I talked with my GI just this past week about the joint pain. He said it should not be happening with me now that I am in remission. I wake up with lots of pain in my hands, wrists, ankles and toes....
I was losing tons of hair for about 5 months...not sure if it was the disease, pred, or asacol. I started to take Biotin caps and it seems to have slowed down but it is a lot thinner....my daily pony...
BFing is great but if it is causing you too much stress then it may not be the best thing for you and your family at this point. Don't let the mother's guilt get to you if you need to stop. Do what...
I seem to have constant joint and body pain too. My chiro thinks I need to re-evaluate the vitamins I am taking and just work on mobility. My pain does get better once I am up moving around. I feel...
i think I would go straight to Remicade because I am still nursing and it is safe to take while Imuran and 6mp are not. My doctor has never given me rectal meds...maybe I will ask at my next...
I have been on pred since Nov too. I didn't even start to taper until I was no longer bleeding and only having one somewhat formed stool a day. Now I am at 7.5mg after a very slow taper. I will go to...
I am still on prednisone but i am overall feeling pretty good. 1 BM a day or every other day. I can pretty much tell it is a certain food (greesy foods and raw veggies) that sends my stomach into...
1. Age: 35 2. Age Diagnosed with UC: 33 3. Hair color: Brown 4. Eye color: Hazel 5. Do/did either of your parents suffer from UC or another IBD?: No 6. Do/did any of your siblings suffer from UC or...
The surgery was laproscopic. They pulled my stomach back through the opening in the diaphram where it had pushed through(the hernia itself) and tightened the diaphram muscles around the esophogus...
Has anyone else been diagnosed with UC after they had their gallbladder removed? Is there a connection? I had my gallbladder(lots of large stones) removed when I was 32 and I was diagnosed with UC...
I don't think I have any side effects from the Asacol HD except my hair is falling out....lots and lots of it. I am also on Prednisone still so lots of weird side effects are from that as well. Once...
I do worry. I wasn't diagnosed until after I had my baby. I wanted a child though and I doubt the disease would have changed my mind. Research shows that breastfeeding lowers the chance of IBD in the...
I am currently breastfeeding and on Asacol HD and Prednisone(was 40 mg but down to 25 now). The first time I was put on prednisone I thought maybe my milk supply went down but I wasn't sure because...
HUGS your way and to Chris....
The first time I was on prednisone my symptoms came back at 5mg so I had to go back up to 40 and it was harder to get in control (one month at 40 and now I am finally seeing a difference)I am stilll...
I guess I will continue to learn about IBD. As for now I don't have a definite diagnosis from my GI. Since UC and CD are treated almost the same I guess what I am doing for now will be fine. I am...
So glad to hear the hair goes away...my cheeks are fuzzy too. I see my moon face but my husband says its "not that bad". I have been on pred since Nov. and starting my sloooow taper this week....
Thanks for the info...it seems that is what I have going on. I am just hoping the current drugs and diet changes help and I can get some relief for a while. I am feeling pretty good now and I will...
I had joint pain(wrists, knees, hips and low back) when I was flaring really bad. When I am on prednisone it seems to go away....
PB4 I have lots of back pain when I am flaring and not on prednisone....is there a connection with the colon? My back pain is usually lower right side....
My doctor just mentioned crohn's colitis for the first time this week. I had my first scope over a year ago and this week he was looking at the results again. He said my inflammation is "atypical"....
I am just starting Asacol HD (2 pills, 3 times daily) and I was reading the information provided with the meds. I still have a couple of questions... Do I take it on a full or empty stomach? Does it...
I am glad to see so many people in remission...it gives me hope! I have been flaring since I had my baby in Sept if 2009 with one month of remission last Dec....
I dink a Gatorade each morning...I am always so parched first thing in the morning. It seems to be ok but I am in a flare now so who knows....
how do they check the cortisol levels?...
Your post made me smile....thanks!...
I always expect my GI to be more surprised and concerned about my symptoms....maybe they just see it all and nothing is too shocking. I am always concerned about how much blood I am losing and he is...
I think I am going to go to Whole Foods today to find some....it couldn't hurt...it could even help a bit. I was reading about it last night and it says it is good for helping mild UC...I think I am...
I am new to trying the gluten free approach to help me get out of a flare. If you are gluten free, how strict are you? I am reading labels and trying very hard not to have ANYTHING with wheat in it....
I know, right? Thanks!...
OK...so I just searched the healing well site for digestacure and it seems there are people that put stuff out as a spam.....I didn't intend for this to look this way! I am new here and I was just on...
Has anyone tried DigestaCure? It guarantees to cure autoimmune diseases. It says it is all natural, plant derived but other than that I am not sure what is in it. I wonder is it would make a...
Sounds like my morning sickness when I was pregnant. haven't noticed this with my UC....
Hi all, I am new here so if this has been answered over and over...forgive me. I am a mother of a beautiful 17 month old boy who I am still nursing. He is allergic to all things dairy and I am not...
I am having this same problem now. The first time I had Pred is worked at 40mg within days. My symptoms came back when I got down to 5mg. The dr put me on 40 the tapered each week and it didn't get...