Hi seconder. I have axial arthritis, am HLA-B27 negative, and am in remission from UC (2+ years). I was diagnosed with AS in 2010. I've tried Humira, which helped a little, LDN, which helped a...
Hi Trojen. You asked the question whether FT might help with other autoimmune diseases. Speaking from personal experience, FT worked for my UC, but not for my axial spondylitis (possible Anklylosing...
My experience with UC related arthritis has been more frustrating than the UC itself. I have axial arthritis (which may be AS, but has not been officially diagnosed as such). I had good results using...
Thanks for the update, diaper man. Which probiotic did you use? Would you mind updating us again about your condition in a couple of months? I would definitely like to hear if this treatment is...
Hi Red. The type of antibiotic(s) is going to depend on what type of bacteria is present in the joint (at least the ones that shouldn't be there). You can gamble and try a couple of different...
I guess I should have done a better job clarifying, but inducing inflammation of the SI joint gives the instruments room to take a tissue sample....
I truly believe that all forms of arthritis that have a bowel component to them are simply versions of Reactive Arthritis. There are many species of bacteria that can induce RA. All are typically...
Thanks for the links, Dr. Stone. Have you read about the Marshall Protocol? If so, what is your opinion about the use of olmesartan? http://mpkb.org/ ...
I get SI joint flare-ups, as well (along with my entire spine and left shoulder). The only medicines that I've been able to take that can touch that pain are Humira and Ibuprofen. I don't recommend...
I've never tried this, but I just wanted to wish you luck. Please keep us updated with your progress during and after the treatment....
Great article. Thanks for posting. Does anyone know if Prevotella is included in any probiotic formula?...
Hey DanthaMan. Please, keep us updated with your progress! How were you able to get approved for the Mycobutin? Did you get a MAP test? How long do you plan to continue taking it?...
Sorry to hear that m2p. How many infusions did you end up giving yourself before you had to call it quits? Do you think that FT made your symptoms worse?...
Hi Red. Sorry to hear about your daughter's allergic reaction. Maybe the Minocycline and Tetracycline dosages were too high? Her doctor should probably be aware of her current progress....
I know this suggestion sounds a little crazy, but when I tried FT, I used to do handstands against a wall for as long as I could hold them immediately after the infusion. The object was to get the...
Hi Runner's Mom. Have you seen this article? http://www.sciencedaily.com/releases/2011/02/110224091607.htm I've been trying out bovine colostrum lately to see if it has any affect on my arthritis,...
Hi pupluv, before you try FT, read this article: http://www.sciencedaily.com/releases/2010/08/100823172331.htm A few of us on this board have had success with FT (including me), without the...
Thanks for responding, Alinus. That's really interesting. By the way, what are you doing to treat your AS?...
This might be a good reason to have your stool tested during a flare: http://www.sciencedaily.com/releases/2011/03/110321094231.htm I'm curious, has anyone seen a therapist or psychiatrist concerning...
Science is beginning to get closer to understanding how microbial communities interact: http://www.sciencedaily.com/releases/2011/03/110321162001.htm Thank you CCFA!...
Thanks Nor_TX. So, before you started Avelox, you had no pain in your shoulders and hands, just your knee? I'd love to hear if there were any changes to your arthritis after you finish your...
Thanks for the link, C_G_K. Here is another article from the PARA website that talks about MAP and the politics surrounding it: http://www.crohns.org/media/freetms1.htm This article was taken from...
Hi Nor_TX. Does the Avelox have an effect on your arthritis symptoms? Is your arthritis peripheral or axial?...
In my personal opinion, the fact that an antibiotic helped one person and hurt another proves the bacterial dysbiosis research. But, what sets the stage for dysbiosis? MAP could be one culprit. But,...
Hi Fruitgirl. I have also tried FT with success, but am unfortunately now taking Humira because of my axial IBD arthritis. After I tried FT, I had ZERO problems in the colon department. 1. How bad...
Very interesting Alba29. What worries me the most about IBD studies is that most of the studies done are on Crohn's disease, instead of UC. If a bacterial eradication treatment method is eventually...
Minocycline, another tetracycline antibiotic, has the ability to kill many Mycobacterial strains. Maybe demeclocycline has the same effect? Has your father noticed a difference while taking this?...
To everyone that is getting discouraged by the MAP connection and the lack of treatment options, keep in mind that this information should be presented to your GI, GP, and anyone else that you're...
C_G_K, I think you hit the nail on the head when you guessed that MAP survives antibiotics, then thrives after it's checks and balances are removed. When those of us tried fecal transplantation with...
I posted this in the "Links" sticky, as well. I just wanted to make sure people saw this: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3031217/?tool=pmcentrez Dr. Borody is looking more and more like...
Ulcerative colitis and Crohn's disease: is Mycobacterium avium subspecies paratuberculosis the common villain? http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3031217/?tool=pmcentrez ...
Ulcerative colitis and irritable bowel patients exhibit distinct abnormalities of the gut microbiota http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3002299/?tool=pmcentrez ...
Wow, what a cool project! I can't wait to see the results. I can easily see an expansion of this project to include a look at gastrointestinal diseases in action, as well (at least I hope they do)....
Hi aguywithuc. I think I gave myself 10 straight days of infusions in late June/early July. Then, another 3 days of infusions towards the middle/end of July. I stopped all UC meds in August sometime...
Hi ansui. My UC experience has been similar to yours in which my joint pain was, by far, my worst symptom (axial enteropathic arthritis). I finally realized that the daily pain wasn't worth enduring...
Hi idkwia. My colon is doing great these days. I've been completely off all meds for the last 4 months or so. My arthritis never really calmed down, however, and it forced me to get a prescription...
The Role of Bacteria in the Pathogenesis of Inflammatory Bowel Disease http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2956340/?tool=pmcentrez ...
I've been dealing with some pretty mean axial arthritis flares since about 2005. I've been able to get my UC under control using fecal transplantation, but my arthritis won't go away. A couple of...
Hi MOMUC19. Congrats for trying this method of treatment. It might be easier to determine what method works best for your daughter if you are more consistent with your enema contents. For instance,...
Intestinal Enzyme Helps Maintain Population of Beneficial Bacteria http://www.sciencedaily.com/releases/2010/10/101018121442.htm...
Hi subdued. How long were you in remission before you had to take antibiotics for your bladder infections? The second time you did fecal transplantation, who was the donor?...
Thank you for posting this, NiRo. Guess which species are found to be in high concentrations in cigarettes, as well? Both Klebsiella and Proteus....
Hi juju. When I was using Canasa suppositories, I was also seeing this substance. I'm not sure what causes it ... maybe it's a mixture of the waxy material used to form the suppositories and feces?...
I tried fecal transplantation a couple of months ago using my wife as a donor, and am still doing fine. I'm not taking any meds right now and I did not use Dr. Borody's antibiotic protocol before...
Bacteria Penetrate the Inner Mucus Layer before Inflammation in the Dextran Sulfate Colitis Model http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2923597/...
If you have the ability to so so, try the non-antibiotic method first. It does seem to have a positive effect, and as long as you know the health history of your donor, it won't be as much of a...
Hi tankor. My colon seems to be doing fine. I am still off of my meds. My arthritis still bothers me, though. My shoulders hurt pretty much all the time, and my SI joint and mid-back pain comes and...
tankor, no I didn't do either of those. Here's a link to the thread where I tried to describe my process: http://www.healingwell.com/community/default.aspx?f=38&p=4&m=1662417...
Tankor, I didn't take antibiotics (unless you consider the antibiotic effect of mesalamine), but that might have been a good thing: http://www.healingwell.com/community/default.aspx?f=38&m=1883932...
I just wanted to add an update to my progress. I completed 10 days of home transplants in early July and am still doing fine. One interesting note I observed was that since I completed the...