what if you are in flare with remicade after six months of using it? I am going to discuss Humira tomorrow with my GI. I started having issues last week and am going down hill fast. just a week after...
basically I was in the worst flare I've ever had on 80mg steroids, 4.8 grams lialda. been through the whole gambit of rectal meds, steroids, 5 asa's etc. they never helped and I don't think steroids...
haven't discussed upping it. I hear that they increase the dosage frequency. I just wonder, that will give me 6 more months then I have another flare? it just seems to be a cycle with this damn...
doctor was just talking about taking me off Imuran. still on 50 daily with remicade every 8 weeks. I am starting to flare up again and steroids never realy helped. I was on 80mg for 6 months before...
there is a loading dose protocol for the drug. I didn't see any improvement until after my 4th infusion. but I was flaring very badly. do you have Crohns or Colitis? its hard to say for some people...
I feel like I take enough pills sometimes but maybe antidepressants will help? seems like I have a mix of anxiety followed by lows of not wanting to even try. can't sleep to can't get enough sleep. I...
tapered off steroids, tapering off Imuran. remicade and Lialda is all the doc wants me on to save my liver. I am in remission for the most part. but my life has just fallen apart, and I'm not happy...
I'm sure there are plenty out there that suffer from Crohn's and Colitis that have been depressed from the losing battle or the aftermath of what this disease can do to you. I am uninsured and very...
weather or not they give you an enema depends on where the ulcerations are. typically it starts from the rectum and spreads to the entire colon. Mine hasn't gone pasty the left side. but rectal meds...
Hey moonface! ;) thanks for your kind words today. you have no idea how important they were to me. I know what I have is different, but on occasion when I'm stressed I get a burning sensation in my...
when I was flaring badly I couldn't hold one in either. however they never worked for me anyhow. but the one thing that helped was laying on my left side with right leg slightly bent and I just did...
thanks sue for the input. I love this forum, I've learned more from fellow UC sufferers than I have from all my GI's I've dealt with in the past 4 years. lol. I can't wait for the day I don't have...
SueBear, I have a question about the "up to 6 bowel movements per day" thing that comes with the j pouch. are they easy to manage? is it an urgency like when you have a flare up and have to run to...
I guess I'll give the drugs a shot. I have to save up for surgery anyhow. i have no health insurance and I hear its about 100k for the surgeries. all I know is the only thing prednisone is good for...
SUEBEAR: I am still flaring after my second round of prednisone, rowasa, and asacol. 5 years into this disease and I can't seem to get it under control lately. the doc wants me to take Imuran, I...
I really, really don't want to take it. I'm so tired of pills. I may get a second opinion. I think doctors need to listen to us, instead of insist on treating each patient with the same routine....
so, this stuff is supposed to cause anemia, and bone density loss.....sounds like I'm better off without it. second time on prednisone this year, so doc wants to start this. I wanted surgery. doc...
the rowasa is 4g. but the doc prescription says 1g nightly. so I really only get about three squirts out of each bottle. I try and measure it accurately.....kinda hard to do. but it was at bay, and I...
I have done away with beer in general just because I was told It causes issues with UC, I seem to have been doing fine since my last flare, I missed a day or two of my rowasa enema, but still was...
I'm a male and have been having some symptoms of irritating urination, and frequency, I got tested for all stds. and a urine analysis, all neg. I just got out of a flare up, but noticed in the past...
I agree with steroids being from the devil. they had me suicidal at one point because of how aweful and crazy they made me feel. I was on 80mg a day at one point. u should taper for sure....
prednisone will give you the shakes, sweats, dizzy spells, in addition you often get a low grade fever with a flare up. I am having the worst time with acne all over my shoulders and back from the...
I think thats what caused my recent flare. its finally under control I stopped taking the glucosamine a few weeks into the bleeding. I was taking it for my costochondritis. not sure why it would...
I take a probiotic from whole foods in pill form, and also drink one dan active per day. it has made a huge difference with my recent flair. finally some solid bowels. still bleeding though, just not...
does anyone get sweats for no reason? I'm still on 40mg prednisone, but tapering off. was on 80mg. so I think thats what it is. also have horrible acne on my shoulders and back. is that from the...
I was extremely anemic and my flare has been out of control for months. denied disability in Louisiana. I don't know how needing blood transfusions, having fever constantly from the prednisone and...
I think this surgery can only be done in cases of cancer, not sure if its o.k. to do with UC. but I'll find out for sure on thursday. thanks again....
OH WOW! that is exactly what I was thinking can be done!!!!!! I'm gonna print this out and take it with me on my appointment. thank you so much!...
I hope so, I plan on discussing it with my doc, and other doctors. especially those Georgetown university hospital guys. they seem to have some headway on the subject. I'll let you know for sure, let...
well, I haven't discussed the idea with my doc. I plan on it on thursday on my follow up. it hasn't spread in three years from the first diagnosis. so I don't know if it will spread again or not. I...
doesn't anyone get tired after years of dealing with flare ups and new meds? after three years of changing meds, and getting on new ones has really wore me out. I think sometimes that doctors are in...
same thing happened to me. weeks of feeling like crap from all the prednisone 80mg a day for almost two weeks. I'm on 40 a day now. asacol, rowasa enemas. things looked better, actually had a solid...
I just had a colonoscopy on thursday, they cut out two polyps. won't know till the 15th if they are bad or not. but had alot of bleeding the next day, they wanted me to come into the ER. but I can't...
I started tapering off 5mg a day for 2 days, at a time under the advice of my mom (30 year long nurse practitioner) and I already feel much better. the meds aren't working. so I am going to demand...
thanks guys, I'll look into the state insurance, as well as the other links. I really appreciate the help. I don't know why the GI won't spend more time with me. 10 minutes is all I ever seem to get....
I just wish I could keep this in remission. my GI doesn't tell me much about anything. and they are supposed to be the best in Louisiana. anyhow. I'm gonna see what this enema does for me. its once...
:cry: I'm taking 12 Asacol a day at 400mg. was in remission after falling severely anemic before switching of colazol. got it all under control for about a month or so. dealing with costochondritis...