I don't wanna give people false hopes but yes it works for me. I also don't wish to promote illegal drug use but medicinally it does wonders. I was on remicade since 2010 which worked very well so...
Thank you. I hope it keeps up also. I've been off of remicade for almost a year and had only 1 flair before I ate a brownie a day. I now fully believe the medicinal use of marijuana. In the US some...
Hello everyone .. I have been away for awhile and am finally in remission. Its been a journey but I hope what I share will help someone. Although I am in remission now I have bad UC. I've been...
when i first decided to try nicotine i used the patches and had similar results as i do with the e-cig. I just switched to the e-cig cause its soooooo much cheaper. If you never smoked before or if...
Hey there my fellow vaporer. . I have also had very good results from the e-cig i use the 12 mg about 50-60 puffs a day give or take on what mood im in. Blood was gone after a couple of days and the...
Thanks!!! I just apologised cause although i am excited for myself i feel bad for everyone who is in a current flare cause i know exactly what its like. As for the d problem Im not sure why my GI...
They are not as bad as a normal ciggerette cause there is no smoke or tobacco. But i cant really say if they are safe. Its a vaporized nicotine and there are many debates on if they are safe or not....
Its an electronic ciggerette. . You can order them online if you can find them anywhere around you. There are many brands to choose from but the one i use can be found at v2cigs.com. . You can check...
I use an e-cig. . Works for some others say no.. For me it works. . Patches worked for me also but for the price the e-cig was the way to go...
Went to GI today after my second infusion of remicade and was told everything was looking so well that i didnt need to come back for another 3 months! (just for blood work) I still have the d but im...
Hi and welcome to the forum shelbyc. . Im sorry to hear what you are going through. As of yet my longest hospital stay was an overnight so you have it worse that me but i do share some common...
Hey nicki.. well Saturday was a bad day went about 6x from around 8am - 12pm .. not sure what brought it on but after lunch I felt better and today I only went 3x all day... I'm still on loading dose...
I was on sulfasalazine for a bit. I was having a lot of joint pain with my UC so my GI told me that sulfasalazine was originally made for arthritis but it was also an old med for UC as well.. he...
Day 2 after my infusion ... I still have the d but I only had to go once this morning and once after lunch. No urgency just felt like I had to go .. I feel so much better and I hope I can get rid of...
Downstate ny...
Hey.. just had my first infusion today so I'm no expert but I did my homework before I chose to go on remicade. I've read a few things about weight gain on other boards but I haven't seen enough to...
I just had my first remicade infusion today.. everything went well and I got through it with no side effects at all. Not sure of its working yet but I haven't had a bm since. I went in.. I guess...
I love prednisone but at the same time I hate it.. side effects hit me but the bottom line is it works.. I would love to be able to stay off it but right now its the only thing that keeps me up and...
Thank you for the reply and the info.. I hope its just something else since I only have the joint problem... I am always tired but that is also a symptom of the UC .. maybe this will all go away with...
Hello everyone.. I'm new here I mostly hang around the colitis forum but it seems like I'm gonna be here as well. I don't really understand a lot about lupus and how its diagnosed all I know is my...
I know what your going through right now cause I'm right with you. Prednisone gets rid of the pain but its a nasty drug I'm almost done with and not going back unless its an emergency. My GI switched...
Thanks for the replies everyone ;) Went to GI today and I'm switching up my lialda for sulfasalazine and I'm set to go for remicade in 2 weeks.. I hope it works...
Oh I'm sorry .. I am so scared of that happening I don't even leave the house durring a bad flare. Once I went to the store and it hit me as soon as I pulled out of the parking lot .. I don't live...
This post is making me want to go with remicade.. glad to see your responding well and I hope it stays that way...
Thanks for the support I'm sorry to see you guys are going through this also @jano what meds did your rheumy give you and do they help? Mine only gave pred. And after this taper I'm done with it .....
@red 34 yes I had a blood test and it was negative but no xrays or mri's ill check out that website now..thanks ... nothing has worked for my UC so far besides prednisone and that didn't even stop...
Hey everyone .. I started having joint pain about a month and a half ago maybe 2 months ago not 100% sure.. anyway it first started in my shoulders on both sides. It hurt so bad I couldn't even raise...
Hey sicktree is your book finished and published? I would love to buy a copy.. it is great to see you post here.. loved your story...
Welcome tori!!...
Thanks for this .. felling a little down today and this got me laughing a little...
Happy to hear everything went well .. making me feel a little better about possibly going on remi .. not sure if my GI is gonna have me go with humira or remicade but I hope my experience goes as...
Yeah stress is major for me.. it triggers a flare every time. My doc told me I need to relieve some of it but its just impossible .. if you find something that helps let me know I would love to try it...
I totally agree that you need a new doctor that will take these things more seriously and get to the bottom of your issues. I couldn't agree more .. my first GI doc wasn't doing anything for me so I...
I've never had a problem with rice or pasta but wheat products are enough to put me down... have to agree with others.. trust your gut .. what works for others might not work for you so if you feel...
Ha ha ha ha .. oh I have heard all of these many times.. all I can do anymore is laugh .. its the only thing that keeps me sane (I'm not laughing at you by the way.. just laughing cause I can relate)...
There are many brands to choose from I personally use the v2 e cig you can get them at v2cigs.com .. it does help me a lot but my uc is very stubborn so its gonna take more than nicotine to reach...
I got very bad headaches and nausea. I lasted about 2 weeks on it before I couldn't take it anymore....
I'm from ny but would love to go to australia :)...
Its nice to see it work for someone else too.. I am also using an e cig and it really does help a lot.. I haven't been able to reach remission yet and the only thing so far to pull me out of a bad...
Just some info for those with android phones there is a free app in the market called Medscape. It has info on a whole bunch of diseases and medicine. It has dosing info and side effect info. It even...
6mp made me so sick .. I only lasted about a week and a half - maybe 2 weeks and I was throwing up everything .. I couldn't even keep water down .. I agree not fun at all...
Welcome to the forum organicwoman. Sorry your not feeling well .. it does indeed sound like a colonoscopy is in order.. don't worry too much the prep is the bad part .. the rest was easy ;) .. its...
Yup unfortunatly I too get fatigued durring flares .. the worse the flare the more exhausted I am. Hang in there and I hope you get some relief soon...
Thank you mom2panda and toughtimes I really hope the remicade works cause I just took my last prednisone yesterday and I can already feel everything coming back. As soon as I got to 10mg I knew it...
I am very happy for you and also very jealous! Congrats and I hope to join you soon .. its a tough battle and it does make me feel a little better to hear about people going though the same thing as...
I think the lialda helps but its not enough for me .. GI said I could take 4 a day but it seems when I take 4 the outer shell only breaks on like 2 of them so its a total waste ... I keep flaring up...
I had the same exact reaction to 6mp .. as soon as I stopped taking it the pain and vomiting went away the next day.. Im not telling you to stop your meds but I would ask your GI if you can stop or...
In my experence stress does tend to make my symptoms worse from time to time as far as the probiotic I know where you are coming from. They can be a little pricy. I asked the pharmacist last time I...
Thank you dr-a and babeinthewoods.. I will check that out now as I said I'm pretty desperate at this point and I am willing to do whatever it takes to live at least semi normal again :)...
I would ask your GI his/her opinion. I sometimes wonder about those supplements.. I know someone in peru that swears she has a cure for UC .. its a liquid and you put one or two drops in any drink...