mari68

I was given mer.cor when I flared a couple of years ago as well as other herbal supplements, which helped to put me in remission in 1 month. However last year after an epic flare, I was given the...

Hey SAS, Just looking over the protocol for FT I was given by Borody's clinic and thought you might be interested! The person undergoing FT needs to go on a low fibre diet 2 weeks prior to begining...

Hey Max, if you want to contact me my email is [email protected] !...

Wonderful news Veronica. May Chris have a wonderfully 'normal' life. remember that probiotics have been proven to help rid pouchitis! Go Chris!!...

I was diagnosed at 22 and am now 42, and up until I was 40 my colitis was very mild, with very few flareups. Once I hit the 40year mark I experienced 2 of the worst flares of my life. Both instances...

Hey Anthony, yes I live in Oz and have just gone through their fee schedule. Colonoscopy (which includes 1st infusion I think) is $1200, plus $1700 for 1st week of infusions, If you need more the...

Absolutely Anthony! That's why I went to see them. they have had brilliant results not just from patients with c.difficile but also great results for patients with colitis. being in remission at the...

Hey gina, I too was very reluctant to start on immunosuppressants. I wanted to be able to control my colitis through diet and natural supplements, like I had been most of my life. However, after my...

Sas, So happy to hear that your treatment is working. I have seen Prof Borody here in Sydney, Australia about doing the fecal transplantation and have done all my blood tests to start the treatment...

If I can work out how to do it, I will post a research paper that Prof Borody gave me re Fecal Transplant Therapy where he explains the bacterial problem etc... Very interesting! Am sure he said that...

Hi, I was in a very bad flare and begged my GI for Pentasa as I didn't want to try Imuran. I had been on high Prednisone levels for 5 months with no improvement, but once I started Pentasa, my BM's...

I recently saw Prof Borody, he of the fecal transplant therapy, and he believes UC to be caused by a bacteria, Says we just dont know which one!! He is doing research into all of this. Stress does...

My GP informed me last yaer that my Vit D levels were too low and that I should take a supplement. I didn't and within 3 months I had the worst flare ever!!! I started taking Vit D after reading...

Hey, I was put on prednisone after my last 2 flares that resulted in me being hospitalised. Whilst the 1st time I went into remission after about a month the 2nd time I was on prednisone for 8...

Hey Dunia, I've been on a tonic made by my GP/herbalist for about6 months which includes licorice. She says it's natures steroid and helps as you're weaning off prednisone. I'm going back to her in a...

Chris, So sorry to hear how bad things are for you at the moment. Don't despair! See what the Dr says and ask about LDN and other treatment options. As for the diet, I too could eat whatever I wanted...

Thanks for the positive feedback guys, it's very encouraging. NSSG, when I see the good Dr next, I'll ask him about genetic predisposition. This is truly a wretched illness and hopefully a cure is...

Registered nurse working for a dermatologist, but was an operating theatre nurse at a Children's Hospital in Sydney Australia until the UC made it too stressy to work! :smurf:...

You poor thing! I'm so sorry to hear you're flaring again, this disease is frustrating to say the least. Quincy is right, you should see if your GI can prescribe some rectal meds, they really can...

You guys are the BEST! Thanks so much for the encouragement and advice. This disease can really get you down, especially since i never let it control my life, but now, It seems to have a life of its...

Hey Guys, Any advice is greatly appreciated. I'm unable to shake this relapse that started at the beginning of August. Was hospitalised, put on 50mg prednisone and salofalk (Rowasa) enemas nightly....

I'm from Oz too! Drug names are confusing! Here's a rundown from what I can gather: 5AHA drugs include osalazine (dipentum), mesalazine (pentasa), mesalamine (asacol), Mesalamzine enemas (salofalk in...

WIMOMOFTHREE: My advice...If in doubt, DONT! Seriously, not worth the stress of the what if's. I would a million times go surgery b4 more toxic drugs that may or may not keep you in remission. Heck,...

Hey guys, Anyone using Boswellia? Can you use it whilst on prednisone? I'm slowly tapering off pred, was on 50mg for nearly 2 months and now on 40mg for 2 weeks. Have started bleeding again since...

Hi, I was on 50mg prednisone after I got out of hospital, and was on it for 2months. The doctor then reduced it to 40mg, and the bleeding returned! So am still on 40mg 2weeks later, hoping to taper...