Hi All, I have a 10 year old daughter, Mak who was diagnosed with UC when she was six. We have currently been fighting a flare and I need some good ideas of what to pack her for school lunches. She...
I can't say I really feel anything coming up but it's the constant burning that is driving me crazy. Sometimes my ears even burn. The doctor didn't really do much but listen to my symptoms and look...
Hi All, Long story short..... I have had a REALLY stressful summer and started feeling a burning feeling in my throat about a month ago. I went to the doctor and she diagnosed me with GERD and gave...
Hey deltaforce, The took her off the azo and pentasa but we continued the Remi every 8 weeks. In Aug of 2012 she was doing so well the were thinking about putting her on every 12 weeks instead....
Ok, just talked with the nurse and the doctor has suggested 4 500mg Pentasa capsules a day, 75mg of azo and remi on the 22nd if not sooner. Please pray this helps her. Thanks for all the replies....
She has pancolitis so they have told me that rectal meds wouldn't help her much b/c they couldn't get to all the spots....
quincy, I started her on VSL#3 for juniors but she hates the taste and mixing it in food or drink. She can take pills so I thought maybe I should look into just getting her the capsule for and not...
Oral please...
Do any of you moms have kids that take Entocort?...
I have called the doctor this morning because my 8 year old is still having blood in her poops and is starting to have some discomfort. She has recently weaned off prednisone but now 7 days later...
She is on Pentasa 500mg, two pills twice a day and 75mg azothioprine. Also remi infusions every 6 weeks....
My 8 year old had a flare in Jan and spent 5 days in hospital for IV steroids. She came home on 25mg and eventually her symptoms disappeared, thank God! She was finally done weaning the steroids last...
kazbern, Thank for your responce. I have thought about that but she LOVES school and her teacher. I would love to keep her with me 24/7 and protect her from everything but in a way feel like I would...
. I want to help her any way that I can so I was curious if anyone know of a way to help keep the swelling down. ...
Thanks for the feedback everyone. We got to come home Tuesday. She is still on 25mg of prednisone twice a day, azothioprine 75 mg and omeprazole but doing a lot better than last week. The plan on...
My 8 year old as been struggling with her UC for the past three week. Last Friday the doctor ended up admitting her for a 5 day course of IV steroids. She has made a lot of progress but I am nervous...
Just an update from yesterday. Mary-Mak had a terrible night last night. She was up almost every hour having to poo and crying because her tummy hurt. She is having her infusion right now and I am...
Thank you kazbern! I agree on the Tylenol. I didn't understand how that would help much either. I have often thought about the Probiotics. I think I will try that again. The last time that she got...
Thank you Sherry. I had actually called the doctor this morning to see about an anti-spasmatic med. I am waiting to hear back. They also said that I could give her Tylenol....
Hello All, I have an 8 year old daughter, Mary-Mak, who was diagnosed with UC in the summer of 2010. She was hospitalized for a short time over that summer and was put on Pentasa, prednisone,...
Hi Everyone, My daughter was diagnosed with UC in July of 2011. She ended up spending several days int he hospital last summer on IV steroids and than several month on oral steroids. She has been off...
I have a 7 year old daughter who was on Prednisone from June 2001 until last week. She has gained weight and is really puffy. Not to mention darker and more hair in places she is too young to have....
Thank you Marianne for the response....
My 7 year old gets her first Remicade infusion on Wednesday at Levine Children's Hospital. Just wanted to see if anyone could give me a heads-up on what to expect or any way I can make this "easier"...
Your family is in my prayers....
Our 7 year old had her second colonoscopy and endoscopy on Friday. The endoscopy was fine and the colonoscopy actually showed that her ulcers are much better then in June. However, she is still...
Thanks for all of the replies. I like the suggestion of the "quiet-hour" maybe Mommy will check into that for herself. I sure could use some stress relief! /community/emoticons/tongue.gif ...
Anybody out there had any experience or heard of kids having acupuncture to help with Ulcerative Colitis?...
Thank you all for your posts. It helps to know there are others that are fighting the same battle....
Hello All, I am a mom with a 6 year old that was diagnosed with UC this summer. She spent 3 days in the hospital for IV steroids and flagyl. She is currently being tapered but still on 15mg a day....