Yes, get a script! Rectal pain is one of my first indications something is going on. I use rectal meds regardless of a flare or remission. Every night... At the very least research the closest...
In 10 yrs of trying different things, the biggest improvement for me came from hydrocortisone enemas and metamucil....
Diagnosed at 30....getting ready to turn forty. For me I'm just getting worn out and tired. Meds stop working and I move from one to the other, researching the heck out of them trying to make sure...
I delivered both my kids vaginal and flared! The first was a more severe flare up and he was 10 1/2 lbs. I was thankful there was no csection....
I put mine in a ziploc just in case they exploded, but they were totally fine! I had them tightly packed in my check in luggage. Good luck traveling !!!!...
Update....had a colonoscopy today. While still on pred 2/3 of my colon is inflammed ( he called it left sided). And there is a small ulcer in the normal part of the colon. I started 150 mg of imuran...
I'm so with you looking at my last (maybe2oz) of moviprep. I can't do it! I don't know how we are going to do this in the morning? Ugggg! You are not alone! :) Lana...
I'm sorry! I know the feeling. I have it about every 6 months just as I'm rolling along with no problems. UGGGG! Hang in there....
That is so great to know! I'm so happy for you. I'm sure there are many of us on here struggling with our meds and considering surgery so it means a lot to hear positive feedback. Thank you! Here's...
Thanks to everyone for the postings. Every bit of information helps. Especially hearing some positive stories about the treatment plans actually working in favor of a better quality of life. Lana...
Notsosickly- That's exactly what I don't want to do is go down that road and look at all you've been thru! UGGGG! I have thought a lot about making sure I don't have Chron's as well just for the fact...
thanks Kate! I feel like I'm starting to exhaust med's. My sig didn't show on my first post but it's there now. I plan to consult with a surgeon also to get the ins and outs. I've done a lot of...
My sig didn't show up... I've been on: ASACOL, PENTASA, ROWASA, COLAZAL current: APRISO (8 PER DAY), Metamucil (4 capsules), FLORAQ2 probiotic, Fish Oil, hydrocortisone enemas nightly, canasa during...
Looks like at my 10 year mark of dealing with this complicated disease, I'm looking at moving into this class of drugs. I have never gotten a full year of remission. Usually I look at 2-3 flares a...
Just wanted to mention since you are newly diagnosed to be careful of NSAIDS and antibiotics! As much reading as I did when I was first diagnosed, I learned my lesson from experiencing flare ups from...
Metamucil and Oatmeal!...
I am on 8 Apriso capsules while in flare. This is also new medicine for me however I believe the Dr. will reduce me to the maintenance dosage of 4 capsules once I can get past this flare. Just wanted...
Every flare has a mind of it's own! I swear it seems every time I figure it out the next time it doesn't work. Keep with the Dr's recommended dosage. It is better to nip it right away and keep your...
I'm going to make these! Thanks for the recipe. I eat tons of oatmeal in the mornings and unfortunately sometimes for dinner :) Sounds like something fun to try!...
Thanks Sherry! I think my Dr. is trying to his best to get me thru in hopes the Apriso can kick in and do it's job. He's trying to keep me off the prednisone. I don't want to have to go that route....
I am transitioning from Colozal to Apriso after battling a "semi-flare" since July. Since then I've added Cortef to the mix because I started seeing more blood than usual as this flare is getting...
I am working on a flare right now. I came off of Colozal and I am currently taking 8 Apriso capsules a day. I also have been doing hydrocortisone enema's trying to stay OFF the prednisone. My Dr....