base on your definition she is more on the mild side. and I think her colonoscopy results are consistent with that. Thank you! Hopefully the doc will offer her something else....
thanks I just looked back and saw that I was given Entocort not prednisone. I think what ultimately helped me was the Rowasa but it is hard to have her do that when she is in a dorm. She comes home...
I wrote about my daughter in college who has had her first bad flare after her first colonoscopy. She finally saw the GI who prescribed her Lialda but told her to check back if that did not help in a...
Thank you. She finally got some immodium yesterday and that seemed to help tremendously. She took 2 midday and that is all she needed all day and woke up ok this morning. She is being really careful...
She seems to be getting worse and I am concerned. She did ok most of today then was doubled over in pain on the toilet tonight texting me. She is super stressed about school and it's a catch 22...
Thank you so much. Great suggestions....
I have had UC for about 20 years. This year, my 19 year old daughter started showing some symptoms. She had various tests and finally had a colonoscopy last week. I flew out to her university (at a...
Thanks. I am fine staying on the meds. I have no problem with the Canasa suppositories and Lialda so if there is no problem with long term use, I am good with that too. I seem to remember the doctor...
About one year ago, I experienced a flare of UC that was awful for my personal history but probably moderate comparatively. It had me down and out for over two months, lost weight, weak, but no...
I started Lialda around 3 months ago. When I went into my first major flare at that time I was put on Entocort for 3 weeks as well as Lialda and continued with Canasa. So I can't say for sure what...
Hopefully he is being overly cautious and this won't be too serious. Best wishes for speedy healing....
My daughter and I watch Idol faithfully and I cheer extra for Casey knowing what he is going through. I wonder if he is on steroids because his face does seem sort of puffy to me. Anybody else notice...
Old Hat- your description of the spasms of the rectum was spot on. I have read many professional, medical descriptions of UC and they don't begin to understand or describe some of our symptoms in the...
How often do you take your levsin (or generic)? Just as needed when you feel crampy or more regularly? I have only been taking it here and there, maybe once a day such as when I was on an airplane or...
So I continue to feel better since my flare that began around Feb 21st. I actually flew from Charlotte to Phoenix yesterday, about a 4 1/2 hour flight and didn't have to get up to use the restroom....
I've been on Lialda about a month and I think its helping. Doctor said it can take 6 weeks or so to really kick in fully. I haven't had any side effects that I know of......
I wonder if your doctor would consider something like Entocort which, according to my understanding, is a steroid that releases only in your intestines so you don't have the systemic effects. I also...
I'm still trying to figure out the best diet for me. I don't think any particular foods upset my colon but I do think smaller meals are probably better for me. I started eating some larger meals the...
No mention of steroid enemas. I think the doctor prefers to avoid all forms of steroids if possible. But the BEST News is that I slept all night last night!!!!!!!!! I used the rowasa enema at around...
I posted on Sunday about my progress. Sunday night I used a rowasa enema and retained it until about 2am. Monday I felt better than I had in a month. I went to the doctor who told me she honestly...
I really have come to realize that the feeling of constipation is actually all that rectal inflammation. The rectal meds help tremendously to get things moving....
My doc gave me one week of the rowasa enema (generic) and it did seem to help as after 2 nights I finally started to have formed stools. I have one dose left which I'll use tonight and I'll discuss...
I have improved quite a bit since my flare started a month ago or so. I completed the three week course of Entocourt and took my last dose of it about a week ago. I am continuing on Lialda 2.4 daily,...
As my flare seems to be subsiding, I'm considering adding metamucil to my regimen. I bought the capsules and intend to start with one. Any suggestions about morning or evening? Right now, my stools...
That is unfortunate as they are ignoring their own published guidelines based on the latest evidence. I wonder if they assume their patients won't tolerate or be compliant with the topical rectal...
I've just spent some time reading the2010 UC treatment guidelines published by the American College of Gastroenterology. They are well worth a read and really reinforce the idea of "treating from...
I did skip the enema last night- hubby was already in bed and I just really wanted a good night sleep. I did do the Canasa supp at bedtime and slept pretty good til 4am, up a couple of times to use...
I've used the mesalamine enemas for four nights now and they seem to be what have finally got me to have some solid bms. I've only been able to retain them until about 4am and then I've had to go to...
Another night, similar pattern. Held the enema til about 4am but not in a good sleep during this time. Then several bathroom trips until about 7am when I was finally able to sleep for about two...
The doc only gave me a one week Rx with no refills. I go back to the doctor a week from Monday. Should I call for a refill so I can stay on it for the duration or go off it for four nights before the...
Used my third dose of the generic rowasa enema last night. I stayed up sort of late watching tv, took one vicodin about thirty minutes prior, and rememberered to shake the bottle and squeeze the air...
Externally using prep h and witch hazel wipes. Is there something else to try? Need to update my sig with the generic rowasa enema i started two nights ago. Hopefully I'll be better able to retain...
Started using some ice packs on my sore rectum today and they are helping tremendously. I know I have at least one external hemi and not sure what is going on inside, but I've been struggling with...
Night two was a bit better. I squeezed the air out best I could and used it in bed before hubby came in. I had my iPad set up so I could watch an episode of The Good Wife while lying on my side. It...
Thanks for the detail about getting the air out of the bottle. I will try that tonight. I definitely tried to empty out everything I could before the enema last night but I've been going every hour...
My first rowasa enema was ok. I think I need more detail about how yiunguys squeeze the air out of the bottle first. Can you please describe exactly what you do? I think I got the whole bottle in and...
These tips help a lot! Stuffing some tp in my underwear sounds smart. I'm afraid to pass any gas right now if I'm not on the toilet because usually something else leaks out too. Also having some...
First, let me say thank you for the information and support on this forum that I have received over the last two weeks as I have dealt with my first big flare. I am definitely improving slowly but...
I am having a similar scenario, so your situation is definitely interesting to me. I started my flare with what really seemed like constipation. The doc advised me to take miralax daily indefinitely....
Thanks for the quick replies. I inquired about enemas earlier in the week and the pa said she thought they would be too irritating based on my symptoms. I am using the Canasa suppositories and I...
How do I know if I need to go to the hospital or just ride this out at home? I started meds abou 1 1/2 weeks ago and seemed to start feeling better a few days ago but feel worse again today . The...
I started Align last week along with the other meds. Just opened the mail and doc sent me my lab results. Sed rate was 65 (normal 0-20) which was what got her attention I think. WBC and Platelet was...
I thought I created a signature but I guess it didn't work. I am on Entocort 3 pills a day for one week, then 2 a day for week 2 then 1 a day for final week (at least that's the plan). I have had 6...
I was optimistic last night because I slept about 4 hours with little interruption. The next four hours I was up hourly with D that started out yellow brown then became more bloody. I have a lot of...
I started on my meds on Wednesday. I noticed the Entocort made me very sleepy so yesterday I took it in the evening instead last night (after taking it in the morning too). I slept better but I was...
Thanks for the reply. How do I know what is the disease and what is the meds? I am feeling a little better this afternoon but still tired. Is there something I should try for gas cramps or won't it...
This is my first post here but I have been a lurker for a while. I am so grateful to all of you who share your experiences with UC. It helps not to feel so alone. I was first diagnosed with...