I'm so sorry you're having a rough time! It's enough to get the best of us down, but you are not alone. You're still getting out of bed, out of the house and taking care of your daughter. That's a...
I'm so sorry for not updating for so long! It's been quite a journey... Sooo chemo is no fun. I don't know how kids do it. They are tough little monsters! That stuff really kicked my butt some days....
Oh my goodness that sounds like a rough night! I never had sweating like that until some other medical issue came up. As far as cramping, dicyclomine (Bentyl) really helps me. Don't go overboard with...
So the joint pains are still there? Have they improved at all? Keep at it Thoreau, you can do this! Be kind to your gut, maybe sweet talk it a little...take it on a nice walk...;)...
I miss kettle corn soooo much!! And salads! And grilled corn on the cob! And spinach! One day corn on the cob.....one day......
Geeker I'm so sorry you're going through all this! Eight days in the hospital?? It must be wonderful to get out. The best part is fresh air. Clean, doesn't smell like disinfectant or other people...
I would continue with the plan. The only part that worries me is the actual vacation. Will you be able to keep the same/similar diet? Does traveling stress you out? Will you be able to rest as...
Kazbern: haha! Or maybe Crohn'sHodgkin'sLymphomah8er? :) NSSG: that's so nice of you to think of me! Thanks! Tunnelvisionary: that is some seriously interesting research. Wow! I don't think I...
Banana Bacon & grits (only when I'm feeling ok) Egg, ham, onion omelet, no cheese If I'm really not feeling like food, then just a non-dairy protein shake. Orgain vanilla is good, kinda $ tho I try...
I had my first chemo yesterday! Weird, think I was still in a little bit of denial as they accessed my port. I won't go into too much detail since this a UC forum, just want to send a little update....
The rules here for drug advertising are weird. If the ad includes a drug name, you have to include common/serious side effects. Sometimes those seem to take up the majority of the ad time! If you...
I'm so sorry. It's rough, and then not sleeping is just icing on the UC cake! This may be silly, but do something good for yourself that you really enjoy. Even if it's a 15 minute time out for a...
Wow! Katmom knows whAt she's talking about! Those are great suggestions in addition to the new plan. Are there guidelines for when Remi levels are taken? Thoreau, my last (and I mean for good) Remi...
Good luck!! I hope you have a smooth and speedy recovery. I'm really excited for you. One final aloha from the colon huh? It just wanted to give its thoughts on things...=) goodbye colon!...
Silver lining...like what good has come of this right? I appreciate my "good" days so much more. I appreciate every second with my adorable nieces and the sun on my skin. I've realized how trivial a...
It's official: Stage 3 Hodgkin's lymphoma. Aye aye aye... So new GI wants to start from scratch with me. He says I'm a difficult case (not person!), a conundrum. He's ordered a small bowel series,...
Hello again! Had laparoscopic biopsy yesterday. They removed the largest lymph node (above and to left of belly button). Waiting on those results. Have seen two oncologists (2nd opinion came from...
Bentyl (generic dicyclomine) is great for cramping! It's been around forever and generic only available now so should be fairly inexpensive. Make sure he's done with prep though! You don't wanna slow...
"The UC pain is gone." Wowww, that's so wonderful. Hope she has a smooth and speedy recovery!...
Cluster poops! :) If I know I'll have a long work day, I start easing up on the food the day before. This is wrong and you shouldn't have to do it, but sometimes it's the only way to get through....
Over? Heh heh, here in Florida it's an endless summer. Or as a lot like to joke: we have two seasons - summer and hurricane season! Today's high is 93, low of 78, 60% chance of rain. Where do you...
I said I'd keep you all updated so....HemOnc MD says it's looking like Hodgkin's lymphoma. I'll be having a laparoscopic excisional biopsy sometime next week (actual lymph tissue instead of just...
Aww thanks y'all. Please don't cry though! It is scary but let's wait for a diagnosis and see where we go from there. The actual hard part is hiding all this from my mom. I don't want to say anything...
Wow! Congratulations! That sounded like a wonderful trip and I'm so glad it was UC-eneventful. You were very brave. :)...
Hello fellow UCers! So I'm typing this from my lovely hospital bed. Been here since Thurs (4 days). I came in with symptoms of a bad flare, major pain/nausea etc. They did an abdominal CT scan and...
Hi PinkPaperclip, Do you have an updated on this topic? Inquiring, and scared, minds would like to know please. Either way, hope you're doing well!...
A braver farter?? Haha! That's so funny! Interesting, I never considered disposable undies. My periods are absolutely worse with UC. Looser bowels, complete gastric emptying right before it starts,...
Yep, dark red if bleed is from higher in GI system, bright red if from lower. If you can handle it, an iron supplement might be a good idea right now too....
What does Klonopin do for you?...
Yummm pizza...I usually go to this little place that's been around forever. Thin crust, dough made fresh. After UC it definitely started bothering me, So sad! But I think I've narrowed it down to the...
I'm good with vodka, but will only have it when I'm feeling well. Used to really love wine, and still have some pretty good bottles collecting dust, but wine no longer likes me. I've tried organic,...
Peppermint is a good idea! I even have some peppermint tea...it smells like Christmas. Pain can definitely cause nausea, but usually I'm shaking with pain by then. This nausea feels like my innards...
UCHater! Great minds?? Bananagirl: I have the same set up now! But now I'd rather not eat so I don't have to deal with it. No bueno, I know. Does nicotine really help? Were you ever a smoker? I don't...
Hello everyone! I hope most of us are past the point of being delicate, so here goes: has anyone else had severe nausea during and for hours after a BM? This has been off and on for about a week,...