What was your longest period of remission?...
Hi, I have had UC for 10 years now and the longest I've gone without flaring is 2 years. I want to know what's the longest you guys have gone without flaring and I want to know: 1.) What meds were...
Great, honest post. A Lot of you have mentioned you think anal sex actually triggered flares. It's something to consider: What do you want out of life?...
coffee is bad, 'm kay......
It is so bizarre what we do to make it through the day while flaring. Once when I was having a flare, I would give myself an enema before leaving the house (to empty as much as possible) I would take...
am on them now. Both were recommended by my natropathic doctor. It's only been a couple days so we will see what the result will be for me. Good luck. Becky...
Are you at work?...
:mad: Now on Imuran 125mg Pred 40mg Probiotics buttloads Boswellia Aloe Vera...
:yeah: I am so excited by this thread as Briggs is verbalizing the new theory for immune disorder development in such eloquent terms. There is so much study on the GI tract and the relationship of...
Hey, I just wanted to ask if there is anybody with bad insurance or not insurance that pay for Remicade or Humara. I have bad insurance and My MD was thinking of putting me on Remicade in the future....
Congrats, KS for the plan for surgery! So, what about electrolyte imbalances after the j-pouch surgery? What about the potential for dehydration? Malnutrition? How have people been doing with that...
So, I have had that problem too, MikeSoCal, with having inconsistent reactions. But, then it makes me believe it's not the food, it's the disease... I know the reactions I have consistently are from...
She sounds great. So, she recommends paleo-like diet? Are there any differences?...
Hey Marianne, You have the j-pouch? Does that mean they took all of your large intestine out? i just need my sigmoid colon removed, but I still want to poo through my bum. Becky...
After hearing about it from you guys and reading abit about it I finally broke down and spent the $60 to get VSL# probiotics. I hope it works!!!...
Maybe, I'm not that bad yet......
Thanks, Liz for your insight. Who else has some surgery experience?...
Hi, I have been diagnosed for almost 10 years with U.C and feel like my sigmoid colon is getting weaker and weaker. Like, it bleeds from very little insult now. I am starting to think of surgery to...
I am an educated woman who is a nurse and has personally studied nutrition independently for years. But, if find that I am so bombarded with conflicting information about what is good and what is bad...
I am hopefully optimistic for you! B...
To my fellow U.C sufferers who need this option, this is how you do it: 1.) collect the poop of the donor. 2.) Add water to make a solution. Some people like to add saline solution. Shake or stir....
Just throwing a resource out to the group. Check out Boswellia and Turmeric for the treatment of U.C with your Naturopath! It's worked for me, and like I mentioned before, fecal transplant seems to...
Hello my friends! I am thankful for this blog as it was the first source to teach me about fecal transplant. For those of you who don't know, fecal transplant is when the poop of one person is...
Well, I am on Imuran and have upped my dose to 150mg (the original dosage). This is how I got off Pred before without rebound flaring. Back in the day, pred did take all my symptoms/signs away, but...
So, I guess the new thing for a mild flare is to take a few days of prednisone at the thereaputic dose and then stop without tapering. have you guys experienced that and have done well or has it...
KISS, DID YOU GET DIFFERENT RESULTS IF THE SUNFLOWER SEEDS AND SPINACH WERE ORGANIC?...
LOOKING FOR MAINERS WITH IBD WHO WANT TO MEET REGULARLY FOR A HEALING WELL FORUM IN PERSON. EMAIL: [email protected] BECKY...
No coffee for me!...
I too have a hard time with 5-ASA's. I have tried Mesalamine (Lialda) twice and the result is TORRENTIAL diarrhea and vomitting! I am trying Sulfasalazine (another 5-ASA) and I will see how I react...
I too have read the good news about Boswellia and Turmeric's effects on UC. I have taken these myself which I think help with remission (for me) but they have not reversed a flare. But, I did not...
Hey everyone, I've been researching anti-inflammatory foods and came accross cayenne pepper. I was surprised as it is so spicy. Does anyone use ceyenne pepper to control/prevent inflammation? What...
Hey All, So, this is the third time I've been put on Imuran. I have not stayed on it over a year each time to avoid the side effects. I've been on it this time around for 6 months and my liver...
thanks for the folic acid suggestion. i do take a prenatal vitamin so maybe that will help!...
thanks for the replies. i took it for about a year at a dose of 100mg. my hair thinned but there were no other issues from it. i stopped taking it for a while and used diet and herbal remedies to...
I recently spoke with a women with crohn's diseases who got toxic from imuran and had to have surgery to remove parts of her body. i am on it and was wondering if others have had issues with it? I...
glad to hear you're off prednisone. i m trying to taper off of it myself... currently on 20mg....
couldn't you guys just use a nicotine patch?...
just wondering what foods other people with uc must avoid at all costs all the time. i have identified coffee as a caustic substance for my uc,and hot peppers, and too much roughage. what about you?...
i take l-glutamine, licorice root, aloe vera, right now. i have taken turmeric and ginger in the past. these are good for maintaining remission. for MILD inflammation i have used cat's claw. some of...
so, i started flaring in late august, went on 60mg of prednisone and started imuran 150mg which brought things under control. had a colonoscopy yesterday which looked mostly good: some swelling in...
this is a great post. UC has made me accept my limits as a human being who needs rest, good healthy food, and exersize. if i don't take care of myself, i get sick. so i am forced to take care of...
that's interesting about the percentage taper. that's why i should taper slower when i get to smaller dosages......
hello, i am currently on imuran and it helps me. i'm on 150mg and hope to decrease my dosage after about 6 months when (hopefully) i am in remission for that long. we'll see. in the end, you have to...
hello everyone, just wanted to post so i stay connected with you guys. i was reading the posts for today and nothing was really pertinent to me so i figured i'd just write a hello. i am on 35mg pred...
do you guys suggest taking a probiotic on a daily basis even when your in remission?...
i agree, he should see his doc. we're not there to see what's going on......
if i want to be nice to my colon, i can't have hot peppers! i want to stomp my feet and deny that fact though, so it's hard to be compliant......
i wish you luck with achieving remission! as far as the l-glutamine goes, i take it in a mixture 4X per day. i haven't read of any horrible side effects from it but you can research online to see if...
i do know i shouldn't take motrin and that fact became crystal clear this time around......
i had to stop breastfeeding when i started imuran, unfortunately....