I tried Aza and was soooo sick on it. !! Within 1 hour I was vomiting profusely. GI said take it at bedtime to "sleep thru" the side effects but didn't work either. I would actually wake up to vomit....
Hello everyone, Thought I would give an update....... I am now at 25mg prednisone daily and so far so good. I am still on a low residue diet and unfortunately had a setback when I had a small amount...
Hello all, I am usually in the colitis forum because I am dealing with a flare up right now. I am also hypothyroid and take 60mg desiccated thyroid at bedtime. The reason I started taking at bedtime...
Judy2 did you get the shingles vaccine before you started Remi? I don't remember having chicken pox and my GI wants me to get shingles vaccine before starting Remi just have to wait till I am off...
Lonie, what dose is considered "big guns" What is your maintenance dose? How long did it take for Remi to put you into remission?...
WOW-thanks for the responses, appreciate hearing your experiences with Remicade esp the success stories! Pluot-thanks for the URL. I went to the site and was able to find it. I felt so much better...
UC Cursed, do you by chance live in Canada? I ask because you mention the cost of Remicade. I was told anywhere between $2000.00-$5000.00 month. I don't know how people pay for this treatment!! I ll...
Marianne, Can I ask you some questions about your ileostomy? If you feel comfortable answering these questions please do ,if not I will understand and that's no problem. How long have you had your...
Hi there, DCM2011, I have tried those drugs before and they made me extremely sick-profuse vomiting !! Marianne- in sickness and health yes except for ostomy's :(``` He is very very squeamish when it...
OOps sorry don't know what happened with the double posts above from me.... I am currently on Methotrexate, Asacol as well as Salofalk supps and prednisone. So far they don't seem to be holding me....
Hello, My GI dr is talking about starting me on Remicade soon as other meds are not holding me any longer. I am opposed to this drug because I am so afraid of the s/e!...
Hello all, I am back again! I posted under "scared and confused" in July. A quick recap: I had a scope in mid June and it started a serious flare, within 3 days I was hospitalized for dehydration. I...
Hi NCOT, I am soo sorry to hear of your struggles and depression. I have Crohns and am in the midst of a flare right now. (you have responded to some of my posts in July) I also have severe...
Hi there, I bought her book and followed it strickly during this recent flare. She has sooo much excellent information in her book and her recipes are not bad either. I especially appreciated the...
Hi Tilly, I saw your posts here on VSL #3 and am intrigued. One of my specialists recommended a high quality probiotic and the health food store recommended Critical Care Ultimate Flora 50 billion. I...
Hello all, I just heard something very interesting. An acquaintance of mine had been admitted to hospital with a severe crohns flare up where she couldn't even keep in fluids. The drs couldn't figure...
I had a scope 2 weeks ago. I was in a lot of pain for days which required morphine. We think the scope caused a minor flare to go into a full blown flare which resulted in a 4 day hosp stay! My gi dr...
Can you tell me what the difference is between psyllium husks, psyllium powder and psyllium tablets/capsule? My gi dr told me to start adding 1 tsp to yogurt or applesause daily to help slow things...
I have been hearing about the use of probiotics with CD & UC. My GI dr isn't convinced they make any difference. I had tried Ultimate Flora Critical Care but it caused me to have loose stools. I...
Tested last week, no infections, jusst feel sooo dicscouraged . How long does predisone take to work Texting on my phone sorry for typos....
Well so far not so good, yesterday was a bad day. 10+ BMs with blood. I am exhausted; the fatigue is overwhelming! I am sticking to a low residue diet and am eating very sm amounts at a time but it...
I have previously had 20 bms day , blood, mucous, lots of pain during a flare 6yrsago but that didnt occur until I had been sick for over a month. What is atypical this time is the very rapid...
/community/emoticons/cry.gif Hello everyone, thanks for helping understand the difference between these 2 diseases. Unfortunately my flare went from mild to severe after the colonoscopy! First I was...
I am newto all of this, but what are biologic medications ?...
My diagnosis is the opposite. Diagnosed 18 yrs ago with UC, then last week during a colonoscopy,my gi said she thinks its more indicative of crohns disease, due to patchy disease. I actually was...
PS I should add that the gi dr told me that during the scope 2 days ago, my sm bowel looks completely normal, no disease there whatsoever!? I thought crohns affected sm bowel ? If mine is normal why...
wow, thanks so much for your words of wisdom. It is so comforting to know there are others out there who are/have lived through what I am experiencing and are so supportive and encouraging! I realize...
hello all,I found this thread while searching for appropriate diets for colitis/crohns disease. I was dx in 1995 with ulcerative colitis. I had 2 very minor flares that were controlled with salofalk...