my...
Hi Enjoygolf, I too live in the Marietta/Atlanta area and have had my share of GI dr. Maybe we should compare notes....
The cost of a kidney function test is nothing compared to what dialysis is. I hope I don't end up there, but it was negligence on my GI part to have me on 4 Apriso daily for 8 months and never do a...
PLEASE get your kidneys checked regularly while on these drugs! Take it from me. I was on Apriso for 8 months and when I started, my creatnine was 0.60. 8 months later at my regular Dr, she did...
It only took 8 months for mine to go from normal at 0.40 to 3.20 which is 20% acute kidney failure. I went to my Nephrologist yesterday. My urine is completely clean now after a month on prednisone...
No symptoms. I went to my reg PC Physician for regular cholesterol, thyroid screening and the creatnine levels showed up in my bloodwork. It was 3.20 and normal is below 1.0 I spent 3 days in the...
I was on Apriso 4 daily for 9 months. The GI never monitored my creatnine level... at my reg DR for routine bloodwork they found out my level was 3.20.. its supposed to be under 1.0 I ended up...
Yes.. I ended up in the hospital with a reaction to Apriso 3 weeks ago. I only had 20% kidney function... they say its rare but it happens. They never once checked my levels during the year I was on...
I recently had to start getting B12 too.. my Dr. says I dont absorb it. I have been going to their office though... first it was once a week.. for a few weeks now its to every 2 weeks. I love it......
Agreed, P&H. Seems they have their own way of doing things and mostly don't listen to us. I am off all mesalines (sp) due to kidney reaction.. so I am unsure of my course of action when I am off...
Hi all, Well I just started tapering on my prednisone from 40 to 30 mg daily. I, for one, love prednisone. No colitis symptoms whatsoever... I eat like there is no tomorrow and thoroughly enjoy it,...
I went to see my new GI today. His name is Dr. Kim in Woodstock, at Towne Lake. Youngish, very personable and actually the first GI I have seen that really just talked to me instead of at me. Wants...
I have most recently been referred a a Dr. Kim with GI Specialists in Woodstock, Ga. This after previously being hospitalized because my GI did not monitor my kidney function while on Apriso for 8...
Thanks, it really is. I said on another post that the Sleep deprivation, the huge appetite, the loss of my facial wrinkles, my happy personality, feeling of well being, having 2 perfectly formed...
Honestly, the sleep depriviation, how good I feel, the big appetite, the loss of my facial wrinkles, my feeling of happiness, having 2 formed bowel movements a day.... it's all worth it to me....
I am on 40 mg of Pred right now and feel great, other than sleep deprivation. I am not suffering the night sweats that I did a year ago with Pred though. I am going on night 3 of no real sleep, just...
I wanted to give anyone interested an update: I received my creatinine level today, it is now 2.25 so going down nicely after removal of Apriso. My hemoglobin is low due to no absorbtion of B12 in my...
Well yes 3.20 is scary but good thing I didn't know it at the time. It only took 8 months too. I just reacted that doesn't mean everyone else will. When I left the hosp I was 2.7. I had blood drawn...
Mine was found in a comprehensive metabolic panel (blood), not urine. Urine did show some white blood cells which they thought was an infection but it wasn't, it was protein. My regular GI checks my...
Aguy, I never had my blood checked by my GI. When I went on Apriso, 2 months later I had routine bloodwork at my reg Dr and my creatnine was normal. In all my followups with my GI they never did a...
Beth, Wow you just said exactly what the nephrologist said.. but I understand it when you say it! I was only on Apriso for 8 months but never had monitoring by my GI. My reg medical Dr was running...
This past weekend when I was admitted to the hospital due to a kidney reaction to Apriso, I received my own private room. I did not request it nor could I pay for it. When I asked, they told me they...
Thanks, being new to UC I really didnt do my research. Everything I have learned I learned here... thanks to you ladies and gents. Tomorrow I have my follow up with the kidney specialist. I have my...
Just wanted to make sure you are aware that if you are on a regular daily dose of Apriso for maintenance that you should be getting kidney function bloodwork regularly. I was not and ended up in the...
Yes and I loved Rowasa! I am being released today due to the fluids I have been getting and the prednisone in my IV has lowered my levels. They are still high but controllable at home. I will be...
Hey from the hosptial :( Update..... after having many many labs and tests this week I have landed myself in the hospital to figure out why my creatnine levels got so high. They called in a kidney...
Thanks Q, This morning I returned the "jug" and the stool cards and I gave about a quart of blood yesterday. I am also on Cipro for a urinary tract infection, my first ever. I was told that it could...
Thanks Sue, I will check into that!...
Update* My Dr. said no more Apriso. Ran lots of tests today, including a 24 hour urine and stool cards. Informed GI about the increased protein levels and she said if I suffer colitis symtoms I will...
Hi all, I have been reading but not posting as things have been pretty good with me. Last week I went to my MD for my regular blood testing (thyroid, cholesterol, sugar, etc). Today I get a call...
Mumbai, I was diagnosed with pancolitis also. A while back a GI I dont normally see did a flex and gave me steroid enemas to take. Previously I stayed nauseous all the time. I did the enemas and they...
I have a loss of appetite when I am flaring due to nausea. I started drinking Coke because it is the only thing that will settle my stomach when I am nauseous. Things I used to love I now have an...
This past week I knew I either was in a flare or had C Diff. Even called my Dr to see if I could come in for specimens but they never called me aack.... I was going 3-4 times a day, liquid and gas....
I work fulltime for the school system in an office that I run. Forunately theres a RR close by if needed and my admin is well aware if I say "I have to go", he understands. :) I have been lucky that...
Pink, my GI is firmly against them.... would not give me a refill but I know they help me. Song I am with you.. I think they heal!! I have had only one BM today, yes it was very loose but no mucos...
I think I am in a flare and have been doing Rowasa nightly. Last night I did a hydrocort enema and even though today my BMs weren't healed they are improved, my stomach not so noisy and I have had an...
Well I only drank 2 of them, but it was enough to set me off, that and the fact that I didnt do my Rowasa while on a trip. Last night I did a hydrocort enema gonna see how today goes before I call...
lessons learned... I am but a mere catapillar.......... :)...
Q, I think I wanted to forget I have UC while on that trip and for the most part I felt good. I just did a hydrocort enema since I have a few left, will rotate for a few days with Rowasa. I am...
Q, You are so right. This has been a roller coaster for me. Apriso is the only oral I am on. I should have worked out the Rowasa when I was out of town, I see that now. No more Ensure. Maybe I need...
Q, I was doing Rowasa nightly until I went to the wedding in NJ. While there I didn't do any and when I returned I started the Ensure as I was worried about my weight. I then started having lots of...
Thank you for your imput. I will check into it as I am mostly having gassy, liquid BMs now. This morning I may have seen blood. I have been doing my Rowasa for 4 nights straight, I was thinking of a...