Hi Everybody, After reading about this protocol here, I began using oregano oil and l. reuteri 4 weeks ago. I purchased both from Whole Foods, and the oregano oil is 80% carvacrol. I started with 3...
Likewise. The first time I flared I thought I was having a problem with my prostate too because I kept feeling the need to urinate but was unable to go. I still feel this way now if I'm in the middle...
Thanks very much for sharing this. I watched the whole thing with my wife and we were fascinated. There's a lot of research going into the microbiome right now, and I'm really starting to spend a lot...
Yeah, I've read a lot about AIP (auto-immune pancreatitis) as well over the last few months. If you were taking the pred when all this started, it seems really unlikely to me that it's AIP, since...
Hi MNBeachgal, I've had a very similar experience, in fact. About 6 months ago I began experiencing pain in my upper left quadrant after dinner one night. It was pretty intense and seemed worse when...
Yeah, fortunately that's really been the only symptom I've had since the summer and it doesn't seem to be getting any worse. I do have Rowasa enemas on stand-by, and if I had any bleeding I would...
Thanks for the suggestions, Pat. Since this started I've been keeping a food diary daily to see if I can determine the cause but I'm not seeing any pattern as of yet. I'll also look into trying the...
Captain, stop calling me "son". It makes you seem that much more condescending and arrogant. And no, I will not come back in 10 years and tell you anything because I'm not interested in maintaining a...
Joanna, I actually did take antibiotics just before this began. They started me on Clindamycin, but after reading how it could cause problems for those with colitis I had my doc write a script for a...
I hope things go well and you get great results! I'm glad to hear that you're getting the Miralax prep too... I don't understand why this isn't the standard for everyone that gets a scope now. I...
Captain, I disagree with your assertion that I'm asking for trouble. My gastro wanted me to stay on a maintenance med for the rest of my life (asacol 4x/day I believe), and I chose not to take that...
Hi everyone, I've been dealing with UC for 5-6 years now off and on (started as proctitis, and progressed into more substantial flare this past summer) and was was able to get myself into remission...
That's a good point Sara... how long do you think I should wait before tapering? Are you currently in remission using asacol and rowasa?...
Hateuc, thanks so much for letting me know! My out of pocket price for Lialda would be 270 per month so it would be tremendously helpful if I didn't have to pay so much. "Treating from both ends"...
Thanks for the responses everyone. It sounds like the consensus seems to be: 1. I shouldn't stop taking meds all together, though rectal meds by themselves may be okay if my colitis is distal and...
Hi everyone, After a bad flare that started in early May, I finally went and saw a GI who prescribed me some rectal meds (rowasa enemas) that I began taking at the beginning of July. They seem to...
Stacy, Just wanted to drop in a quick "thank you" for starting and updating this thread. It's great to hear such positive results, and it really seems to give a lot of the users on this board hope...
My suggestion after using these things for the past week is just to lay down as long as you can after taking the enema. And don't worry too much about occasionally having to let one go after 30...
Thanks for the suggestions everyone. My diet for the last several days has been very high in fiber (lots of raw veggies and salads), but it doesn't seem to be helping a whole lot. Part of me wonders...
Hi everyone, Since beginning rowasa enemas last week, I've had a lot of constipation. I know this is a side effect of mesalazine, but I'm just wondering if anyone else has run into this and how they...
Thanks for the tip Jennifer! My inflammation seems to be quite low as well, so I'm sure that will help. I'll try it tonight (how exciting, huh?). Heather, my bowel noises are quite loud (relatively...
Kazbern, thanks for pointing out that it seems to slow your bowels, as I feel the same way. I had very small movements yesterday (without any blood) and today I've had 1 'normal' bowel movement for...
Thanks to everyone for the suggestions. I'm really glad I asked, now I know to warm the bottle and get the air out - I'm sure that will help a lot....
Just wanted to post a quick update and say that I kept this in all night. In the 3 movements I've had this morning, I haven't had any blood (for the first time in 2 months). I'm having some crazy...
Well, after stopping by two pharmacies to find someone who had rowasa enema's in stock (Walgreens), I came home with 4 briefcases full of butt juice tonight. I felt like I was walking out of the...
Thanks for the advice and kind words everyone! I'm at work at the moment but wanted to post that my doc prescribed rowasa enemas today (not sure what the dosage is yet), which is good considering...
Hi sweetpeasmom, and welcome. I'm so sorry to hear about your daughter - UC is a terrible disease at any age, but to have this happen during her first year at college must be really difficult. I just...
Hey Mhg, First of all, I'm sorry to hear about your diagnosis. I started experiencing symptoms of UC at a young age as well (21-22) so I know how overwhelming it can be. I hope things improve for you...
Hi everyone, I've been reading this board for a while now and decided that I wanted to sign up and contribute, since I get so much good information from this place - thank you to everyone who takes...