Hi Natalie - So sorry to hear of your struggles. My son was diagnosed with UC in November 2010 - pancolitis. Getting him stable-ish took almost a year due to several bouts with c-diff, which I don't...
I've researched several more opinions (third, forth, fifth....) for my son. It is your right to ask for a second opinion and any dr. worth their salt will not be offended and should even encourage...
Or, more specifically, somewhere dedicated to treating children with Chrons/UC? Are there any doctors recognized as the best in IBD?...
I guess I could have found that myself :) Thank you for posting!...
Do you take the Florastor while also on the antibiotic or do you wait until the antibiotic course is complete? thanks for all the advice everyone!...
Thank you for the advice - I will look into Florastor and will learn more about fecal transplantation. I find it fascinating that none of the docs I've spoken with have brought any of this up. This...
Is there any way to get rid of c. diff once and for all? I think my son has c. diff again - he had it the first time right after he was diagnosed and starting to taper off prednisone. Everything was...
Totally understand that we need a maintenance med. We are eliminating sulfa for the weekend to figure out if maybe it really is the cause of the blood, tho I'm not holding my breath. We've never...
Just talked to the doc who wants us to stop the sulfa, kick up the prednisone again for the weekend and get tested for c.diff. Stay tuned....
I've heard that you should fridge them, if you can't get them to the lab w/in 2 hours. And, even when you get them to the lab, they fridge them there until the tests are run....
thank you both (and all). my son did have a c. diff infection during his first episode/taper. he was diagnosed over thanksgiving 2010 - hospitalized at that time, blood transfusions, the whole bit....
My son just started tapering off prednisone - he was on 50 mg, down to 40 mg, and now that we've hit 30 mgs (started that dose yesterday) he had diarrhea this morning and then diarrhea again tonight,...
Thank you so much to everyone. Every day is a challenge right now and I am trying to keep my head up. My son just had labs done again this week and everything is all but normal, which is amazing,...
My 7 yr old son was diagnosed with UC in Nov. 2010 and it's been a bit of a roller coaster since then. We still haven't figured out the right medications, etc. Some questions for you.......